Re: Food Testing for - Honey is BAD for him

[Guest guest]

Sharon,

Wow.... wonderful that his seizures are down when you take away the honey. I

guess each child is certainly different.

My daughter has been on SCD for seizure control before... for about 18 months.

We had a great first year, with very few seizures... then they came back with a

vengeance. I used honey the whole time... so can't say whether that was an

issue.

We are back now to SCD, after an almost two year absence, since 5/27. She now

has a VNS in place... and she is on Keppra, too. We had trialed Keppra some

years ago... with no improvement. This time, together with the VNS, since

October, it seems to be helping.

She was still having a couple of seizures per month (though short and easy to

control now) but since starting SCD, she has been seizure free.... actually,

the last seizure was May 12th. The longest we've gone in a while.

What is " interro testing " ? Is this something done with an alternative

practitioner? Using kinesiology? Or... a machine that does something similar?

Do you use SCD yogurt? Or only the probiotic supplement?

Oh... and just FYI... Lamictal was about the worst nightmare drug we've EVER

tried... and we've tried lots of 'em. Katera had the scary rash reaction and had

to be taken off of it immediately. Very close call there. I hate that drug....

and Tegretol, which was another bad one for us.

Patti, mom to Katera

Food Testing for - Honey is BAD for him

I took to be " interro tested " today. They test for food

sensitivites, nutritional deficiences, amino acids, neurotransmitters,

candida (yeast) etc. It was absolutely amazing. is on the SCD

diet, and I pretty much have the legal and illegal foods memorized. As

she was testing, I would think " this will be bad " or " this will be good "

and bingo, the SCD lists were right on with one big exception - honey.

is severely intolerant to honey. We sweeten his almond milk (which

is OK according to the test) with honey.

When we first started the SCD, we followed the beginner's diet and tubed

all his fluids (Welch's grape juice watered down) for a week. 's

seizures died off big time. Me being me, I wanted him to drink by mouth,

so I tried the watered down grape juice sweetened with honey. He drank

that, but the seizures came back. I did not relate it to the honey,

which is a legal SCD food, I just though it was a fluke that his

seizures died off - thought maybe it was the shock of diet change or the

fact that he was so darn skinny that his Keppra was more effective due

to weight loss.

Anyway, back to the present. had a gastro bug this week, so he

wouldn't eat or drink so we gave him fluids by g-tube, not bothering to

sweeten with honey of course. His seizures again have died off to barely

anything. So no more honey for my honey. Today he is back to eating

fine, so the tummy bug is gone. It is 4:00pm and he should have had two

clusters of spasms by now, but nada.

It was also interesting to see the amino acids and neurotransmitters

related to seizure activity were all deficient for . His vitamins

are fine, his minerals are really bad. He has wicked candida, and only

one of about 20 remedies tested OK for him (Organika Colloidal Silver),

and of the probitotics they had in the system, none tested OK. I brought

the one I use (no bifidus as per SCD) and it was fine. Oh, and his

mercury is through the roof. They tested AMD, a chelator, but it was no

good. Mercury was the only bad heavy metal. I had the rhogan shot when I

was pregnant, so that is the only culprit I can think of as while he has

had some of his shots, supposedly none have mercury any more.

These reports will be faxed to his naturopath, so I am interested to see

what she proposes. I am hoping that clearing up the wicked candida will

allow his body to absorb minerals vs. giving him a whack of mineral

supplements. The amino acids are probably a different story, as well as

the neuro stuff (GABA, dopamine, taurine, l-dopa, l-glutamine,

tryptophan).

They also tested his AEDs - Keppra passed, Lamictal (which I just

started him on late April) fails miserably - he has the chewable 5mg

which have sugar. No sugar of any kind passed for him.

Anyway, I think it's probaby the best $200 I've spent, and of course the

best thing of all is reduced seizures - possibly due to no honey. I

especially like it because honey is so annoyingly sticky and gets on

everything (sounds silly but every time I touch the container it's

sticky)!!

I'll update as to what the ND proposes and also 's seizure activity

- maybe this is a fluke but we'll see.

Sharon Cruikshank

[Guest guest]

Sharon, what do you mean by " interro tested " ?

what kind of doctor did these tests?

Carolyn

>

> I took to be " interro tested " today. They test for food

> sensitivites, nutritional deficiences, amino acids,

neurotransmitters,

> candida (yeast) etc. It was absolutely amazing. is on the SCD

> diet, and I pretty much have the legal and illegal foods memorized.

As

> she was testing, I would think " this will be bad " or " this will be

good "

> and bingo, the SCD lists were right on with one big exception -

honey.

> is severely intolerant to honey. We sweeten his almond milk

(which

> is OK according to the test) with honey.

>

> When we first started the SCD, we followed the beginner's diet and

tubed

> all his fluids (Welch's grape juice watered down) for a week.

