Ashauna/CF Clinics

[Guest guest]

Ashauna,

I remember you saying that you go to a clinic that is a affliate

clinic from another city. We did not have good luck with the

affiliate clinic in our area. Only one doc just like your

situation. He was not helpful at all. He did not even keep office

notes on Zach.

If possible, call the Cf Clinic that is overseeing the affiliate and

explain the situation. They need to be aware that there clinic is

not providing good care. I think you are using the Pensecola clinic

and the clinic's info for ville is below.

Appointments:

Center Director: Bonnie B. Hudak, M.D.

I know you are frustrated with good reason. Try to hang in there.

Sara - mommy to Zach 19 months wcf

> ,

> At times I wonder if he is trying to figure out anything. I

still

> have not heard from him at all not even a phone call from his

nurse. I

> keep calling and nothing just that " for now he does not want to

put it

> back in. " This is very aggrivating to me because I don't like to

feel

> like the Docs are telling me what is best for my son when I know

that he

> needs this. Yesterday without the tube he only took 16 oz of

formula.

> I have no way to force feed if he refuses to eat as he does very

often.

> No they did not teach me how to replace the tube only to go to

er if

> it came out. I think that it was because a resident was watching

over

> us not our actual doc. He and I really got into it while we were

> there so he was just probably ready to get me out of there and for

that

> matter I was ready to get out as well. Colgan had it in for 3

weeks

> without it coming out so we did pretty well in that area it is just

> wondering what the hell is going on now that is making me crazy.

>

> Thanks

> Ashauna