Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Hi everyone!!! We just got back from vacation. We went to Okaloosa Island(Destin, Fl area) and then on to New Orleans, got out just in time before TS Bill hit. a has never culture PS, of course she was just diagnosed last May (2002) at almost 9 years old, so we do not know if, she has had them, and was treated for a sinus infection(her biggest problem was her nose)but she does TOBY, 28 days on/28 off. I asked her doctor to hold off during the summer, so her last round was April, so far so good. At any rate our doctors do this as their protocol, wheather PA or not. I really thought it was standard, and it was one of the hardest things to accept, because I was scare of the bugs getting resistant to TOBI. But I guess it is a situation of being stuck between a rock and a hard place. Love to everybody and hope everybody is well, mom of a 9 wcf, Venanzio 7 nocf, Pepe 3 nocf > When is Tobi introduced to someone CF? Is it only used if you have > an infection? > > Thanks, > Gale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 , Your children have great names! Gale > > When is Tobi introduced to someone CF? Is it only used if you have > > an infection? > > > > Thanks, > > Gale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Thank you Gale! a is a name that is found in both of our families. I was pregnant with Venanzio when my dad suddenly passed away, massive heart attack, his name was Venanzio, so my hormones named him. Pepe, his real name is Giovanni Giussepe, when I was pregnant with him I just knew he was going to be a girl, so I had named him Camille. Well, he came in after an emergency c-section, of course I was not prepare for a boy, so no name we had for him. On the third day at the hospital the nurse told us we had to name him, that he could not leave the hospital w/o a name, so we named him after my husband's father ph but in italian, to continue our heritage. Well, that's where their names come from, my poor children. Love to everyone, mom of a 9 wcf, Venanzio 7 nocf, Pepe 3 nocf > > > When is Tobi introduced to someone CF? Is it only used if you > have > > > an infection? > > > > > > Thanks, > > > Gale Quote Link to comment Share on other sites More sharing options...
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