Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 I just want to take this opportunity to thank all of you who have been taking time to write letters to friends and family about making a donation to the RP Foundation. They are really rolling in and keeping me busy. Gosh it feels good! Without everyone like you who have been doing this, the Foundation wouldn't be where it is today. We have to all work as a group to acheive our goal and we are really starting to roll now. With the donations coming in, all of us exercising and putting money in the jars and helping with the quilt, it should prove to be a very good year. We are working on the Brochures now and hope to have them printed soon. I know it seems like we have been saying all of this for a long time, but we have to move in baby steps. One thing at a time and a lot goes on behind the scenes. We want to make sure all is done the right way. It takes us a little longer because we all have RP and don't always have good days. I have heard from Dr Utz and he is more than willing to start working with us. He will be writing something up for us to use to get the word out soon. He is doing research at Stanford University in California on RP. It's good to have him with us. I will update the Foundation site as I find out anything new. Thank you again for all that you all do. I have been nagging alot lately about the medic alert bracelets and such and I won't disappoint you now. LOL For all of you who haven't donated to the Foundation, I am pleading again. It will all go for OUR use. We want to be able to spread the word, make more people aware and be able to contribute to research like we did last year. Hopefully each year we will have more to contribute and one day find that CURE that we are all looking for. Please, Look deep into your pockets and see if there is an extra $15 for a yearly donation. It's a small price to pay for maybe a CURE or just to have more doctors aware of RP and how to treat it as soon as possible. Thank you for all who have continued to support us. It means so much to all of us. You may make your check out to RP Foundation and mail to: Rp Foundation c/o Colloran 775 Bounty Place Manteca, CA 95337 For all the newbies, the RP Foundation is totally separate from the support group. You may visit our web site at: polychondritis.org The site isn't completley done yet, but you will see changes daily. Thanks again. Quote Link to comment Share on other sites More sharing options...
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