Re: [pecanbread OT EXERCISE QUESTION was Like Cream of Wheat

[Guest guest]

Dear SCD Pals that have wisdom in this area. I have lost much muscle tone

thanks to celiac disease...very weak legs, arms, and have lost most my buttocks.

Most would think this is good...but not in this case. My daughter is hypotonic

(low muscle tone) thanks to celiac disease. We where to sick before to care

about exercise....let alone our muscle tone.

When is it suggested that KikI and me can exercise and her case participate in

physical therapy. As many already know this May 21 we where 4 months out. Do

we need to heal more, or is it time to get those muscles moving? We are now

gaining weight...an no longer loosing. Do we wait? Or get on the move?

Thanks for suggestions, Sincerely, Antoinette/celiac and KiKi -2

celiac/autistic

[Guest guest]

Exercise is as essential to healing as diet, as fresh air, as sunlight.

Something like yoga or tai chi is great for building some muscle tone and

stamina in a very gentle way. I use yoga for PT and OT, my children do not

realize this, they think it is only fun. It helps with functioning on many

levels, from calming the nervous system to coming " online " . Sleep is better too.

Summer

Bunce wrote:

Dear SCD Pals that have wisdom in this area. I have lost much muscle tone

thanks to celiac disease...very weak legs, arms, and have lost most my buttocks.

Most would think this is good...but not in this case. My daughter is hypotonic

(low muscle tone) thanks to celiac disease. We where to sick before to care

about exercise....let alone our muscle tone.

When is it suggested that KikI and me can exercise and her case participate in

physical therapy. As many already know this May 21 we where 4 months out. Do

we need to heal more, or is it time to get those muscles moving? We are now

gaining weight...an no longer loosing. Do we wait? Or get on the move?

Thanks for suggestions, Sincerely, Antoinette/celiac and KiKi -2

celiac/autistic

[Guest guest]

Summer said: Exercise is as essential to healing as diet, as fresh air, as

sunlight. Something like yoga or tai chi is great for building some muscle tone

and stamina in a very gentle way. I use yoga for PT and OT, my children do not

realize this, they think it is only fun. It helps with functioning on many

levels, from calming the nervous system to coming " online " . Sleep is better too.

Dear Summer I truly agree. Yet, what is your opinion (or the opinion of others)

on how long we should heal first before exercising? I would hate for us to

loose more weight through exercise. We walk to the park..go to pool and play in

the sun much. KiKI is naturally more active. AT first we couldn't get her to

" walk " anywhere...she cried to be carried. Now she gets made when we carry

here! I don't want to loose weight though....has anybody been in this

predicament????

Antoinette (2/06 celiac)

[Guest guest]

> Summer said: Exercise is as essential to healing as diet, as fresh

> air, as sunlight. Something like yoga or tai chi is great for building

> some muscle tone and stamina in a very gentle way. I use yoga for PT

> and OT, my children do not realize this, they think it is only fun. It

> helps with functioning on many levels, from calming the nervous system

> to coming " online " . Sleep is better too.

>    

> Dear Summer I truly agree.  Yet, what is your opinion (or the opinion

> of others) on how long we should heal first before exercising?  I

> would hate for us to loose more weight through exercise.  We walk to

> the park..go to pool and play in the sun much.  KiKI is naturally more

> active.  AT first we couldn't get her to " walk " anywhere...she cried

> to be carried.  Now she gets made when we carry here!  I don't want to

> loose weight though....has anybody been in this predicament???? 

>

> Antoinette (2/06 celiac)

When I told Elaine I did weight lifting, stair climbing and Pilates she

advised against vigorous exercise.

>

Carol F.

Toronto, celiac, SCD 6 years

[Guest guest]

Don't you read any of my posts? lol

Has anyone been in this predicament.....yes. I always had to carry Ben around

too.

A book I like is " Fly Like A Butterfly, Yoga For Children " by Shakta Kaur

Khalsa.

Wai Lana has a series of gentle yoga for beginners and yoga for children.

WIth yoga, you never do more than feels comfortable, you are not supposed to

" exert " yourself, you stop when tired or if you feel pain, pick up again later.

