Re: Your post hurt my feelings.

June 5, 2006

Good for you for saying something! That reply was offensive and I am sure

not in keeping with the intentions of this yahoo group which is for support.

_____

From: pecanbread [mailto:pecanbread ] On

Behalf Of Janice Crabtree

Sent: Monday, June 05, 2006 11:12 AM

To: pecanbread

Subject: Your post hurt my feelings.

Since March 15, 2004 I have spent no less than two hours per day

" reading around " . I try to read at least one page of posts from over

twenty lists each night on a wide range of topics pertaining to my two

sons' autism. Topics include basic biomed, advanced biomed,

ABA/discrete trial, alternative medicine, biofeedback, LDN, Valtrex

and B12, alternative diets, political action related to vaccine

issues, NVICC, autism advocacy, and more. There are several groups

whose posts I read every night- every one of them- and offer help when

I can.

The requirement for joining this group is reading the book BTVC and I

have read it once and have tried to find answers to my questions in it

before turning to this list. If you don't feel like answering a

question on any list, you can simply not respond. It is not necessary

to insinuate someone is a free-loader for asking a question that you

feel is too basic or already sufficiently covered in past posts. I

could not possibly read every post on this site every night as well as

all of the posts on all of the lists to which I subscribe. I am as

desperate and answer-seeking as any mother on this list as I have TWO

toddlers with exceptional needs.

Pardon me for irritating you with my question.

And yes, it is a lovely world where we just ask and get the answers.

I have spent over a year volunteering countless hours for Generation

Rescue (as the only rescue angel in my state for 8 months). I have

spent hours online, on the phone, and in person with many parents who

all ask the same questions of me, and I provide the answers without

making them feel bad. My husband feels very neglected because instead

of spending time with him when the kids go to bed, I " read around " for

hours every night.

Janice

Rhogam mom to Billy (3 severely autistic) and Colby (2 moderate

PDD-NOS) both SCD since finally being convinced to try this diet at

the 3 days I spent listening and " reading around " at the DAN!

conference in DC

> > >

> > > There is a diet that is pretending to be SCD and fooling many

> > > parents.

> > > Many parents think that they are doing SCD and are not aware that

> > > they

> > > are actually implementing the Nut Diet instead of SCD,confusing

> the

> > > Nut

> > > Diet with the real SCD.

> > >

> > > Many parents begin SCD by replacing the breads

> > > and cookies of other diets with nut flours They also feed their

> > > children any food that is SCD legal without first going through

> the

> > > introductory diet and making sure that their child can tolerate

> that

> > > food. This is done because most parents think that the rules of

> > > SCD

> > > and GFCF are the same. When parents start out with GFCF,they are

> > > allowed to use all the GFCF legal foods. It is important for

> parents

> > > to

> > > realize that the rules for SCD are different. While the goal of

> > > GFCF is

> > > the elimination of foods that contain gluten and casein,the goal

> of

> > > SCD

> > > is to avoid foods that cannot be digested. A certain food can be

> OK

> > > for

> > > one

> > > child but not for another. Also,a food can be difficult to digest

> > > for a

> > > child during

> > > the first months on SCD but fine at a later time when more gut

> > > healing

> > > has happened.

> > >

> > > The important idea behind SCD is that " We must never forget that

> > > what

> > > the patient takes beyond his ability to digest does harm. "

> > > Undigested

> > > foods become great nourishment for the gut microorganisms that

> have

> > > an

> > > excellent ability to digest carbohydrates. These parasites then

> emit

> > > toxins that destroy our children's gut and brains.

> > >

> > > Certain foods that are fine for advanced SCDers are not OK for

> > > beginners

> > > and might harm them. The most famous example is the nut flour.

> Many

> > > children cannot tolerate nut flours in the beginning stages of

> the

> > > diet.

> > > It is advised to start out with the intro diet and gradually

> > > introduce

> > > new foods. The " stages section " on www.pecanbread provide

> > > inspiration

> > > but there are no hard rules

> > > because our children are all different. The idea is to introduce

> new

> > > foods gradually and watch carefully for reactions.That is how you

> > > implement the " Real SCD " . If you just feed your child any food

> that

> > > is

> > > legal SCD food without taking into consideration that some foods

> > > might

> > > be difficult to digest during the first months then

> > > you are doing the " Nut Diet " .

