Re: The Nut Diet vs...hmmmm/Mimi or others

[Guest guest]

Hello,

I've been feeding my two ASD boys The Nut Diet for almost three months

now, and I'm starting to question whether SCD is necessary for my

kids. After listening to a very moving presentation at the DAN!

Conference on why ASD kids MUST be on this diet, and reflecting on the

fact that one of my guys is not responding to biomedical interventions

thus far, I decided to bite the bullet and do SCD for them.

The intro diet was a bust as my boys have serious sensory issues with

food. NOBODY was sippin' broth in my house, no matter how many times

I offered it. I decided to offer some of the other foods on the diet

that were similar to foods they ate while GFCFSF (like chicken

nuggets, meat balls, pork chops, scrambled eggs, fruit) and they

finally ate. So far so good, except for quality of life issues

centering around me not being able to ever leave the kitchen; I now

have to cook each boy a separate meal, and then one for the rest of

the family. My kids NEVER like the same things as each other, and

although I used to cook GFCFSF for the whole family, I cannot afford

for all of us to eat SCD. Therefore, I cook and cook and cook and cook.

The issue that concerns me is that my sons had perfect stools before

the diet. They still do. My younger one gets constipated from dairy

(tried it this month after 1.5 yrs. w/o it), but otherwise, there is

good pooping happening here. For this reason, I have not cooked their

fruits, nor have I waited to introduce nut flours. Am I dreaming that

this diet is going to help my kids? I am doing this diet to try to

keep yeast at bay and " heal the gut " as they both still have

malabsorption issues. Will this diet heal their leaky guts if they

don't present with obvious GI issues like diarrhea or constipation?

Janice

Mom to Billy 3 and Colby 2, SCD since March

Food sensory issues still abounding for Billy, abating for Colby

>

> There is a diet that is pretending to be SCD and fooling many

> parents.

> Many parents think that they are doing SCD and are not aware that

> they

> are actually implementing the Nut Diet instead of SCD,confusing the

> Nut

> Diet with the real SCD.

>

> Many parents begin SCD by replacing the breads

> and cookies of other diets with nut flours They also feed their

> children any food that is SCD legal without first going through the

> introductory diet and making sure that their child can tolerate that

> food. This is done because most parents think that the rules of

> SCD

> and GFCF are the same. When parents start out with GFCF,they are

> allowed to use all the GFCF legal foods. It is important for parents

> to

> realize that the rules for SCD are different. While the goal of

> GFCF is

> the elimination of foods that contain gluten and casein,the goal of

> SCD

> is to avoid foods that cannot be digested. A certain food can be OK

> for

> one

> child but not for another. Also,a food can be difficult to digest

> for a

> child during

> the first months on SCD but fine at a later time when more gut

> healing

> has happened.

>

> The important idea behind SCD is that " We must never forget that

> what

> the patient takes beyond his ability to digest does harm. "

> Undigested

> foods become great nourishment for the gut microorganisms that have

> an

> excellent ability to digest carbohydrates. These parasites then emit

> toxins that destroy our children's gut and brains.

>

> Certain foods that are fine for advanced SCDers are not OK for

> beginners

> and might harm them. The most famous example is the nut flour. Many

> children cannot tolerate nut flours in the beginning stages of the

> diet.

> It is advised to start out with the intro diet and gradually

> introduce

> new foods. The " stages section " on www.pecanbread provide

> inspiration

> but there are no hard rules

> because our children are all different. The idea is to introduce new

> foods gradually and watch carefully for reactions.That is how you

> implement the " Real SCD " . If you just feed your child any food that

> is

> legal SCD food without taking into consideration that some foods

> might

> be difficult to digest during the first months then

> you are doing the " Nut Diet " .

>

> As we see,there are two different ways to implement the legal SCD

> food

> list:the nut diet and the real SCD.

>

> Is the Nut Diet better than GFCF? Of course! Despite its

> shortcomings,it

> is a lot easier to digest than the starches that are allowed in GFCF

> and

> other diets. I will give examples that might clarify this confusion

> and

> show us that our children are unique and have different outcomes

> with

> the Nut Diet.

