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Re: Transplant Update

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Becki,

What's a matter with those docs? Are they bonkers??

There's no way you need to lose 50 pounds!!!!

Just doesn't seem right.

Do they want you to be so scrawny you cant survive the surgery or

something?!!?

If all else is in the right category I just don't understand why the weight

is a problem. It would be different if you were obese and the weight was a

health hazard.

Sorry to hear the bad news. You just hang in there!!

Love ya,

Aunt B

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Your post gives me goose bumps! I am so sorry that they rejected

you. How awful! Who would have thought! I always thought that the

more someone with CF weighed, the happier the doctors were. I saw

your picture when you did the TV interview. I don't see where you're

going to find 50 pounds to lose (or even 20). I wish that I could

help you. Please keep us informed.

Gale

> Hey ALl

> Well here is the heads up on the Transplant...its a no go...=(

> I was rejected. Stupid reason to add to that blow. Lung function

and

> healthwise they said I am ready but b/c of a weight issue they

won't even let me come

> in for an eval.....I am not sure what to do now. Nothing like

feeling sick and

> knowing that its not gonna get better anytime in the near future.

> Sux to be me.....

> So I will just keep working out at the gym...who knows maybne the

Heart rate

> of 240 will up my metabolism...Ughhhhhhhhhhhhhhh

> The weird thing is Denver to me I only had to shed like 5-10

pounds...Duke

> says 50 ! ! !

> My doctor is floored...............

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

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In a message dated 7/3/2003 1:10:32 AM Central Daylight Time,

MissGooberGirl@... writes:

> Hey ALl

> Well here is the heads up on the Transplant...its a no go...=(

> I was rejected. Stupid reason to add to that blow. Lung function and

> healthwise they said I am ready but b/c of a weight issue they won't even

> let me come

> in for an eval.....I am not sure what to do now. Nothing like feeling sick

> and

> knowing that its not gonna get better anytime in the near future.

> Sux to be me.....

> So I will just keep working out at the gym...who knows maybne the Heart rate

>

> of 240 will up my metabolism...Ughhhhhhhhhhhhhhh

> The weird thing is Denver to me I only had to shed like 5-10 pounds...Duke

> says 50 ! ! !

> My doctor is floored...............

>

> Becki

I can't believe it they are always telling people with CF to but weight on

and now they are telling you you need to lose weight!! I don't understand it!! I

am sure after the surgery is done you will lose a lot of weight. Keep us

posted. Deb A

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