Signing off...possibly!!

[Guest guest]

Hello all my friends!

I may not be able to post for a few days while I'm away...not

because I won't have access to the net but because I may not have

time, depending on how I am feeling. If I'm well enough, we'll

probably be out most of the time. I wish everyone a good week and

will be thinking about you!

Chrissy, I hope you solve the transport issue. Have I missed when

your appointment is? I do feel for you with the feeding tube and

hope it means your surgery will be sooner rather than later if you

have to wait for the operation before being able to eat normally

again. I will be hoping and praying that the pain will not be too

bad and the discomfort of the peg diminishes even more than it

already has.

I'll wear nice velvet trousers and tapestry/velvet jacket for the

opera. Don't know whether Jim will ear tux or just a suit. People

wear anything they like for the theatre and opera to-day but I must

admit quite a few people dress very formally for the Royal Opera

House if my memory serves me right....few years since I was there.

You sound fantastically talented.....singing as well as writing! I

would absolutely LOVE to be able to sing. Maybe you'll get there

yet, Chrissy. You're just the one to be determined enough to do it!

My pain has disappeared to-day but, as we know, that means nothing

for tomorrow! I'm being extra careful about food but even that

doesn't always guarantee anything with this disease.

I'm not complaining because I've had such a lot of pain-free time

over the last few months; I have to accept the pain that comes and

so many are going through worse patches just now. It may be that I'm

moving into a more difficult period again or it may just be a

few " iffy " days. Yesterday was the worst for a while. I don't know

why I'm so disappointed when that happens because I know very well

the disease isn't going to go away. I suppose it's that " urban myth "

of burn-out without pain. Since my CP is so advanced, in fact end-

stage in terms of digestive function, I was hoping against hope that

I'd reached that no-pain point. Hasn't quite happened yet but I can

hope!

Take care and have a good week,

Fliss