Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hello Chrissy, How I wish I could visit you in the hospital in Cinci. I hate to think of you being there on your own. Is there any chance of any member of the family or friends visiting? I think Kimber's idea of sending cards is lovely. Please let us know the details when you get them. Even here in the small UK I know it is hard for patients who come to the Liverpool Royal for panc treatment if their families live elsewhere. They DO do the cancer marker tests here, Chrissy. They do them automatically, apparently (I just didn't realise it had already been done!!, but both my specialists told me they are not 100% accurate by any means. Sadly. My test was negative before Christmas. I have had CT scans but not MRCP. I know that Prof has written extensively on testing for panc cancer and is researching potential new methods so I'm sure that everything that can be done is being done. ERCPs can help (not 100% accurate either) but this has to be balanced against the probs we know ERCPs can cause. The fourth test is the EUS which Prof hasn't yet ordered for me. (The other three are CT scan, blood marker and ERCP). Yes, I will wait until I know for sure about the TP. For the moment I am still managing in spite of some bad days. I am so sorry your pain is worse. I can only hope the time will pass quickly between now and when you lose your pancreas. If you've read Shirley's posts you must feel hopeful. Crystal is also doing so well. Hang on to these thoughts, Chrissy. Take care and try to remember that we are thinking about you. If ever I could, I would phone you in hospital once you are recovering enough to feel like a few words! With love, Fliss Quote Link to comment Share on other sites More sharing options...
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