> > >

> > > As we see,there are two different ways to implement the legal SCD

> > > food

> > > list:the nut diet and the real SCD.

> > >

> > > Is the Nut Diet better than GFCF? Of course! Despite its

> > > shortcomings,it

> > > is a lot easier to digest than the starches that are allowed in

> GFCF

> > > and

> > > other diets. I will give examples that might clarify this

> confusion

> > > and

> > > show us that our children are unique and have different outcomes

> > > with

> > > the Nut Diet.

> > >

> > > Sue R-F had a 2 year old child who was extremely picky.

> only

> > > ate

> > > goat yogurt,banana,meat and nut muffins. She had constipation

> but

> > > recovered with SCD and almost no other intervention (just a few

> > > sessions of Tomatis and a couple of hours a week of speech

> therapy).

> > > While this nut diet was not optimal,it did recover a child from

> > > autism.

> > >

> > > Another mother,ST, had 2 children,she started with the nut diet

> and

> > > got improvements for both children. After about half a year

> > > later,she

> > > went back to the intro diet and introducing foods gradually. She

> > > reported that she got EVEN better results after reintroducing the

> > > foods

> > > gradually.

> > >

> > > Jen Young reported that her child was only able to eat a few

> foods

> > > during his first months of SCD. He could not tolerate nuts during

> > > his

> > > first 3 months on SCD. After starting the goat yogurt,Jen was

> able

> > > to

> > > feed her child more foods and enable him to recover from Autism.

> Jen

> > > was only able to get results if she gave foods that were

> tolerated.

> > > If

> > > Jen had just followed the legal/illegal list,then her son would

> have

> > > made no progress.

> > >

> > > L is a brilliant man who is very talented in science. He

> has

> > > written that SCD,supplements, and enzymes have helped his autism

> > > spectrum issues. He

> > > has stated that he does better without any nuts,despite the fact

> > > that he

> > > has been doing SCD for over a year.

> > >

> > > The advantage of the Real SCD is that it allows the parent to

> design

> > > a

> > > diet that is custom made for that child and just right for each

> > > particular child. The Nut Diet is not optimal for a child who

> might

> > > have

> > > difficulties digesting nuts and other SCD legal foods during the

> > > first

> > > months( or with extreme cases,during the first year) of the

> diet.

> > >

> > > I have read on other lists the posts of parents who assert with

> > > great

> > > authority that SCD did not help their child's GI issues. In their

> > > post,they list the foods that they gave their child;there is

> always

> > > an

> > > advanced food on that list. I want to shout: " you cannot feed

> > > lentils to

> > > a child who has constipation,your kid's gut was not ready to

> digest

> > > this

> > > food and the undigested food fed the gut bugs. "

> > >

> > > I completely understand that it is hard for parents to do the

> real

> > > SCD,many children see other kids eating junk foods and feel

> > > deprived...some children are very picky.... I understand these

> > > difficulties and that is why we started a special list for

> children

> > > and

> > > SCD to help parents with these issues. What I ask of you is that

> you

> > > be

> > > fair to other parents when you are evaluating your child's

> outcome

> > > with

> > > our diet. If you cannot do the real SCD but are doing the nut

> diet

> > > and

> > > not getting results,then please explain it to other parents. It

> is

> > > not

> > > fair to discourage other parents from doing SCD if one did not

> do

> > > it

> > > correctly.

> > >

> > > Before reporting about your child's SCD experience on other

> autism

> > > lists, please make sure

> > > that you implemented the diet correctly. When I used to do SCD

> > > counseling for free some time ago (I no longer have the time to

> do

> > > that), I found out that some parents asserted that they were

> > > following

> > > the diet 100% and not getting results. After talking to me,the

> > > parents

> > > quickly became aware that they were not implementing SCD

> correctly.

> > > After the mistakes were corrected, the child progressed with SCD.

> I

> > > no

> > > longer have the time to do SCD counseling but there are excellent

> > > ways to transform failures into

> > > success with this wonderful diet.

> > >

> > > If you are not happy with your SCD results,then please seek the

> help

> > > of the list,websites,SCD pals and

> > > SCD counselors. It will be the best investment for your

> child :you

> > > will

> > > save lots of money because doing SCD correctly will shorten

> > > dramatically

> > > the amount of time that your child need to do ABA or other ASD

> > > interventions.

