Re: New to the SCD

[Guest guest]

Welcome to the group ,

> Our 4 year old son has been diagnosed with ASD for just over a

year

> now, and on a GF/CF/Soy free diet for 6 months. His ASD was late

> onset, but his digestive issues have been apparent since he was

> 2.5. Most particularly, he has had an itchy bottom since then,

and

> most recently bowel movements which are all over the map. Also,

in

> the last 9 months, he has begun a host of stimming - eye

deviation,

> squealing, jumping incessantly, needing pressure applied to his

> neck, face and eyes, and on and on. We have not seen much, if

any,

> improvement with the GF/CF diet, so our dev. pediatrition

> recommended the SCD. He has been on the diet since yesterday, and

I

> was actually enjoying it because cheese, butter, and homemade

yogurt

> are legal. I was enjoying it, however, until I read on you site

> that the yogurt should be made from goat's milk - I just made a

BIG

> bowl of cow's milk yogurt in anticipation of making smooties and

> bread tomorrow. I see now that I need to slow down. Is it a no-

no

> to try the cow's milk yogurt?

No, you can use cow yogurt. Some use goat dairy (legal cheese and

homemade yogurt) if they have had trouble with dairy in the past.

If you try the cow dairy and he has a reaction, he may be fine with

goat dairy. It has smaller milk proteins than cow dairy and is

easier to digest for damaged tummies.

It would be a good idea to start with a tiny amount of yogurt if he

hasn't eaten yogurt or used probiotics in the past. Otherwise he

may go through massive microbial " die off " (of the harmful yeast and

bactria) which sometimes can't be confused with not being able to

tolerate dairy.

> Also, I wanted to know about convenience food items out there.

> While we are doing the homemade thing, it would be nice to know if

> there are legal foods out there. Namely, Applegate Farms Beef

> Hotdogs. I did not notice any suspect ingredients, and also

called

> the company and was told it is fine. I'd still like confirmation

> from someone that it's okay.

The Beef hot dog I looked at contained " onion powder " which would be

illegal. Is this the one you mean? I also believe that the

applegate were adding cane juice (sugar) to some products and it was

on some labels, not on others. Basically a whole lot of confusion

for the consumer - especially those trying to avoid sugar.

> We were giving him the Applegate Farms

> Sunday Bacon, but it contains sugar so we aren't giving him that.

I

> did notice that someone else posted that they tried that bacon, so

> I'm confused about its legality.

The Applegate Sunday Bacon is illegal because it contains evaporated

cane juice (ie. sugar). Gwaltney's makes a legal sugar free bacon.

You may find more brand names using the " search " function at

http://health.groups.yahoo.com/group/pecanbread/messages

> Also, in making the ketchup. Is it okay to use tomato juice from

> concentrate? I haven't been able to find it otherwise.

Tomato juice from concentrate (salt is okay as an ingredient) is

legal.

> Also, my son's GI doctor prescribed Prevacid a few weeks ago.

> According to the ingredients list it contains confectioners sugar,

a

> no-no on the SCD. Has anyone faced this dilemma before???

You could ask if there is a suitable version of the prevacid that

doesn't have the confectioner's sugar or if it can be compounded

without SCD illegals. If you cannot get it without the Confect.

sugar you could use it anyway especially if it is an essential

medicine. Elaine always said that sometimes when meds are required

they may have illegals, but if we need the meds to go ahead and use

them.

> Finally, has anyone had a child with a near constant itchy

bottom? We have had multiple yeast tests run and all return within

normal

> limits.

I have had some yeast tests come back negative when my yeast was

rampant. I don't always trust tests.

If you believe he has yeast you might want to read " Yeast and SCD "

at http://health.groups.yahoo.com/group/pecanbread/files/

Sheila, SCD 2/01, UC 22yrs

mom of and

[Guest guest]

Hi, ,

I have some answers for you within your post.

>

He has been on the diet since yesterday, - I just made a BIG

> bowl of cow's milk yogurt in anticipation of making smooties and

> bread tomorrow. I see now that I need to slow down. Is it a no-

no

> to try the cow's milk yogurt?

Your child has come from a GF/CF diet. There is a reason you had

him be CF--the proteins were affecting him because of his leaky

gut. He needs to do some healing on SCD before you give any yogurt

a try. And then it would be best to use the goat yogurt. The goat

casein is somewhat different than cow casein and is more easily

tolerated by many.

It doesn't sound like you are doing the intro diet. The intro diet

is explained in the book Breaking the Vicious Cycle, which is

essential for you to read. It is also explained on the

pecanbread.com website where you can also read about how the diet is

approached a bit differently for kids on the autism spectrum who

have been GF/CF--mainly keeping dairy out initially.

Some do not do the intro diet for various reasons (picky eaters,

mainly) but most find that starting with the intro and then adding

foods slowly one at a time produces better results.

Namely, Applegate Farms Beef

> Hotdogs.

Many use these. Others avoid any prepared foods. Hot dogs would

not be on the intro diet. When ready for them, make sure they are

the new formulation without sweetners.

