Re: Jack's sweat test

[Guest guest]

YES!!

That's great news! Congratulations! More than likely the older he

gets he will grow out of it.

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> Hi. I just got word FINALLY that the sweat test came back NORMAL.

I want to

> be sure and thank all of you so very much for all of your help. I

understand

> your quest to spread awareness as I do the same for the condition

that my son

> Max was born with. I will keep this CF family in my prayers and I

am praying

> for a cure for all of you. God Bless all of your children and your

families.

> You are such strong dedicated parents, I am honored to have met

and been

> able to communicate with you.

>

> The Pulminologist says he will try to find a way to keep Jack's

breathing

> regulated so he doesn't have to " struggle for air " on occassion and

he will help

> us get through this (I hope) We will work on getting to the bottom

of all of

> this mucus. We will see him this week.

>

> Continue to be as strong as you are and keep fighting this

disease. You are

> all heros to me. God Bless you all!

> Hugs to you all - Amy

> Click to read " Max's Story " <A

HREF= " http://www.cappskids.org/CAPPSCranioKidMax.htm " >CAPPS CranioKid

Max</A>

>

>

>

[Guest guest]

YAYYYYYYYYYYYYYYYYYYYYYYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!!

I am so happy for you!!!!!

I hope that you do find a way to help Jack. I think allergies are a very

likely culprit from what you've said.

I read Max's story and can only say, wow. I know you do understand where

we all " are " in dealing with CF. Any child with a health condition is a

huge challenge and you have certainly risen to it!

Thanks for such a special farewell message!

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Jack's sweat test

Hi. I just got word FINALLY that the sweat test came back NORMAL. I

want to

be sure and thank all of you so very much for all of your help. I

understand

your quest to spread awareness as I do the same for the condition that

my son

Max was born with. I will keep this CF family in my prayers and I am

praying

for a cure for all of you. God Bless all of your children and your

families.

You are such strong dedicated parents, I am honored to have met and been

able to communicate with you.

The Pulminologist says he will try to find a way to keep Jack's

breathing

regulated so he doesn't have to " struggle for air " on occassion and he

will help

us get through this (I hope) We will work on getting to the bottom of

all of

this mucus. We will see him this week.

Continue to be as strong as you are and keep fighting this disease. You

are

all heros to me. God Bless you all!

Hugs to you all - Amy

Click to read " Max's Story " <A

HREF= " http://www.cappskids.org/CAPPSCranioKidMax.htm " >CAPPS CranioKid

Max</A>

[Guest guest]

Amy,

I am so happy for you. I am glad that you do not have to deal with this with

Jack on top of what Max has gone through. I hope they figure it all out. Let

us know if they do.

Jack's sweat test

Hi. I just got word FINALLY that the sweat test came back NORMAL. I want to

be sure and thank all of you so very much for all of your help. I understand

your quest to spread awareness as I do the same for the condition that my son

Max was born with. I will keep this CF family in my prayers and I am praying

for a cure for all of you. God Bless all of your children and your families.

You are such strong dedicated parents, I am honored to have met and been

able to communicate with you.

The Pulminologist says he will try to find a way to keep Jack's breathing

regulated so he doesn't have to " struggle for air " on occassion and he will

help

us get through this (I hope) We will work on getting to the bottom of all of

this mucus. We will see him this week.

Continue to be as strong as you are and keep fighting this disease. You are

all heros to me. God Bless you all!

Hugs to you all - Amy

Click to read " Max's Story " <A

HREF= " http://www.cappskids.org/CAPPSCranioKidMax.htm " >CAPPS CranioKid Max</A>