'Crooked' Smile - still no answers

[Guest guest]

I posted a question about my daughter's 'crooked' smile (it's actually

way more than crooked, her bottom jaw moves over about an inch when she

cries or laughts) on Monday and just wanted to let everybody know what

we found out so far (which is not much). We were referred to a

neurologist, who took a long time evaluating her, but didn't think that

there was anything wrong with her nerves or muscles in her face. He

said if something was wrong then her face would show it when she's at

rest and not moving. However, since her jaw is symmetric when she is

still, he didn't feel like any nerves or muscles were involved in this.

I called her pediatrician the next day and he referred us to a dental

clinic at the Children's Hospital, where we went today. They looked at

her x-rays and didn't see anything wrong with her bones. They said that

if we hadn't already been to a neurologist, that's where they would

send us. To them, it looked like a partial paralysis of her face. So

really, we are back at square one, everybody sees and acknowledges a

problem, but nobody knows why her jaw is doing this.

Both doctors however said that this has nothing to do with her

plagiocephaly. Even though her face shows asymmetrie, her jaw is not

involved in that and actually both doctors said that her jaw, when at

rest, is perfectly symmetric.

We were told to take a picture of this once a week and then in two

months compare all the pictures to see if it's getting better or worse.

If it remains the same or gets better, than of course, we don't have to

worry about it, but if it gets worse, then we should have further tests

done.

Thank you guys for all of your answers on Monday. It helps to know that

some people do care!

[Guest guest]

I am so sorry you are hitting brick walls in getting her answers and help. Have you seen a Craniofacial Specialist yet?

Can you post pics of her so I can see what you are talking about?

As far as not being relatedto tort/plagio... I'm not so sure... there are just TOO MANY babies here that have the same issue. I don't think it's a coinsidence.

There is a study that was done in China (?) that showed untreated torticollis and the jaw and facial asym that happens as time goes on. :-(

Here are pics of my dd thru the months showing her jaw asym... is it similiar to your dd???

View full size

View full size

View full size

View full size

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

'Crooked' Smile - still no answers

I posted a question about my daughter's 'crooked' smile (it's actually

way more than crooked, her bottom jaw moves over about an inch when she

cries or laughts) on Monday and just wanted to let everybody know what

we found out so far (which is not much). We were referred to a

neurologist, who took a long time evaluating her, but didn't think that

there was anything wrong with her nerves or muscles in her face. He

said if something was wrong then her face would show it when she's at

rest and not moving. However, since her jaw is symmetric when she is

still, he didn't feel like any nerves or muscles were involved in this.

I called her pediatrician the next day and he referred us to a dental

clinic at the Children's Hospital, where we went today. They looked at

her x-rays and didn't see anything wrong with her bones. They said that

if we hadn't already been to a neurologist, that's where they would

send us. To them, it looked like a partial paralysis of her face. So

really, we are back at square one, everybody sees and acknowledges a

problem, but nobody knows why her jaw is doing this.

Both doctors however said that this has nothing to do with her

plagiocephaly. Even though her face shows asymmetrie, her jaw is not

involved in that and actually both doctors said that her jaw, when at

rest, is perfectly symmetric.

We were told to take a picture of this once a week and then in two

months compare all the pictures to see if it's getting better or worse.

If it remains the same or gets better, than of course, we don't have to

worry about it, but if it gets worse, then we should have further tests

done.

Thank you guys for all of your answers on Monday. It helps to know that

some people do care!

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