's

> seizures died off big time. Me being me, I wanted him to drink by

mouth,

> so I tried the watered down grape juice sweetened with honey. He

drank

> that, but the seizures came back. I did not relate it to the honey,

> which is a legal SCD food, I just though it was a fluke that his

> seizures died off - thought maybe it was the shock of diet change

or the

> fact that he was so darn skinny that his Keppra was more effective

due

> to weight loss.

>

> Anyway, back to the present. had a gastro bug this week, so he

> wouldn't eat or drink so we gave him fluids by g-tube, not

bothering to

> sweeten with honey of course. His seizures again have died off to

barely

> anything. So no more honey for my honey. Today he is back to eating

> fine, so the tummy bug is gone. It is 4:00pm and he should have had

two

> clusters of spasms by now, but nada.

>

> It was also interesting to see the amino acids and neurotransmitters

> related to seizure activity were all deficient for . His

vitamins

> are fine, his minerals are really bad. He has wicked candida, and

only

> one of about 20 remedies tested OK for him (Organika Colloidal

Silver),

> and of the probitotics they had in the system, none tested OK. I

brought

> the one I use (no bifidus as per SCD) and it was fine. Oh, and his

> mercury is through the roof. They tested AMD, a chelator, but it

was no

> good. Mercury was the only bad heavy metal. I had the rhogan shot

when I

> was pregnant, so that is the only culprit I can think of as while

he has

> had some of his shots, supposedly none have mercury any more.

>

> These reports will be faxed to his naturopath, so I am interested

to see

> what she proposes. I am hoping that clearing up the wicked candida

will

> allow his body to absorb minerals vs. giving him a whack of mineral

> supplements. The amino acids are probably a different story, as

well as

> the neuro stuff (GABA, dopamine, taurine, l-dopa, l-glutamine,

> tryptophan).

>

> They also tested his AEDs - Keppra passed, Lamictal (which I just

> started him on late April) fails miserably - he has the chewable 5mg

> which have sugar. No sugar of any kind passed for him.

>

> Anyway, I think it's probaby the best $200 I've spent, and of

course the

> best thing of all is reduced seizures - possibly due to no honey. I

> especially like it because honey is so annoyingly sticky and gets on

> everything (sounds silly but every time I touch the container it's

> sticky)!!

>

> I'll update as to what the ND proposes and also 's seizure

activity

> - maybe this is a fluke but we'll see.

> Sharon Cruikshank

>

>

>

>

[Guest guest]

<http://www.redpaw.net/> http://www.redpaw.net/ is where he got

tested,His naturopath suggested the testing. It is not a doctor that

does the testing. She just reports the results. When I get the ND's

recommendations I will post what she says.

Re: Food Testing for - Honey is BAD for him

Sharon, what do you mean by " interro tested " ?

what kind of doctor did these tests?

Carolyn

>

> I took to be " interro tested " today. They test for food

> sensitivites, nutritional deficiences, amino acids,

neurotransmitters,

> candida (yeast) etc. It was absolutely amazing. is on the SCD

> diet, and I pretty much have the legal and illegal foods memorized.

As

> she was testing, I would think " this will be bad " or " this will be

good "

> and bingo, the SCD lists were right on with one big exception -

honey.

> is severely intolerant to honey. We sweeten his almond milk

(which

> is OK according to the test) with honey.

>

> When we first started the SCD, we followed the beginner's diet and

tubed

> all his fluids (Welch's grape juice watered down) for a week.

's

> seizures died off big time. Me being me, I wanted him to drink by

mouth,

> so I tried the watered down grape juice sweetened with honey. He

drank

> that, but the seizures came back. I did not relate it to the honey,

> which is a legal SCD food, I just though it was a fluke that his

> seizures died off - thought maybe it was the shock of diet change

or the

> fact that he was so darn skinny that his Keppra was more effective

due

> to weight loss.

>

> Anyway, back to the present. had a gastro bug this week, so he

> wouldn't eat or drink so we gave him fluids by g-tube, not

bothering to

> sweeten with honey of course. His seizures again have died off to

barely

> anything. So no more honey for my honey. Today he is back to eating

> fine, so the tummy bug is gone. It is 4:00pm and he should have had

two

> clusters of spasms by now, but nada.

>

> It was also interesting to see the amino acids and neurotransmitters

> related to seizure activity were all deficient for . His

vitamins

> are fine, his minerals are really bad. He has wicked candida, and

only

> one of about 20 remedies tested OK for him (Organika Colloidal

Silver),

> and of the probitotics they had in the system, none tested OK. I

brought

> the one I use (no bifidus as per SCD) and it was fine. Oh, and his

> mercury is through the roof. They tested AMD, a chelator, but it

was no

> good. Mercury was the only bad heavy metal. I had the rhogan shot

when I

> was pregnant, so that is the only culprit I can think of as while

he has

> had some of his shots, supposedly none have mercury any more.

>

> These reports will be faxed to his naturopath, so I am interested

to see

> what she proposes. I am hoping that clearing up the wicked candida

will

> allow his body to absorb minerals vs. giving him a whack of mineral

> supplements. The amino acids are probably a different story, as

well as

> the neuro stuff (GABA, dopamine, taurine, l-dopa, l-glutamine,

> tryptophan).