> > >

> > > Most parents of ASD children understand that a parent who

> > > implemented

> > > ABA,VB or RDI without the supervision of an expert might not get

> > > good

> > > results. ABA,VB and RDI are powerful tools for improving our

> > > children

> > > but they are complex and mistakes can easily be made by an

> untrained

> > > parent. We need to understand that this situation might also

> occur

> > > with

> > > SCD for children with extremely difficult GI systems.

> > >

> > > We have been very lucky that we have been able to help so many

> > > children

> > > without private counseling but some children did fall

> > > betweeen the cracks when their parents stopped SCD without

> getting

> > > private counseling. This is a tragedy because a few sessions of

> SCD

> > > counseling can usually fix the problem and are so much more

> > > economical

> > > than other ASD interventions.

> > >

> > > Please do not give up on this wonderful diet without seeking help

> > > from this list,SCD counselors or experienced parents!!

> > >

> > > All the best,Mimi

> > >

> >

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

June 5, 2006

Janice,

I am a fellow mom with a non-responding severe 5 yr old asd son. I also

spend hours 'reading around' on a handful of different lists. I can relate

how frustrating and heartbreaking it is, all the work and effort we put into

healing our children and not seeing any results.

I appreciate the heck out of all of the lists that I am on, including this

one- a big reason is because I can ask the fellow moms on the lists

over-asked questions without having to waste time hunting for the answers

myself, and get helpful answers. I answer other moms over-asked questions

when I can, and am glad to help someone else.

I was equally insulted and embarrassed at the response from that other mom-

I ask over-asked questions all the time.

I just wanted to say I felt really bad for you being talked to that way, and

it was rude and totally uncalled for.

I don't normally respond to rude comments from people especially ones that

aren't directed at me personally, but, I am still in shock over how

insensitive and hurtful that was to you.

Amber- a fellow over asker, and always will be.

mom to mild ADD, severe asd, Lucy developmentally delayed.

Appreciating SCD and this list for the helpful, nice people here.

>

> Since March 15, 2004 I have spent no less than two hours per day

> " reading around " . I try to read at least one page of posts from over

> twenty lists each night on a wide range of topics pertaining to my two

> sons' autism. Topics include basic biomed, advanced biomed,

> ABA/discrete trial, alternative medicine, biofeedback, LDN, Valtrex

> and B12, alternative diets, political action related to vaccine

> issues, NVICC, autism advocacy, and more. There are several groups

> whose posts I read every night- every one of them- and offer help when

> I can.

>

> The requirement for joining this group is reading the book BTVC and I

> have read it once and have tried to find answers to my questions in it

> before turning to this list. If you don't feel like answering a

> question on any list, you can simply not respond. It is not necessary

> to insinuate someone is a free-loader for asking a question that you

> feel is too basic or already sufficiently covered in past posts. I

> could not possibly read every post on this site every night as well as

> all of the posts on all of the lists to which I subscribe. I am as

> desperate and answer-seeking as any mother on this list as I have TWO

> toddlers with exceptional needs.

>

> Pardon me for irritating you with my question.

>

> And yes, it is a lovely world where we just ask and get the answers.

> I have spent over a year volunteering countless hours for Generation

> Rescue (as the only rescue angel in my state for 8 months). I have

> spent hours online, on the phone, and in person with many parents who

> all ask the same questions of me, and I provide the answers without

> making them feel bad. My husband feels very neglected because instead

> of spending time with him when the kids go to bed, I " read around " for

> hours every night.

>

> Janice

> Rhogam mom to Billy (3 severely autistic) and Colby (2 moderate

> PDD-NOS) both SCD since finally being convinced to try this diet at

> the 3 days I spent listening and " reading around " at the DAN!

> conference in DC

>

> > > >

> > > > There is a diet that is pretending to be SCD and fooling many

> > > > parents.

> > > > Many parents think that they are doing SCD and are not aware that

> > > > they

> > > > are actually implementing the Nut Diet instead of SCD,confusing

> > the

> > > > Nut

> > > > Diet with the real SCD.

