Kim/Lema oil.../questions for when things calm down on your end.

[Guest guest]

Hi Kim,

I know today is a big day for you and I hope everything goes well on

your end. When you get to the e-mails read this one and let me know

what you think

Some questions: we have started the lema oil infusions/inhalations,

twice a day. For example while she was doing the vest this morning I

placed a pot with the infusion close to her the whole room had an

aroma of the forest after it rains. She actually likes the smell,

specially after I told her it can help her keep healthy.

The question is: in your opinion is twice a day ok or maybe once a

day. I have saved some of the e-mails were you had written about

your experiences with and some are 3 times a week and I think

on another occasion he did it every other the day, so I am thinking

twice a day is a little too much.

On the magnesium, this pills are big, is there any kind of the

chelated that you know of that she can chew? I think grinds

the ones that she gives to Liam on yogurt, but a will not go for

that, unfortunaly she hates yogurt. I am like the guy from my big

fat greek wedding, yogurt is good for everything.

She is doing really well, she has a perennial cough that gets worst

around certain places so I feel like some allergens are at work

there, plus she does have some damaged to her lungs, the doctor says

is very small, nonetheless. We do the machine twice a day, sick or

not sick and she rarely has any mucus, she is very active, too. This

season she is playing volleyball and soccer, so everyday she has

practice. She takes Singulair, Clarinex, multivitamin with extra C,

and Advair 500, I am sorry am taking so long but I want to get her

ready for the winter, when all the bugs are at their pick. She does

pulmozyme, I had her doing Xophenex, but she said there was no

difference in her breathing and her pic flow has been good without

it, so we stop the xophenex, at the end of april.

I apologize for the lenght of this e-mail but I just want your

opinion.

Thank you Kim,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

[Guest guest]

There's a liquid magnesium available through the Freedom Pharmacy

(Grandmom Bev). I ordered it for but haven't received it yet.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

[Guest guest]

Hi ,

You are so sweet to think of us today, thank you. It's already been a

freaky morning.

I'm glad a likes the Lema scent. I like your description of a

forest after the rain. What a nice aroma! It would seem so healing to

just close your eyes and imagine sitting on a bed of pine needles in a

lush, quiet forest glistening with raindrops.

As for the essential oil inhalations, I think I know where the

confusion lies. When first began using essential oils to get rid

of the aspergillus and S. maltophilia, he inhaled the vapors once a

day for three days in a row (Days 1-3).

But on Day 4, he was too tired so he skipped it. He inhaled again on

Days 5-6, then he dropped back so he was only inhaling the vapors

about three days a week (every other day).

But soon he resumed the once-per-day-every-day inhalations because he

made himself the subject of an experiment for his biology class. He

had to choose a topic and prove or disprove his hypothesis. He knew if

he wanted to prove that tea tree oil would get rid of his aspergillus

then he should show a consistent treatment method.

We will never really know whether his " hit or miss " approach or

once-a-day inhalations killed the organisms. But the hypothesis for

his biology paper was that taking magnesium AND inhaling tea tree oil

would kill off the bugs. And he proved his hypothesis correct.

Personally, I think if you are trying to kill off some bugs now or

reduce their numbers, then it's fine for a to start off inhaling

the Lema vapors once-per-day for about 7-10 days, then taper down to

three days a week for a couple weeks (so total treatment length is 3-4

weeks, much like inhaled or IV antibiotics).

I don't know what a cultures in her lungs right now. After

this first month of trying Lema --- whenever she is well, you may not

need or want to do inhalations three days a week, maybe just a weekly

ritual.

This weekly ritual could be a nice mother-daughter time. While she is

inhaling the Lema oil, you could polish each others' toenails and

fingernails, experiment with different facial masques and give foot

massages.

My daughter and I loved doing these things together, and spending this

time together balanced the time I spent solely with because of

doing his CPT (the vest wasn't available when he was growing up, and

he doesn't want one now). If you make these things pleasant rituals,

then a will always have fond and comforting memories, and later

when she is an adult, whenever she smells the Lema scent, she will

think of you and the lovely time you spent with her.

Our sense of smell is our strongest of the five senses. This is why

when you smell certain things you are immediately transported to a

memory. That's why so many people dislike hospitals; the smell

doesn't remind them " this is clean and sanitary " rather it reminds

them of times they felt pain, frightened, lonely, or loss of control.

A couple weeks ago, started taking alfalfa tablets because they

are rich in vitamin K. He opened the bottle and we took a big whiff,

and we were both suddenly reminded of his dad and the dairy farm --

because his dad grows alfalfa to feed the cows, and after cutting and

chopping the alfala it's stored in large silos. His dad would walk in

the back door every night after feeding the cows, smelling heavy of

moist alfalfa.

Anyway, for now a sounds fine and healthy, but I understand you

want her strong for this school year and winter. You will know by the

color and consistency of her mucus when trouble is growing, and then

you will certainly want to do daily inhalations.

( -- what do you think about this protocol?)

About 1 1/2 years ago, we discussed on the crataegus list about the

possibility of organisms becoming resistant to essential oils.

contacted an internationally known aromatherapy expert in Florida, who

consulted with another expert in Australia, and it was reassuring

having their input about safety.