>

> They also tested his AEDs - Keppra passed, Lamictal (which I just

> started him on late April) fails miserably - he has the chewable 5mg

> which have sugar. No sugar of any kind passed for him.

>

> Anyway, I think it's probaby the best $200 I've spent, and of

course the

> best thing of all is reduced seizures - possibly due to no honey. I

> especially like it because honey is so annoyingly sticky and gets on

> everything (sounds silly but every time I touch the container it's

> sticky)!!

>

> I'll update as to what the ND proposes and also 's seizure

activity

> - maybe this is a fluke but we'll see.

> Sharon Cruikshank

>

>

>

>

[Guest guest]

Sharon,

I am just joining this group and reading this email about seizures and

SCD. It is very interesting because we have experienced much of the

same with Abby. She has been on SCD for about 2 months now and in the

last 30 plus days has been virtually seizure free (except when whe had

a fever). Earlier this year her seizures were daily, very long (8-10

minutes each, generalized. affected her speech and development...).

Can I ask your more about out of curiosity? Would you email me

michsahr@...?

Abby has Ring Chromosome 20 syndrome. It is a rare disorder highly

associated with seizures. The seizures are known to be refractory

(drugs are NOT highly effective... some believe there kids were

damaged by the AEDs). Long story short, we prayed, went to a

Naturopathic doctor and ended up closely examining Abby's gut rather

than her head! And guess what.... by treating Abby's gut we have

found much much success. After trying many different things and

seeing only short lived successes, we put her on SCD. She is doing

GREAT. Seizures are virtually gone, she talks now, she moves and

walks better, on and on.

Thanks,

Sahr

> >

> > I took to be " interro tested " today. They test for food

> > sensitivites, nutritional deficiences, amino acids,

> neurotransmitters,

> > candida (yeast) etc. It was absolutely amazing. is on the SCD

> > diet, and I pretty much have the legal and illegal foods memorized.

> As

> > she was testing, I would think " this will be bad " or " this will be

> good "

> > and bingo, the SCD lists were right on with one big exception -

> honey.

> > is severely intolerant to honey. We sweeten his almond milk

> (which

> > is OK according to the test) with honey.

> >

> > When we first started the SCD, we followed the beginner's diet and

> tubed

> > all his fluids (Welch's grape juice watered down) for a week.

> 's

> > seizures died off big time. Me being me, I wanted him to drink by

> mouth,

> > so I tried the watered down grape juice sweetened with honey. He

> drank

> > that, but the seizures came back. I did not relate it to the honey,

> > which is a legal SCD food, I just though it was a fluke that his

> > seizures died off - thought maybe it was the shock of diet change

> or the

> > fact that he was so darn skinny that his Keppra was more effective

> due

> > to weight loss.

> >

> > Anyway, back to the present. had a gastro bug this week, so he

> > wouldn't eat or drink so we gave him fluids by g-tube, not

> bothering to

> > sweeten with honey of course. His seizures again have died off to

> barely

> > anything. So no more honey for my honey. Today he is back to eating

> > fine, so the tummy bug is gone. It is 4:00pm and he should have had

> two

> > clusters of spasms by now, but nada.

> >

> > It was also interesting to see the amino acids and neurotransmitters

> > related to seizure activity were all deficient for . His

> vitamins

> > are fine, his minerals are really bad. He has wicked candida, and

> only

> > one of about 20 remedies tested OK for him (Organika Colloidal

> Silver),

> > and of the probitotics they had in the system, none tested OK. I

> brought

> > the one I use (no bifidus as per SCD) and it was fine. Oh, and his

> > mercury is through the roof. They tested AMD, a chelator, but it

> was no

> > good. Mercury was the only bad heavy metal. I had the rhogan shot

> when I

> > was pregnant, so that is the only culprit I can think of as while

> he has

> > had some of his shots, supposedly none have mercury any more.

> >

> > These reports will be faxed to his naturopath, so I am interested

> to see

> > what she proposes. I am hoping that clearing up the wicked candida

> will

> > allow his body to absorb minerals vs. giving him a whack of mineral

> > supplements. The amino acids are probably a different story, as

> well as

> > the neuro stuff (GABA, dopamine, taurine, l-dopa, l-glutamine,

> > tryptophan).

> >

> > They also tested his AEDs - Keppra passed, Lamictal (which I just

> > started him on late April) fails miserably - he has the chewable 5mg

> > which have sugar. No sugar of any kind passed for him.

> >

> > Anyway, I think it's probaby the best $200 I've spent, and of

> course the

> > best thing of all is reduced seizures - possibly due to no honey. I

> > especially like it because honey is so annoyingly sticky and gets on

> > everything (sounds silly but every time I touch the container it's

> > sticky)!!

> >

> > I'll update as to what the ND proposes and also 's seizure

> activity

> > - maybe this is a fluke but we'll see.

> > Sharon Cruikshank

> >

> >

> >

> >