Re: Adult WCF

[Guest guest]

A man wcf uses the same pharmacy as we do. He is in his mid 30's and

looks great. I don't know this man and the pharmicist really should

not have told me that he has CF. I think that she just wanted to let

me know that Abby might look just as good when she is in her mid 30's.

Gale

> Hi Everyone,

> Zach was only diagnosed 6 months ago. I hadn't met any adults with

> cf until this weekend. We met a great lady who is 26 years old and

> runs marathons! She is such an inspiration to us. She hasn't let

> CF stop her from doing anything she wants and that is how we hope

to

> raise Zach. I had only met other parents who unfortunately were

> very negative about the disease. I constantly heard about how many

> vacations were spent doing tune-ups and that cf kids end up in

> therapy because they hate their parents for giving them the

> disease. Never did I hear how proud they were of their child. That

> is why I enjoy this list so much. We can talk about the negative

> aspects of the disease, but we can share the joys of parenthood as

> well.

>

> She has given me so much hope. I wanted to share that with all of

> the moms with little cf babies.

> Sara - mommy to Zach 19 months wcf

[Guest guest]

Sara,

When my Steph was diagnosed at age 5, we were devastated. All the

information we had available at the time said that these kids did not live

to see grade school. And here we were just starting kindergarten. The one

questions that we asked the cf doc when we went for our first visit was what

were her limitations. His words were the best words that he could have

given us.

" There are no limitations " " She can do whatever she wants " This is the

attitude we took then and it still follows through with our daughter to this

day. She will be 18 in November. She is fairly healthy and happy!

Being a part of this group has made me even more thankful of our family and

our situation.

Tina W, mother of Steph, almost 18.

Adult WCF

Hi Everyone,

Zach was only diagnosed 6 months ago. I hadn't met any adults with

cf until this weekend. We met a great lady who is 26 years old and

runs marathons! She is such an inspiration to us. She hasn't let

CF stop her from doing anything she wants and that is how we hope to

raise Zach. I had only met other parents who unfortunately were

very negative about the disease. I constantly heard about how many

vacations were spent doing tune-ups and that cf kids end up in

therapy because they hate their parents for giving them the

disease. Never did I hear how proud they were of their child. That

is why I enjoy this list so much. We can talk about the negative

aspects of the disease, but we can share the joys of parenthood as

well.

She has given me so much hope. I wanted to share that with all of

the moms with little cf babies.

Sara - mommy to Zach 19 months wcf