> > > >

> > > > Many parents begin SCD by replacing the breads

> > > > and cookies of other diets with nut flours They also feed their

> > > > children any food that is SCD legal without first going through

> > the

> > > > introductory diet and making sure that their child can tolerate

> > that

> > > > food. This is done because most parents think that the rules of

> > > > SCD

> > > > and GFCF are the same. When parents start out with GFCF,they are

> > > > allowed to use all the GFCF legal foods. It is important for

> > parents

> > > > to

> > > > realize that the rules for SCD are different. While the goal of

> > > > GFCF is

> > > > the elimination of foods that contain gluten and casein,the goal

> > of

> > > > SCD

> > > > is to avoid foods that cannot be digested. A certain food can be

> > OK

> > > > for

> > > > one

> > > > child but not for another. Also,a food can be difficult to digest

> > > > for a

> > > > child during

> > > > the first months on SCD but fine at a later time when more gut

> > > > healing

> > > > has happened.

> > > >

> > > > The important idea behind SCD is that " We must never forget that

> > > > what

> > > > the patient takes beyond his ability to digest does harm. "

> > > > Undigested

> > > > foods become great nourishment for the gut microorganisms that

> > have

> > > > an

> > > > excellent ability to digest carbohydrates. These parasites then

> > emit

> > > > toxins that destroy our children's gut and brains.

> > > >

> > > > Certain foods that are fine for advanced SCDers are not OK for

> > > > beginners

> > > > and might harm them. The most famous example is the nut flour.

> > Many

> > > > children cannot tolerate nut flours in the beginning stages of

> > the

> > > > diet.

> > > > It is advised to start out with the intro diet and gradually

> > > > introduce

> > > > new foods. The " stages section " on www.pecanbread provide

> > > > inspiration

> > > > but there are no hard rules

> > > > because our children are all different. The idea is to introduce

> > new

> > > > foods gradually and watch carefully for reactions.That is how you

> > > > implement the " Real SCD " . If you just feed your child any food

> > that

> > > > is

> > > > legal SCD food without taking into consideration that some foods

> > > > might

> > > > be difficult to digest during the first months then

> > > > you are doing the " Nut Diet " .

> > > >

> > > > As we see,there are two different ways to implement the legal SCD

> > > > food

> > > > list:the nut diet and the real SCD.

> > > >

> > > > Is the Nut Diet better than GFCF? Of course! Despite its

> > > > shortcomings,it

> > > > is a lot easier to digest than the starches that are allowed in

> > GFCF

> > > > and

> > > > other diets. I will give examples that might clarify this

> > confusion

> > > > and

> > > > show us that our children are unique and have different outcomes

> > > > with

> > > > the Nut Diet.

> > > >

> > > > Sue R-F had a 2 year old child who was extremely picky.

> > only

> > > > ate

> > > > goat yogurt,banana,meat and nut muffins. She had constipation

> > but

> > > > recovered with SCD and almost no other intervention (just a few

> > > > sessions of Tomatis and a couple of hours a week of speech

> > therapy).

> > > > While this nut diet was not optimal,it did recover a child from

> > > > autism.

> > > >

> > > > Another mother,ST, had 2 children,she started with the nut diet

> > and

> > > > got improvements for both children. After about half a year

> > > > later,she

> > > > went back to the intro diet and introducing foods gradually. She

> > > > reported that she got EVEN better results after reintroducing the

> > > > foods

> > > > gradually.

> > > >

> > > > Jen Young reported that her child was only able to eat a few

> > foods

> > > > during his first months of SCD. He could not tolerate nuts during

> > > > his

> > > > first 3 months on SCD. After starting the goat yogurt,Jen was

> > able

> > > > to

> > > > feed her child more foods and enable him to recover from Autism.

> > Jen

> > > > was only able to get results if she gave foods that were

> > tolerated.

> > > > If

> > > > Jen had just followed the legal/illegal list,then her son would

> > have

> > > > made no progress.

> > > >

> > > > L is a brilliant man who is very talented in science. He

> > has

> > > > written that SCD,supplements, and enzymes have helped his autism

> > > > spectrum issues. He

> > > > has stated that he does better without any nuts,despite the fact

> > > > that he

> > > > has been doing SCD for over a year.

