Post from new member, Christian

[Guest guest]

Here is a post I received from , Bob's daughter, that joined

yesterday. I have added C. to the group. Welcome and I

hope we can get some answers for you soon.

Some of you have e-mailed my father, Bob yesterday when he found this

support group and he couldn't have found it at a better time. I have been

suffering with this disease since November. I finally have been correctlt

diagnosed after 3 surguries to my ear, where it initially started. I have

been on Predisone fro 2 months, am up to 60 mg a day and have been on

Methotrexate fro about a month, however now I am up to 6, 2.5 mg once a

week. Still I see no signs of improvement. My pain is still very severe.

The disease is now in my left ear, both of my feet, and they have found a

spot in my ling and are doing a CT needle biopsy next Monday.

I am 30 years old and have thought that I am doing ok with everything. I am

hopeful and very thankful that I have a wonderful family that has been so

supportive. But I am very thankful that God has seen fit that I have found

someone, anyone, many that can understand what I am going through and maybe

give me some answers that no one but a RP suffer can have. I am not flare

free-and the pain, it is so overwhelming. I don't know when or if it will

go away. I have just been through so much and i don't know what lies ahead.

How long does it take the med to work? Is there anything I can do to

prevent a flare up? Am I going to be able to lead a normal life? Will I be

able to work again? I have so many qustions, but wnough for the first

e-mail. I guess I opened up enough. Thanks for your time-

Mchelle in Shreveport, Louisiana suffering from RP

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