Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 My 12 year old wcf had bronchiectasis....the result of something called MAC (mycobacterium avium complex).. something that is kin to tuberculosis. After a year of 3 different oral antibiotics, the MAC is gone and so is the bronchiectasis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Georgianna: Ricky first showed signs of bronchiectasis at about 4 years old, and I've heard of it in children younger. It really freaked me out at first but since then his scans haven't been too bad and he hasn't been in the hospital any more than he was before, so either we've halted its progress or it was a mistake. I will hope for the same for your daughter. Becky mom of Ricky (7) with CF and Andy (5) no CF Bronchiectasis My daughter is 3.5 years old and had a lung CT scan this morning. This afternoon I was told that they found some bronchiectasis. She also had an enlarged pulmonary artery indicating likely pulmonary hypertension. She had a heart cath done last December and did have PH at the time but had open heart surgery in Jan and we had hoped that would correct the PH, although there were varying opinions on whether the small hole in her heart could be causing it. Well, now it appears as though she still has it. I know people with cf get bronchiectasis but how common is it in children this age? Is it bad that she already has some? Georgianna Quote Link to comment Share on other sites More sharing options...
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