>

> Sue R-F had a 2 year old child who was extremely picky. only

> ate

> goat yogurt,banana,meat and nut muffins. She had constipation but

> recovered with SCD and almost no other intervention (just a few

> sessions of Tomatis and a couple of hours a week of speech therapy).

> While this nut diet was not optimal,it did recover a child from

> autism.

>

> Another mother,ST, had 2 children,she started with the nut diet and

> got improvements for both children. After about half a year

> later,she

> went back to the intro diet and introducing foods gradually. She

> reported that she got EVEN better results after reintroducing the

> foods

> gradually.

>

> Jen Young reported that her child was only able to eat a few foods

> during his first months of SCD. He could not tolerate nuts during

> his

> first 3 months on SCD. After starting the goat yogurt,Jen was able

> to

> feed her child more foods and enable him to recover from Autism. Jen

> was only able to get results if she gave foods that were tolerated.

> If

> Jen had just followed the legal/illegal list,then her son would have

> made no progress.

>

> L is a brilliant man who is very talented in science. He has

> written that SCD,supplements, and enzymes have helped his autism

> spectrum issues. He

> has stated that he does better without any nuts,despite the fact

> that he

> has been doing SCD for over a year.

>

> The advantage of the Real SCD is that it allows the parent to design

> a

> diet that is custom made for that child and just right for each

> particular child. The Nut Diet is not optimal for a child who might

> have

> difficulties digesting nuts and other SCD legal foods during the

> first

> months( or with extreme cases,during the first year) of the diet.

>

>

> I have read on other lists the posts of parents who assert with

> great

> authority that SCD did not help their child's GI issues. In their

> post,they list the foods that they gave their child;there is always

> an

> advanced food on that list. I want to shout: " you cannot feed

> lentils to

> a child who has constipation,your kid's gut was not ready to digest

> this

> food and the undigested food fed the gut bugs. "

>

> I completely understand that it is hard for parents to do the real

> SCD,many children see other kids eating junk foods and feel

> deprived...some children are very picky.... I understand these

> difficulties and that is why we started a special list for children

> and

> SCD to help parents with these issues. What I ask of you is that you

> be

> fair to other parents when you are evaluating your child's outcome

> with

> our diet. If you cannot do the real SCD but are doing the nut diet

> and

> not getting results,then please explain it to other parents. It is

> not

> fair to discourage other parents from doing SCD if one did not do

> it

> correctly.

>

> Before reporting about your child's SCD experience on other autism

> lists, please make sure

> that you implemented the diet correctly. When I used to do SCD

> counseling for free some time ago (I no longer have the time to do

> that), I found out that some parents asserted that they were

> following

> the diet 100% and not getting results. After talking to me,the

> parents

> quickly became aware that they were not implementing SCD correctly.

> After the mistakes were corrected, the child progressed with SCD. I

> no

> longer have the time to do SCD counseling but there are excellent

> ways to transform failures into

> success with this wonderful diet.

>

> If you are not happy with your SCD results,then please seek the help

> of the list,websites,SCD pals and

> SCD counselors. It will be the best investment for your child :you

> will

> save lots of money because doing SCD correctly will shorten

> dramatically

> the amount of time that your child need to do ABA or other ASD

> interventions.

>

> Most parents of ASD children understand that a parent who

> implemented

> ABA,VB or RDI without the supervision of an expert might not get

> good

> results. ABA,VB and RDI are powerful tools for improving our

> children

> but they are complex and mistakes can easily be made by an untrained

> parent. We need to understand that this situation might also occur

> with

> SCD for children with extremely difficult GI systems.

>

> We have been very lucky that we have been able to help so many

> children

> without private counseling but some children did fall

> betweeen the cracks when their parents stopped SCD without getting

> private counseling. This is a tragedy because a few sessions of SCD

> counseling can usually fix the problem and are so much more

> economical

> than other ASD interventions.

>

> Please do not give up on this wonderful diet without seeking help

> from this list,SCD counselors or experienced parents!!