Start with the gentle stretching, and as your flexibility and stamina go up, you

in can increase resistance, if so desired, move onto harder poses. Yoga can be

the worlds most gentle exercise, or the worlds more strenuous, you want to stay

with the gentle stretching and gently work up. Very good for cardiovascular

system, learning how to breathe from the diaphram, relax the nervous system, all

these things translate to better fine motor coodordination over time. Yoga

gently massages the internal organs.

You shouldn't lose weight, but gently increase strength. Yoga is not like

jogging, although I have seen some versions of it that looks like jogging. I

would go with some of the above resources.

Summer

Bunce wrote:

Summer said: Exercise is as essential to healing as diet, as fresh air, as

sunlight. Something like yoga or tai chi is great for building some muscle tone

and stamina in a very gentle way. I use yoga for PT and OT, my children do not

realize this, they think it is only fun. It helps with functioning on many

levels, from calming the nervous system to coming " online " . Sleep is better too.

Dear Summer I truly agree. Yet, what is your opinion (or the opinion of others)

on how long we should heal first before exercising? I would hate for us to

loose more weight through exercise. We walk to the park..go to pool and play in

the sun much. KiKI is naturally more active. AT first we couldn't get her to

" walk " anywhere...she cried to be carried. Now she gets made when we carry

here! I don't want to loose weight though....has anybody been in this

predicament????

Antoinette (2/06 celiac)

Summer's Family, SCD 08/04 http://health.groups.yahoo.com/group/openblooms/

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Thank you Summer and Carol both! I was working on my purple belt in Karate,

prior to my first pregnancy. Several babies and health problems later, it truly

upsets me to look at my body now. I am sure other mom's can relate. I will

take it slow and not weight lift! lol! My neighbor this morning gave me a intro

palates video. Will go to the library to check out the book " Fly Like A

Butterfly " for KiKi, I will try this first before I start mountain

climbing...or working on my black belt lol....not! Those days are over.

CAROL, you weight lifted? Or is this a joke??

Antoinette/celiac

and entire family of 5 SCD 2/06/celaic, add, adhd, autism and more

[Guest guest]

I lift light weights it's good for osteoporosis.

> Thank you Summer and Carol both!  I was working on my purple belt in

> Karate,  prior to my first pregnancy.  Several babies and health

> problems later, it truly upsets me to look at my body now.  I am sure

> other mom's can relate.  I will take it slow and not weight lift!

> lol!  My neighbor this morning gave me a intro palates video.  Will go

> to the library to check out the book " Fly Like A Butterfly " for KiKi, 

> I will try this first before I start mountain climbing...or working on

> my black belt lol....not!  Those days are over.

>

> CAROL, you weight lifted?  Or is this a joke??

>

> Antoinette/celiac

> and entire family of 5 SCD 2/06/celaic, add, adhd, autism and more

>

>

>

[Guest guest]

Carol said: When I told Elaine I did weight lifting, stair climbing and Pilates

she

advised against vigorous exercise.

Then you said: I lift light weights it's good for osteoporosis.

Carol, I'm a bit confused. So when did Elaine tell you it was OK???? As you

know I have osteoporosis too...and would love to get stronger. Pilates is a

start...but would be nice to do more some day.

Antoinette (2/06 celiac)

[Guest guest]

This is good advice, Antoinette. A little exercise is always such a great

psychological boost too - even when it's the last thing you feel like doing.

If you are afraid of dropping pounds you could increase your calorie intake

while you're increasing your activity level. I know you already eat 8 times a

day - maybe add more avocado (gotta love avocado!!).

Kim :-)

Day 16 SCD dairy-free

3 yo ASD, 2 yo NT

RE: Re: [pecanbread OT EXERCISE QUESTION was Like Cream

of Wheat

Low tone in children is usually a neurologically based issue. It is not

the same as losing muscle mass when dieting or ill such as in an adult.

Noah has always had low tone, which got better immediately after dietary

change to GFCF and with supplementation with carnitine which was

indicated on his OAT test.

Did you end up getting the evaluation you were considering for Kiki? You

may want to at least have the occupational therapy and physical therapy

eval, so she could get these services since she has low tone. Exercise

for kids should just be plenty of play outdoors... running, jumping,

climbing.

As for yourself, go ahead and get moving. Resistance training with

weights, bands or babies would be helpful to build muscle. Make sure you

get good instruction or proper form though.

Becky

mom to Noah (6, HFA) and (3, NT)

SCD 3 months