Re: ARTICLE: Better to never have been born? Just need to vent

[Guest guest]

Reading this article made me realize just how ignorant some people can be. I

was angered by it tremendously. First of all the fact alone that these

people can't accept the special children they are given. No our children may not

be the " normal " happy go lucky kids we would like to of had, but they are still

our kids. Then the fact that in this day and age when people can have kids

thanks to the miracle of invetro they can't do something as simple as a genetic

screening to find out what each person carries. And do these people realize

that even thought the donor egg was a carrier and the father was a carrier

that they only had a 1 in 4 chance of that baby being born with CF. These are

odds that if I could not have a child any other way I would take.

Then it made me think about my own son. If I had know that I was a carrier

and so was his father would we of still had him. OF COURSE! There is not a

doubt in my mind. I love my son, he is my world. No he may not have the life I

dreamt of for him while I was pregnant but that doesn't make him any less

wanted. And I would change a thing about him. And we have a beautiful little

girl to prove that the odds aren't always against us. Yes I have a child with

CF but I also have a child who is only a carrier and one who is neither. We

need to love our children unconditionally regardless of whether they are

" normal " , a cfer or a down syndrome baby. We are special people, given these

special

children because someone knows we can handle it.

Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf.

[Guest guest]

Christal,

You are right. We would not have our Abby without CF. She would

have been given a totally different set of chromosomes and although

some things may have been the same, it wouldn't have been her. I'll

take her just as she is - CF and all. I continue to pray for a cure

or control but the point is that she is - like your child - an

individual created for a purpose.

Joe

> Reading this article made me realize just how ignorant some people

can be. I

> was angered by it tremendously. First of all the fact alone that

these

> people can't accept the special children they are given. No our

children may not

> be the " normal " happy go lucky kids we would like to of had, but

they are still

> our kids. Then the fact that in this day and age when people can

have kids

> thanks to the miracle of invetro they can't do something as simple

as a genetic

> screening to find out what each person carries. And do these

people realize

> that even thought the donor egg was a carrier and the father was a

carrier

> that they only had a 1 in 4 chance of that baby being born with

CF. These are

> odds that if I could not have a child any other way I would take.

> Then it made me think about my own son. If I had know that I was a

carrier

> and so was his father would we of still had him. OF COURSE! There

is not a

> doubt in my mind. I love my son, he is my world. No he may not

have the life I

> dreamt of for him while I was pregnant but that doesn't make him

any less

> wanted. And I would change a thing about him. And we have a

beautiful little

> girl to prove that the odds aren't always against us. Yes I have a

child with

> CF but I also have a child who is only a carrier and one who is

neither. We

> need to love our children unconditionally regardless of whether

they are

> " normal " , a cfer or a down syndrome baby. We are special people,

given these special

> children because someone knows we can handle it.

>

> Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf.

>

>

>

[Guest guest]

Christal,

I couldn't have said it better. I just can't imagine wishing my child wasn't

born. I realize he has a lot " milder " version of cf (so far) than most, so we

don't have the troubles other do, but I wouldn't change a thing. I thank God

everyday for my son.

Angie (Ma to JC, 3yo, wcf)

Re: ARTICLE: Better to never have been born? Just need to

vent

Reading this article made me realize just how ignorant some people can be. I

was angered by it tremendously. First of all the fact alone that these

people can't accept the special children they are given. No our children may

not

be the " normal " happy go lucky kids we would like to of had, but they are

still

our kids. Then the fact that in this day and age when people can have kids

thanks to the miracle of invetro they can't do something as simple as a

genetic

screening to find out what each person carries. And do these people realize

that even thought the donor egg was a carrier and the father was a carrier

that they only had a 1 in 4 chance of that baby being born with CF. These are

odds that if I could not have a child any other way I would take.

Then it made me think about my own son. If I had know that I was a carrier

and so was his father would we of still had him. OF COURSE! There is not a

doubt in my mind. I love my son, he is my world. No he may not have the life

I

dreamt of for him while I was pregnant but that doesn't make him any less

wanted. And I would change a thing about him. And we have a beautiful little

girl to prove that the odds aren't always against us. Yes I have a child with

CF but I also have a child who is only a carrier and one who is neither. We

need to love our children unconditionally regardless of whether they are

" normal " , a cfer or a down syndrome baby. We are special people, given these

special

children because someone knows we can handle it.

Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf.