That Time Again!

August 13, 2003

Just thought I'd drop a note to all my listmates. Its that time again, only

was be starting highschool this year. I have so many emotions. She's

very excited about it. I think middle school really toughened her up. She had

a horrible experience in middle school. Most of the three years she spent at

home on home-hospital tutoring. The funny thing is, she didn't go to the

hospital once! I know in my heart of hearts it was because we kept her home

most of the time. But my husband and I have made a hard decision. We want her

to live! And by that I don't mean just live, I mean live life! I want so much

for her, but I know we'll be back on that see-saw again when she starts to go

back and really pushes herself. It's tough.

I know there are many parents out there who have had this to deal with. Do you

keep your child in a " bubble " or let them live life to its fullest. I don't

know about you guys, but I want her to experience everything. Fall in love, get

those jitters in her stomach, giggle and laugh with her girl friends, ect!

There's so much.

I guess why I'm writing this is to have someone tell me its going to be okay.

My husband's reaction was " well, let's keep her home " , but we can't do that,

what kind of life is that. She spent most of the last three years at home alone

in her room and its amazing that she's as wonderful as she is and so full of

life and love. I don't want that to spoil. Does all this rambling make sense.

Oh well, back to the grind....we have the 504 meeting with her teachers and some

adjustmens to make in her schedule, but they have decided to let her self

medicate, which is great and wear bandannas (she lost her hair this past spring

becase of an autoimmune deficiency (sp?))! Anyway, they've been great so far,

we'll see!

G.

mom of 15 w/cf and all that goes along with it!

mom of Matty 10 and bobby 7 wo/CF

August 13, 2003

It sounds like you have all under control & she has the school

cooperating with her too. I am so happy to hear that it might all work

out well . I really hope it does. School in high school grades is

already a challenge . & to have any other things on the way, really is

tough. It does sound like your doing all the right moves ..Congrats

....good luck . I send all my special wishes your way.

LOVE & hugs,

grandmomBEV

That Time Again!

Just thought I'd drop a note to all my listmates. Its that time again,

only was be starting highschool this year. I have so many

emotions. She's very excited about it. I think middle school really

toughened her up. She had a horrible experience in middle school. Most

of the three years she spent at home on home-hospital tutoring. The

funny thing is, she didn't go to the hospital once! I know in my heart

of hearts it was because we kept her home most of the time. But my

husband and I have made a hard decision. We want her to live! And by

that I don't mean just live, I mean live life! I want so much for her,

but I know we'll be back on that see-saw again when she starts to go

back and really pushes herself. It's tough. I know there are many

parents out there who have had this to deal with. Do you keep your

child in a " bubble " or let them live life to its fullest. I don't know

about you guys, but I want her to experience everything. Fall in love,

get those jitters in her stomach, giggle and laugh with her girl

friends, ect! There's so much. I guess why I'm writing this is to have

someone tell me its going to be okay. My husband's reaction was " well,

let's keep her home " , but we can't do that, what kind of life is that.

She spent most of the last three years at home alone in her room and its

amazing that she's as wonderful as she is and so full of life and love.

I don't want that to spoil. Does all this rambling make sense.

Oh well, back to the grind....we have the 504 meeting with her teachers

and some adjustmens to make in her schedule, but they have decided to

let her self medicate, which is great and wear bandannas (she lost her

hair this past spring becase of an autoimmune deficiency (sp?))!

Anyway, they've been great so far, we'll see! G.

mom of 15 w/cf and all that goes along with it!

mom of Matty 10 and bobby 7 wo/CF

August 13, 2003

Your daughter sounds like a very strong young lady. I'm sure that

she has great friends. I hope that she enjoys being back in school.

You are doing what you believe is best for your daughter and that's

all that you can do.

Good Luck,

Gale

August 13, 2003

,

It is sort of refreshing to know that someone else goes through the same

emotions that you go through. I can really relate.

My is a senior in High School this year. Last year was a bad year

for us too! had more absence from school last year than she has

ever had. She also had to give up some of her activities and that was tough

on her emotionally.

She is very excited about being a Senior. She has enough credits to

graduate at mid-term. She is also going to be taking a college class this

first semester two nights a week. I can't hardly believe that my baby is so

grown up. I know from our experiences that it is very important even with

all the risks involved that she be as normal a child as possible. She just

requires more sleep, takes allot of meds and has therapies that takes 2hrs

out of her day. also has dance one night a week and Drill team at

school, two mornings and two evenings. She knows that her schedule will be

very busy but she also knows that she must get plenty of rest, eat properly,

and do her treatments. I know this really is harder on you and your husband

than it is on your daughter. Plus the fact that she is your oldest daughter

makes it even harder. The oldest has special issues of it's own whether you

are blessed with a disease or not.

My thoughts and prayers are with you! The most important thing is that your

daughter is happy and that these trials and tribulations are making great

memories. I am a firm believer in that things happen for a reason and I

know God gave us to enrich our lives and make us better people.

Hugs to All

Tina Woosley, mother of Steph, yo17 wcf

That Time Again!

Just thought I'd drop a note to all my listmates. Its that time again, only

was be starting highschool this year. I have so many emotions.

She's very excited about it. I think middle school really toughened her up.

She had a horrible experience in middle school. Most of the three years she

spent at home on home-hospital tutoring. The funny thing is, she didn't go

to the hospital once! I know in my heart of hearts it was because we kept

her home most of the time. But my husband and I have made a hard decision.

We want her to live! And by that I don't mean just live, I mean live life!