>

> All the best,Mimi

>

[Guest guest]

you are talking about issues that have been covered in other posts

you are not reading

its a lovely world where we just ask and get the answers isn't it?

i think am going to have to exit that world

saw too much of people abusing elaine gottshcalls sympathy by mothers

not reading aorund

> >

> > There is a diet that is pretending to be SCD and fooling many

> > parents.

> > Many parents think that they are doing SCD and are not aware that

> > they

> > are actually implementing the Nut Diet instead of SCD,confusing

the

> > Nut

> > Diet with the real SCD.

> >

> > Many parents begin SCD by replacing the breads

> > and cookies of other diets with nut flours They also feed their

> > children any food that is SCD legal without first going through

the

> > introductory diet and making sure that their child can tolerate

that

> > food. This is done because most parents think that the rules of

> > SCD

> > and GFCF are the same. When parents start out with GFCF,they are

> > allowed to use all the GFCF legal foods. It is important for

parents

> > to

> > realize that the rules for SCD are different. While the goal of

> > GFCF is

> > the elimination of foods that contain gluten and casein,the goal

of

> > SCD

> > is to avoid foods that cannot be digested. A certain food can be

OK

> > for

> > one

> > child but not for another. Also,a food can be difficult to digest

> > for a

> > child during

> > the first months on SCD but fine at a later time when more gut

> > healing

> > has happened.

> >

> > The important idea behind SCD is that " We must never forget that

> > what

> > the patient takes beyond his ability to digest does harm. "

> > Undigested

> > foods become great nourishment for the gut microorganisms that

have

> > an

> > excellent ability to digest carbohydrates. These parasites then

emit

> > toxins that destroy our children's gut and brains.

> >

> > Certain foods that are fine for advanced SCDers are not OK for

> > beginners

> > and might harm them. The most famous example is the nut flour.

Many

> > children cannot tolerate nut flours in the beginning stages of

the

> > diet.

> > It is advised to start out with the intro diet and gradually

> > introduce

> > new foods. The " stages section " on www.pecanbread provide

> > inspiration

> > but there are no hard rules

> > because our children are all different. The idea is to introduce

new

> > foods gradually and watch carefully for reactions.That is how you

> > implement the " Real SCD " . If you just feed your child any food

that

> > is

> > legal SCD food without taking into consideration that some foods

> > might

> > be difficult to digest during the first months then

> > you are doing the " Nut Diet " .

> >

> > As we see,there are two different ways to implement the legal SCD

> > food

> > list:the nut diet and the real SCD.

> >

> > Is the Nut Diet better than GFCF? Of course! Despite its

> > shortcomings,it

> > is a lot easier to digest than the starches that are allowed in

GFCF

> > and

> > other diets. I will give examples that might clarify this

confusion

> > and

> > show us that our children are unique and have different outcomes

> > with

> > the Nut Diet.

> >

> > Sue R-F had a 2 year old child who was extremely picky.

only

> > ate

> > goat yogurt,banana,meat and nut muffins. She had constipation

but

> > recovered with SCD and almost no other intervention (just a few

> > sessions of Tomatis and a couple of hours a week of speech

therapy).

> > While this nut diet was not optimal,it did recover a child from

> > autism.

> >

> > Another mother,ST, had 2 children,she started with the nut diet

and

> > got improvements for both children. After about half a year

> > later,she

> > went back to the intro diet and introducing foods gradually. She

> > reported that she got EVEN better results after reintroducing the

> > foods

> > gradually.

> >

> > Jen Young reported that her child was only able to eat a few

foods

> > during his first months of SCD. He could not tolerate nuts during

> > his

> > first 3 months on SCD. After starting the goat yogurt,Jen was

able

> > to

> > feed her child more foods and enable him to recover from Autism.

Jen

> > was only able to get results if she gave foods that were

tolerated.

> > If

> > Jen had just followed the legal/illegal list,then her son would

have

> > made no progress.

> >

> > L is a brilliant man who is very talented in science. He

has

> > written that SCD,supplements, and enzymes have helped his autism

> > spectrum issues. He

> > has stated that he does better without any nuts,despite the fact

> > that he

> > has been doing SCD for over a year.