Just checking -- you said she takes a multivitamin with extra C. Does

this multi also contain minerals? Can a swallow pills at all? If

so, you might try cutting the magnesium into half or thirds.

Kim

--- " Palazola " <annapalazola@y...> wrote:

Hi Kim,

I know today is a big day for you and I hope everything goes well on

your end. When you get to the e-mails read this one and let me know

what you think Some questions: we have started the lema oil

infusions/inhalations, twice a day. For example while she was doing

the vest this morning I placed a pot with the infusion close to her

the whole room had an aroma of the forest after it rains. She

actually likes the smell, specially after I told her it can help her

keep healthy.

The question is: in your opinion is twice a day ok or maybe once a

day. I have saved some of the e-mails were you had written about

your experiences with and some are 3 times a week and I think

on another occasion he did it every other the day, so I am thinking

twice a day is a little too much.

On the magnesium, this pills are big, is there any kind of the

chelated that you know of that she can chew? I think grinds

the ones that she gives to Liam on yogurt, but a will not go for

that, unfortunaly she hates yogurt. I am like the guy from my big

fat greek wedding, yogurt is good for everything.

She is doing really well, she has a perennial cough that gets worst

around certain places so I feel like some allergens are at work

there, plus she does have some damaged to her lungs, the doctor says

is very small, nonetheless. We do the machine twice a day, sick or

not sick and she rarely has any mucus, she is very active, too.

This season she is playing volleyball and soccer, so everyday she has

practice. She takes Singulair, Clarinex, multivitamin with extra C,

and Advair 500, I am sorry am taking so long but I want to get her

ready for the winter, when all the bugs are at their pick. She does

pulmozyme, I had her doing Xophenex, but she said there was no

difference in her breathing and her pic flow has been good without

it, so we stop the xophenex, at the end of april.

I apologize for the lenght of this e-mail but I just want your

opinion.

Thank you Kim,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

[Guest guest]

Kim,

I had written this long letter and my computer locked! Computers,

can live with them, can't live without them, at least is not a virus.

But, what I had written was that we do not know what a grows

because the time that she was diagnosed in May 2002, the doctor that

we saw at the CFF did not order a culture, she was very sick,

pneumonia, collapsed lung, awful. By the time we got to Dr.

Hanissian she had been on cipro and he did order a culture but it

came back with only good flora, of course the cipro had killed or was

in the process of destroying the bad stuff. Since then she had a

couple of nose colds and a touch of bronchitis and she responded well

to regular antibiotics.

I do not remember what else I wrote, you know you hit forty

everything goes to pots, he, he.

Love to you and your family, I hope whatever is found today with

Larry, at least the doctors will be able to keep him confortable.

mom of 3 lovely kids(when they are sleeping),the oldest with cf

> Hi Kim,

>

> I know today is a big day for you and I hope everything goes well

on

> your end. When you get to the e-mails read this one and let me

know

> what you think Some questions: we have started the lema oil

> infusions/inhalations, twice a day. For example while she was

doing

> the vest this morning I placed a pot with the infusion close to her

> the whole room had an aroma of the forest after it rains. She

> actually likes the smell, specially after I told her it can help

her

> keep healthy.

> The question is: in your opinion is twice a day ok or maybe once a

> day. I have saved some of the e-mails were you had written about

> your experiences with and some are 3 times a week and I think

> on another occasion he did it every other the day, so I am thinking

> twice a day is a little too much.

> On the magnesium, this pills are big, is there any kind of the

> chelated that you know of that she can chew? I think

grinds

> the ones that she gives to Liam on yogurt, but a will not go

for

> that, unfortunaly she hates yogurt. I am like the guy from my big

> fat greek wedding, yogurt is good for everything.

> She is doing really well, she has a perennial cough that gets worst

> around certain places so I feel like some allergens are at work

> there, plus she does have some damaged to her lungs, the doctor

says

> is very small, nonetheless. We do the machine twice a day, sick or

> not sick and she rarely has any mucus, she is very active, too.

> This season she is playing volleyball and soccer, so everyday she

has

> practice. She takes Singulair, Clarinex, multivitamin with extra C,

> and Advair 500, I am sorry am taking so long but I want to get her

> ready for the winter, when all the bugs are at their pick. She

does

> pulmozyme, I had her doing Xophenex, but she said there was no

> difference in her breathing and her pic flow has been good without

> it, so we stop the xophenex, at the end of april.

> I apologize for the lenght of this e-mail but I just want your

> opinion.

> Thank you Kim,

>

> mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

[Guest guest]

RE: Kim/Lema oil.../questions for when things calm

down on your end.

Dear

.. I am sure you have your order now . I didn't know if anyone else

wanted to get that as well . I don't want to be an ad on list but would

like to help those who need/want it . I don't know if they are aware it

is a syrup form called Maganstse and it isn't expensive either . I

think Romy told me 480ml for only $22.05..........So I was trying to

find if you knew of any others who might want it as well. The GSH , we

are making in a suave also. It seems to work very quickly for many.

I do hope your doing well. .OUR ED DAY is planned for NOV.1,2003 .I sure

hope you planned to be here. Many will want to hear about your

ALTERNATIVE experiences I am sure :) They seem to be helping so very

many................. Gots to run...

LOVE & HUGS, grandmomBEV