I want so much for her, but I know we'll be back on that see-saw again when

she starts to go back and really pushes herself. It's tough.

I know there are many parents out there who have had this to deal with. Do

you keep your child in a " bubble " or let them live life to its fullest. I

don't know about you guys, but I want her to experience everything. Fall in

love, get those jitters in her stomach, giggle and laugh with her girl

friends, ect! There's so much.

I guess why I'm writing this is to have someone tell me its going to be

okay. My husband's reaction was " well, let's keep her home " , but we can't

do that, what kind of life is that. She spent most of the last three years

at home alone in her room and its amazing that she's as wonderful as she is

and so full of life and love. I don't want that to spoil. Does all this

rambling make sense.

Oh well, back to the grind....we have the 504 meeting with her teachers and

some adjustmens to make in her schedule, but they have decided to let her

self medicate, which is great and wear bandannas (she lost her hair this

past spring becase of an autoimmune deficiency (sp?))! Anyway, they've been

great so far, we'll see!

G.

mom of 15 w/cf and all that goes along with it!

mom of Matty 10 and bobby 7 wo/CF

August 13, 2003

n,

Your right, I should be grateful that she is able to attend, and believe me,

no matter what I wrote before, I am.

G.

mom of samantha 15 w/cf

mom of matty 10 and bobby 7 w no cf

That Time Again!

>

> Just thought I'd drop a note to all my listmates. Its that time again,

only

> was be starting highschool this year. I have so many emotions.

> She's very excited about it. I think middle school really toughened her

up.

> She had a horrible experience in middle school. Most of the three years

she

> spent at home on home-hospital tutoring. The funny thing is, she didn't

go

> to the hospital once! I know in my heart of hearts it was because we kept

> her home most of the time. But my husband and I have made a hard

decision.

> We want her to live! And by that I don't mean just live, I mean live

life!

> I want so much for her, but I know we'll be back on that see-saw again

when

> she starts to go back and really pushes herself. It's tough.

> I know there are many parents out there who have had this to deal with.

Do

> you keep your child in a " bubble " or let them live life to its fullest. I

> don't know about you guys, but I want her to experience everything. Fall

in

> love, get those jitters in her stomach, giggle and laugh with her girl

> friends, ect! There's so much.

> I guess why I'm writing this is to have someone tell me its going to be

> okay. My husband's reaction was " well, let's keep her home " , but we can't

> do that, what kind of life is that. She spent most of the last three

years

> at home alone in her room and its amazing that she's as wonderful as she

is

> and so full of life and love. I don't want that to spoil. Does all this

> rambling make sense.

> Oh well, back to the grind....we have the 504 meeting with her teachers

and

> some adjustmens to make in her schedule, but they have decided to let her

> self medicate, which is great and wear bandannas (she lost her hair this

> past spring becase of an autoimmune deficiency (sp?))! Anyway, they've

been

> great so far, we'll see!

> G.

> mom of 15 w/cf and all that goes along with it!

> mom of Matty 10 and bobby 7 wo/CF

>

August 13, 2003

Tina,

thank you. Your right it does make you feel so much better when you know

someone has the slightest inkling of what your going through. I wish the

best for your daughter in her Senior year, how cool is that!!!! The rest

thing is very true, and knows she needs that too. Her goal this

year was to be on the national honor society. But they require that the

students be involved in 3 extra curricular activities (sports, ect.). That

would wear her down very fast if she were to do that. So we're looking for

ways around that. I heard community service, ect may constitute for that,

like outside interest. She loves her art and is in many art shows around

here and also has done a CF study for hopkins. Maybe those will help.

We'll see, but its so much to put on these young adults. It amazes me, even

for kids without CF.

G

mom of 15 w/cf

That Time Again!

>

> Just thought I'd drop a note to all my listmates. Its that time again,

only

> was be starting highschool this year. I have so many emotions.

> She's very excited about it. I think middle school really toughened her

up.

> She had a horrible experience in middle school. Most of the three years

she

> spent at home on home-hospital tutoring. The funny thing is, she didn't

go

> to the hospital once! I know in my heart of hearts it was because we kept

> her home most of the time. But my husband and I have made a hard

decision.

> We want her to live! And by that I don't mean just live, I mean live

life!

> I want so much for her, but I know we'll be back on that see-saw again

when

> she starts to go back and really pushes herself. It's tough.

> I know there are many parents out there who have had this to deal with.

Do

> you keep your child in a " bubble " or let them live life to its fullest. I

> don't know about you guys, but I want her to experience everything. Fall

in

> love, get those jitters in her stomach, giggle and laugh with her girl

> friends, ect! There's so much.

> I guess why I'm writing this is to have someone tell me its going to be

> okay. My husband's reaction was " well, let's keep her home " , but we can't

> do that, what kind of life is that. She spent most of the last three

years

> at home alone in her room and its amazing that she's as wonderful as she

is

> and so full of life and love. I don't want that to spoil. Does all this

> rambling make sense.

> Oh well, back to the grind....we have the 504 meeting with her teachers

and

> some adjustmens to make in her schedule, but they have decided to let her

> self medicate, which is great and wear bandannas (she lost her hair this

> past spring becase of an autoimmune deficiency (sp?))! Anyway, they've

been

> great so far, we'll see!

> G.

> mom of 15 w/cf and all that goes along with it!

> mom of Matty 10 and bobby 7 wo/CF

>

August 14, 2003

,

My thoughts and best wishes are with you and . Just take one day at

a time. It will work out just fine.

Tina W. mother of Steph wcf

Re: That Time Again!