> >

> > The advantage of the Real SCD is that it allows the parent to

design

> > a

> > diet that is custom made for that child and just right for each

> > particular child. The Nut Diet is not optimal for a child who

might

> > have

> > difficulties digesting nuts and other SCD legal foods during the

> > first

> > months( or with extreme cases,during the first year) of the

diet.

> >

> >

> > I have read on other lists the posts of parents who assert with

> > great

> > authority that SCD did not help their child's GI issues. In their

> > post,they list the foods that they gave their child;there is

always

> > an

> > advanced food on that list. I want to shout: " you cannot feed

> > lentils to

> > a child who has constipation,your kid's gut was not ready to

digest

> > this

> > food and the undigested food fed the gut bugs. "

> >

> > I completely understand that it is hard for parents to do the

real

> > SCD,many children see other kids eating junk foods and feel

> > deprived...some children are very picky.... I understand these

> > difficulties and that is why we started a special list for

children

> > and

> > SCD to help parents with these issues. What I ask of you is that

you

> > be

> > fair to other parents when you are evaluating your child's

outcome

> > with

> > our diet. If you cannot do the real SCD but are doing the nut

diet

> > and

> > not getting results,then please explain it to other parents. It

is

> > not

> > fair to discourage other parents from doing SCD if one did not

do

> > it

> > correctly.

> >

> > Before reporting about your child's SCD experience on other

autism

> > lists, please make sure

> > that you implemented the diet correctly. When I used to do SCD

> > counseling for free some time ago (I no longer have the time to

do

> > that), I found out that some parents asserted that they were

> > following

> > the diet 100% and not getting results. After talking to me,the

> > parents

> > quickly became aware that they were not implementing SCD

correctly.

> > After the mistakes were corrected, the child progressed with SCD.

I

> > no

> > longer have the time to do SCD counseling but there are excellent

> > ways to transform failures into

> > success with this wonderful diet.

> >

> > If you are not happy with your SCD results,then please seek the

help

> > of the list,websites,SCD pals and

> > SCD counselors. It will be the best investment for your

child :you

> > will

> > save lots of money because doing SCD correctly will shorten

> > dramatically

> > the amount of time that your child need to do ABA or other ASD

> > interventions.

> >

> > Most parents of ASD children understand that a parent who

> > implemented

> > ABA,VB or RDI without the supervision of an expert might not get

> > good

> > results. ABA,VB and RDI are powerful tools for improving our

> > children

> > but they are complex and mistakes can easily be made by an

untrained

> > parent. We need to understand that this situation might also

occur

> > with

> > SCD for children with extremely difficult GI systems.

> >

> > We have been very lucky that we have been able to help so many

> > children

> > without private counseling but some children did fall

> > betweeen the cracks when their parents stopped SCD without

getting

> > private counseling. This is a tragedy because a few sessions of

SCD

> > counseling can usually fix the problem and are so much more

> > economical

> > than other ASD interventions.

> >

> > Please do not give up on this wonderful diet without seeking help

> > from this list,SCD counselors or experienced parents!!

> >

> > All the best,Mimi

> >

>

[Guest guest]

So beware of your rationale that they don't have GI issues. SCD is

not fun, but worth it as far as I am concern.

>

> Hope this helps, Antoinette and (celiac/add/asd) parents to

Kiki-2 celiac/asd celiac/adhd and Bubbles- hyperekplexia All SCD

2/06

>

>

[Guest guest]

>

> Janice, in a few words, give it a couple of months. Keep a journal

of their

> behaviors and see if there are any positive gains.

Thanks, Kelli. The journal is a great idea. I should have been doing

this for the last two years. I've been keeping track of ATEC

checklist scores to monitor progress and making monthly notes, but the

daily log is probably best.

> If they aren't having reactions (mushy stools, diarrhea,

> gas, bloating, discolored stools, undigested food in stools, etc),

then I

> don't see any reason why not to feed them the nut flours, raw

fruits, etc.

>

Excellent! That is the answer I was hoping for. Thanks.

Janice