We were giving him the Applegate Farms

> Sunday Bacon, but it contains sugar so we aren't giving him that.

I

> did notice that someone else posted that they tried that bacon, so

> I'm confused about its legality.

In the book BTVC Elaine says you can have regular bacon (with sugar)

once a week. Many, however, prefer to find a bacon without sugar.

> Also, in making the ketchup. Is it okay to use tomato juice from

> concentrate? I haven't been able to find it otherwise.

's tomato juice has been determined to be legal, but all the

's around me is from concentrate. I'd like the concentrate

question answered, too.

> Also, my son's GI doctor prescribed Prevacid a few weeks ago.

> According to the ingredients list it contains confectioners sugar,

a

> no-no on the SCD. Has anyone faced this dilemma before???

Medications can be essential and sometimes we have to be give them

even though they are illegal. However, you can have it compounded

at what is called a compounding pharmacy. They can make a version

without illegals.

> Finally, has anyone had a child with a near constant itchy

bottom?

> We have had multiple yeast tests run and all return within normal

> limits.

A recent post said that the OAT test from Great Plains Lab was

better at detecting yeast than regular tests. Have you had this

test done?

Best wishes as you start the diet,

, mom to , age 10, ASD, SCD since 4-23-04

[Guest guest]

Thank you so much, Sheila.

Re: New to the SCD

Welcome to the group ,

> Our 4 year old son has been diagnosed with ASD for just over a

year

> now, and on a GF/CF/Soy free diet for 6 months. His ASD was late

> onset, but his digestive issues have been apparent since he was

> 2.5. Most particularly, he has had an itchy bottom since then,

and

> most recently bowel movements which are all over the map. Also,

in

> the last 9 months, he has begun a host of stimming - eye

deviation,

> squealing, jumping incessantly, needing pressure applied to his

> neck, face and eyes, and on and on. We have not seen much, if

any,

> improvement with the GF/CF diet, so our dev. pediatrition

> recommended the SCD. He has been on the diet since yesterday, and

I

> was actually enjoying it because cheese, butter, and homemade

yogurt

> are legal. I was enjoying it, however, until I read on you site

> that the yogurt should be made from goat's milk - I just made a

BIG

> bowl of cow's milk yogurt in anticipation of making smooties and

> bread tomorrow. I see now that I need to slow down. Is it a no-

no

> to try the cow's milk yogurt?

No, you can use cow yogurt. Some use goat dairy (legal cheese and

homemade yogurt) if they have had trouble with dairy in the past.

If you try the cow dairy and he has a reaction, he may be fine with

goat dairy. It has smaller milk proteins than cow dairy and is

easier to digest for damaged tummies.

It would be a good idea to start with a tiny amount of yogurt if he

hasn't eaten yogurt or used probiotics in the past. Otherwise he

may go through massive microbial " die off " (of the harmful yeast and

bactria) which sometimes can't be confused with not being able to

tolerate dairy.

> Also, I wanted to know about convenience food items out there.

> While we are doing the homemade thing, it would be nice to know if

> there are legal foods out there. Namely, Applegate Farms Beef

> Hotdogs. I did not notice any suspect ingredients, and also

called

> the company and was told it is fine. I'd still like confirmation

> from someone that it's okay.

The Beef hot dog I looked at contained " onion powder " which would be

illegal. Is this the one you mean? I also believe that the

applegate were adding cane juice (sugar) to some products and it was

on some labels, not on others. Basically a whole lot of confusion

for the consumer - especially those trying to avoid sugar.

> We were giving him the Applegate Farms

> Sunday Bacon, but it contains sugar so we aren't giving him that.

I

> did notice that someone else posted that they tried that bacon, so

> I'm confused about its legality.

The Applegate Sunday Bacon is illegal because it contains evaporated

cane juice (ie. sugar). Gwaltney's makes a legal sugar free bacon.

You may find more brand names using the " search " function at

http://health.groups.yahoo.com/group/pecanbread/messages

> Also, in making the ketchup. Is it okay to use tomato juice from

> concentrate? I haven't been able to find it otherwise.

Tomato juice from concentrate (salt is okay as an ingredient) is

legal.

> Also, my son's GI doctor prescribed Prevacid a few weeks ago.

> According to the ingredients list it contains confectioners sugar,

a

> no-no on the SCD. Has anyone faced this dilemma before???

You could ask if there is a suitable version of the prevacid that

doesn't have the confectioner's sugar or if it can be compounded

without SCD illegals. If you cannot get it without the Confect.

sugar you could use it anyway especially if it is an essential

medicine. Elaine always said that sometimes when meds are required

they may have illegals, but if we need the meds to go ahead and use

them.

> Finally, has anyone had a child with a near constant itchy

bottom? We have had multiple yeast tests run and all return within

normal

> limits.

I have had some yeast tests come back negative when my yeast was

rampant. I don't always trust tests.

