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Sandy

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Hi Glenda,

I'm doing soso. I've got a cold and hoping it does not turn into

pneumonia.

How are you doing? Is Shae doing better in school? Tell her the girls said hello.

My computer has been working for a couple of days now so I'm trying to catch up.

Love Ya,

Sandy

----- Original Message -----

Sandy,

How are you doing? It is so good to see a post from you. Hope all is well with you. I sure miss your posts. Tell the girls Hi from Shae.

Lots of Love

Glenda

____________________________________________________ IncrediMail - Email has finally evolved - Click Here DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Sandy

Sorry to hear that you aren't feeling well! I am always a day short. Hope got good news!

Lots of Love

Glenda

Hi ,

I'm feeling like more of a wet noodle today. LOL

Saw my Rheumy today and was very disappointed. I've been trying to lower my Pred. dose and managed to get down to 17 mg. without having breathing problems.

I go to the Rheumy and my ear starts flaring and my hands are swollen from Arthritis, so yep, have to increase the Pred again

and he raised the Cytoxan too. Feeling a bit discouraged...

Keep your fingers crossed for ....She gets her latest MRI

results tomorrow. Thanks.

Love Ya,

Sandy

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Sandy

Sending good thoughts and prayers your way! Gosh you don't need to get sick again. No Shae isn't doing any better in school but we are working on finding out the problem. So good to see posts from you. I will cross my fingers and hope that the computer keeps working.

Lots of Love

Glenda

Hi Glenda,

I'm doing soso. I've got a cold and hoping it does not turn into

pneumonia.

How are you doing? Is Shae doing better in school? Tell her the girls said hello.

My computer has been working for a couple of days now so I'm trying to catch up.

Love Ya,

Sandy

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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  • 3 weeks later...

Hi Sandy,

Will let you know when is back in the territory! Sounds like we are

going to have some great weather with you for the next couple of days! Tell

Lou and the girls hello from all of us!

Patty B.

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Sandy,

That was too weird there has to be something to it. Doesn't there.LOL Good to see you at chat last night. Hope you get the computer stuff worked out. I don't know what I would do if I didn't see a post from you once in awhile.

Lots of love

Glenda

Glenda,

I took the survey and your right, it was scary. It hit the nail right on the head so to speak. It even told me I was not doing well healthwise at this time.

Love Ya,

Sandy

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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Glenda,

My husband was talking about ordering a Dell again today.

My son came over and got my sound card to work yesterday but

the sound is gone again.

Your Rheumy sounds like a great doctor but sounds like you might want to look for a new PCP.

Love Ya,

Sandy

----- Original Message -----

Sandy,

That was too weird there has to be something to it. Doesn't there.LOL Good to see you at chat last night. Hope you get the computer stuff worked out. I don't know what I would do if I didn't see a post from you once in awhile.

Lots of love

Glenda

Glenda,

I took the survey and your right, it was scary. It hit the nail right on the head so to speak. It even told me I was not doing well healthwise at this time.

Love Ya,

Sandy

____________________________________________________ IncrediMail - Email has finally evolved - Click Here DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Sandy,

I will be sending good thoughts your way. Don't want to lose you here on the group. Need that new computer that is for sure! Tell him I highly recommend them!LOL I sure like mine. Yah my Rheumy is terrific now if I could just get my PCP straightened out I would have it made.

Take care

Lots of Love

Glenda

Glenda,

My husband was talking about ordering a Dell again today.

My son came over and got my sound card to work yesterday but

the sound is gone again.

Your Rheumy sounds like a great doctor but sounds like you might want to look for a new PCP.

Love Ya,

Sandy

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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Hi ,

I'm doing okay. I have not been on the Computer for a couple of days. We had a Birthday Party for one of my daughters today. Tomorrow is my Grandson's Birthday Party and tomorrow is Confirmation practice for my youngest, . She makes her Confirmation Monday evening, and we are having a party for her next Saturday. Plus my Husbands relatives are coming to town for a 4 day weekend and they want to stay with us. And I have appointments with 3 of my specialists this week.