> > > >

> > > > The advantage of the Real SCD is that it allows the parent to

> > design

> > > > a

> > > > diet that is custom made for that child and just right for each

> > > > particular child. The Nut Diet is not optimal for a child who

> > might

> > > > have

> > > > difficulties digesting nuts and other SCD legal foods during the

> > > > first

> > > > months( or with extreme cases,during the first year) of the

> > diet.

> > > >

> > > > I have read on other lists the posts of parents who assert with

> > > > great

> > > > authority that SCD did not help their child's GI issues. In their

> > > > post,they list the foods that they gave their child;there is

> > always

> > > > an

> > > > advanced food on that list. I want to shout: " you cannot feed

> > > > lentils to

> > > > a child who has constipation,your kid's gut was not ready to

> > digest

> > > > this

> > > > food and the undigested food fed the gut bugs. "

> > > >

> > > > I completely understand that it is hard for parents to do the

> > real

> > > > SCD,many children see other kids eating junk foods and feel

> > > > deprived...some children are very picky.... I understand these

> > > > difficulties and that is why we started a special list for

> > children

> > > > and

> > > > SCD to help parents with these issues. What I ask of you is that

> > you

> > > > be

> > > > fair to other parents when you are evaluating your child's

> > outcome

> > > > with

> > > > our diet. If you cannot do the real SCD but are doing the nut

> > diet

> > > > and

> > > > not getting results,then please explain it to other parents. It

> > is

> > > > not

> > > > fair to discourage other parents from doing SCD if one did not

> > do

> > > > it

> > > > correctly.

> > > >

> > > > Before reporting about your child's SCD experience on other

> > autism

> > > > lists, please make sure

> > > > that you implemented the diet correctly. When I used to do SCD

> > > > counseling for free some time ago (I no longer have the time to

> > do

> > > > that), I found out that some parents asserted that they were

> > > > following

> > > > the diet 100% and not getting results. After talking to me,the

> > > > parents

> > > > quickly became aware that they were not implementing SCD

> > correctly.

> > > > After the mistakes were corrected, the child progressed with SCD.

> > I

> > > > no

> > > > longer have the time to do SCD counseling but there are excellent

> > > > ways to transform failures into

> > > > success with this wonderful diet.

> > > >

> > > > If you are not happy with your SCD results,then please seek the

> > help

> > > > of the list,websites,SCD pals and

> > > > SCD counselors. It will be the best investment for your

> > child :you

> > > > will

> > > > save lots of money because doing SCD correctly will shorten

> > > > dramatically

> > > > the amount of time that your child need to do ABA or other ASD

> > > > interventions.

> > > >

> > > > Most parents of ASD children understand that a parent who

> > > > implemented

> > > > ABA,VB or RDI without the supervision of an expert might not get

> > > > good

> > > > results. ABA,VB and RDI are powerful tools for improving our

> > > > children

> > > > but they are complex and mistakes can easily be made by an

> > untrained

> > > > parent. We need to understand that this situation might also

> > occur

> > > > with

> > > > SCD for children with extremely difficult GI systems.

> > > >

> > > > We have been very lucky that we have been able to help so many

> > > > children

> > > > without private counseling but some children did fall

> > > > betweeen the cracks when their parents stopped SCD without

> > getting

> > > > private counseling. This is a tragedy because a few sessions of

> > SCD

> > > > counseling can usually fix the problem and are so much more

> > > > economical

> > > > than other ASD interventions.

> > > >

> > > > Please do not give up on this wonderful diet without seeking help

> > > > from this list,SCD counselors or experienced parents!!

> > > >

> > > > All the best,Mimi

> > > >

> > >

> >

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

June 5, 2006

Janice,

You have every right to be hurt and I respect the fact that you stood up

and said something. As emotional and exhausting as our lives are dealing

with our special kids and diets among other things, I have always found

solace in my yahoo groups. Shame on that lady! If we can't turn to each

other for help then what the heck are we going to do? I myself appreciate

all of the time and energy of all of you who take the time to answer

questions, that's how we learn. I know if I see something that I can help on

I take the time, just like so many have done for me.

Hey lady who wrote that snooty reply, you want to beat someone up, go find

that scank from the CDC or get a punching bag, don't inflict pain on you

own! If you don't like it here then go away, there is no gun to your head to

stay!

(Mom of ASD Maddie 3)

Your post hurt my feelings.