If you believe he has yeast you might want to read " Yeast and SCD "

at http://health.groups.yahoo.com/group/pecanbread/files/

Sheila, SCD 2/01, UC 22yrs

mom of and

[Guest guest]

I see that some of my answers to conflict with Sheila's. I'm

not sure why that is; I thought I knew what I was talking about, but

apparently not. Please ignore me, and sorry for any confusion.

, mom to

[Guest guest]

Thank you, , for all of your information. We did use the Great Plains Lab

for an OAT test that it, too, returned within normal limits.

I do have the Breaking the Vicious Cycle book, but in my rush to get started, I

somehow missed the intro diet information. Really, I was excited about 3

things: cheese, butter and yogurt. What doesn't taste better with those??? So,

I'll have to scale back I suppose. I'll check the book.

Thanks again for your help.

Mom of Jack, 4, ASD, SCD newbie

Re: New to the SCD

Hi, ,

I have some answers for you within your post.

>

He has been on the diet since yesterday, - I just made a BIG

> bowl of cow's milk yogurt in anticipation of making smooties and

> bread tomorrow. I see now that I need to slow down. Is it a no-

no

> to try the cow's milk yogurt?

Your child has come from a GF/CF diet. There is a reason you had

him be CF--the proteins were affecting him because of his leaky

gut. He needs to do some healing on SCD before you give any yogurt

a try. And then it would be best to use the goat yogurt. The goat

casein is somewhat different than cow casein and is more easily

tolerated by many.

It doesn't sound like you are doing the intro diet. The intro diet

is explained in the book Breaking the Vicious Cycle, which is

essential for you to read. It is also explained on the

pecanbread.com website where you can also read about how the diet is

approached a bit differently for kids on the autism spectrum who

have been GF/CF--mainly keeping dairy out initially.

Some do not do the intro diet for various reasons (picky eaters,

mainly) but most find that starting with the intro and then adding

foods slowly one at a time produces better results.

Namely, Applegate Farms Beef

> Hotdogs.

Many use these. Others avoid any prepared foods. Hot dogs would

not be on the intro diet. When ready for them, make sure they are

the new formulation without sweetners.

We were giving him the Applegate Farms

> Sunday Bacon, but it contains sugar so we aren't giving him that.

I

> did notice that someone else posted that they tried that bacon, so

> I'm confused about its legality.

In the book BTVC Elaine says you can have regular bacon (with sugar)

once a week. Many, however, prefer to find a bacon without sugar.

> Also, in making the ketchup. Is it okay to use tomato juice from

> concentrate? I haven't been able to find it otherwise.

's tomato juice has been determined to be legal, but all the

's around me is from concentrate. I'd like the concentrate

question answered, too.

> Also, my son's GI doctor prescribed Prevacid a few weeks ago.

> According to the ingredients list it contains confectioners sugar,

a

> no-no on the SCD. Has anyone faced this dilemma before???

Medications can be essential and sometimes we have to be give them

even though they are illegal. However, you can have it compounded

at what is called a compounding pharmacy. They can make a version

without illegals.

> Finally, has anyone had a child with a near constant itchy

bottom?

> We have had multiple yeast tests run and all return within normal

> limits.

A recent post said that the OAT test from Great Plains Lab was

better at detecting yeast than regular tests. Have you had this

test done?

Best wishes as you start the diet,

, mom to , age 10, ASD, SCD since 4-23-04

[Guest guest]

Hi ,

I think the only place that had different answers was about the hot

dogs. The hot dogs she asked about had onion powder listed on their

website. It is good to check for sweeteners but you also have to be

aware of other illegals. The onion powder would be illegal because of

SCD illegal free flow agents (flour etc.). Other problems with using

commercial products like hot dogs with multiple ingredients

(especially products that often have illegals) 1. companies will

change the formulation and people keep using them forgetting to check

the label each time or the company continues to use the old label

(this has happened a few times to people on lists over the years) or

2.the company will change it's suppliers so you end up with what might

be legal onion powder (as an example) for a while and when they switch

to a new supplier of onion powder it contains illegals. Since the

label still says onion powder they don't change it.

One way around this is to have a local butcher make up hot dogs for

you or to make your own. Marilyn's great hot dog recipe is in the

archives (it will be part of her new cookbook, hint, hint, nudge,

nudge say no more... how's that going Marilyn?)

http://health.groups.yahoo.com/group/pecanbread/message/52959

Your bacon answer was more complete than mine. Elaine did allow for

bacon with sugar once a week if cooked crisply. I was thinking of

those (like myself who love bacon and want it more often - my stomach

is now grumbling!) those people would want a bacon with no sugar. I

was also trying to clarify that the evaporated cane juice was just a

fancy name for an illegal.

your answers were good, please don't stop answering posts.

Sheila, SCD 2/01, UC 22yrs

mom of and

> I see that some of my answers to conflict with Sheila's. I'm

> not sure why that is; I thought I knew what I was talking about, but

> apparently not. Please ignore me, and sorry for any confusion.

> , mom to

>