I don't know if I'm coming or going. LOL

How are you doing? I am so behind in my mail. Do you have a date for your surgery?

Love,

Sandy

Sandy,Have not heard from you or seen a post in a while. How are you doing?DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Oh , yes our prayers are answered. Sandy, it's so good to have you

back. Thank for posting for us. She is such a sweetie. Tell her Hi for

me. I'm really sorry I never got to go swimming with her in Okieland.

You take care of yourself and PLEASE stay out of hospitals. Know that you

are always in my thoughts and prayers.

hugs

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  • 1 month later...
Guest guest

Sandy, Gosh I'm so sorry. Gosh this is all so frustrating. You must want to

go after a jugular huh? They told my sister the same thing about the

Temporal Arteritis. My mom had that. They told my sister she was too young,

but it was a VERY serious disease. Have you talked to Carmela yet? I know

she had the biopsy done and she is WAY young. LOL

I hate that you have to go through this. You know I'm thinking of you girl

and sending lots of hugs.

Clauida

My sight is the same. Saw a new eye doc yesterday and he didn't tell me

anymore than the last one.

I was very dissappointed. The doc told me I did not need a Temporal

biopsy. He said I was to young to have Temporal Arteritis. My husband asked

him why I have so much pain in my eye & temple and the Doc said people with

RP have lots of aches and pain.

I see my Rheumy next week so I'll see what he wants to do.

Sandy

>>

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Guest guest

Hi ,

Yes, I am frustrated! I get so tired of docs that don't know "squat"

about RP or autoimmune diseases in general.

I tried to send a post to Carmella but it came back undeliverable.

Did your sister end up having the biopsy? Was your Mom's treatment a success?

And thanks for the hugs....

Love Ya,

Sandy

Sandy, Gosh I'm so sorry. Gosh this is all so frustrating. You must want to go after a jugular huh? They told my sister the same thing about the Temporal Arteritis. My mom had that. They told my sister she was too young, but it was a VERY serious disease. Have you talked to Carmela yet? I know she had the biopsy done and she is WAY young. LOL I hate that you have to go through this. You know I'm thinking of you girl and sending lots of hugs. Clauida My sight is the same. Saw a new eye doc yesterday and he didn't tell me anymore than the last one. I was very dissappointed. The doc told me I did not need a Temporal biopsy. He said I was to young to have Temporal Arteritis. My husband asked him why I have so much pain in my eye & temple and the Doc said people with RP have lots of aches and pain. I see my Rheumy next week so I'll see what he wants to do. Sandy >>DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Guest guest

Hi Glenda,

I was mighty tempted to call him a few choice names. LOLOL

I thought better of it because he will be treating me for the Glaucoma and Cataracts.

Hugs,

Sandy

Sandy

Sorry to hear about your frustration! Darn Dr.'s anyway! Don't you just want to smack them sometimes! Sure we have lots of pains but none of them are normal and there are other reasons besides RP for aches and pains.

Take care!

Lots of love

Glenda

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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  • 1 year later...

Mark,

I took no offense to anything in the chat room. My mom is very ill and

my thoughts and time are with her right now. I will join you all in the

chat room when things are better. Thanks for writing.

Sandy

Mark E. Armstrong wrote:

>Hello Sandy.....Hope you didn't take offense to the last time we

>talked at the chat room..We all have different opinions on things...I

>enjoyed the chat very much...Hope you will join us again on Wed.

>

>I hope this finds you and yours well

>

>Mark

>

>

>

>

>

>

>

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I am sorry to hear about your mom.....I wish I could do something to

help...Mark

Re: Sandy

> Mark,

>

> I took no offense to anything in the chat room. My mom is very ill and

> my thoughts and time are with her right now. I will join you all in the

> chat room when things are better. Thanks for writing.

>

> Sandy

>

> Mark E. Armstrong wrote:

>

> >Hello Sandy.....Hope you didn't take offense to the last time we

> >talked at the chat room..We all have different opinions on things...I

> >enjoyed the chat very much...Hope you will join us again on Wed.

> >

> >I hope this finds you and yours well

> >

> >Mark

> >

> >

> >

> >

> >

> >

> >

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