nervous and confused in Boston

[Guest guest]

We got my son's helmet on Wednesday but waited until today to

start. We got it from NOPCO at Chidren's Hospital in Boston. There

they use a laser scan to get a 3D image of his head and then build

the band from that.

So during the practice wear I noticed there was an uneven side and

went to have it shaved down at the NOPCO in the Burlington office

because it was much closer to me. They had no wait and so

consequently I switched all my followup apppointments there. But I

got some info and the Burlington office typicaly casts the fittingt

and doesn't use a laser... They are just upgrading their technoloyg

right now and have started to use the lazer. I asked what the scans

are used for and I was told that the scans are not used for anything

but showing progress to the parent and not for any data collection

or custom making of the helmet.

I then talked with the orthoist from Boston and she said that I got

misinformation because they use the scan in conjunction with a

machine that carves out a 3D model from the scan out of foam.

Supposedly the techs modifiy it to make it more round and pull the

foam and plastic over it. It's also used for data collection.

So now I don't know what to do or what to believe and I just want

someone to tell me what to do but no one will because my family

isn't really pro band and they're questiong why was it so uneven if

it's really " custom " machine made? I'm sort of asking msyelf that

question too. I definitely want to do it, and not regret it later on

but I'm just stressed out.

Is there anyone from the Boston area who has sucessfully used NOPCO

at Childrens or Burlington? I just need some advice... Which

orthoist did you have?

Thanks

[Guest guest]

So sorry to hear of your frustration, I would be frustrated too! I

am not in Boston, but there was at least one mom (possibly two) on

the board that used NOPCO pretty recently, maybe in the last 6

months or so. Hopefully she will see your post and respond, but you

can also do a search of old messages by typing in NOPCO and they

should all come up. There was a " bad " history with NOPCO previously

(kind of outdated now), but this mom for sure and some others I

think took the time to update the board with the good experiences

they had there recently. Not sure about the different offices

though, but hopefully you can find that info to.

Good luck!

Jake-2 (DOCBand Grad 9/08)

Jordan-5

>

> We got my son's helmet on Wednesday but waited until today to

> start. We got it from NOPCO at Chidren's Hospital in Boston. There

> they use a laser scan to get a 3D image of his head and then build

> the band from that.

>

> So during the practice wear I noticed there was an uneven side and

> went to have it shaved down at the NOPCO in the Burlington office

> because it was much closer to me. They had no wait and so

> consequently I switched all my followup apppointments there. But I

> got some info and the Burlington office typicaly casts the

fittingt

> and doesn't use a laser... They are just upgrading their

technoloyg

> right now and have started to use the lazer. I asked what the

scans

> are used for and I was told that the scans are not used for

anything

> but showing progress to the parent and not for any data collection

> or custom making of the helmet.

>

> I then talked with the orthoist from Boston and she said that I

got

> misinformation because they use the scan in conjunction with a

> machine that carves out a 3D model from the scan out of foam.

> Supposedly the techs modifiy it to make it more round and pull the

> foam and plastic over it. It's also used for data collection.

>

> So now I don't know what to do or what to believe and I just want

> someone to tell me what to do but no one will because my family

> isn't really pro band and they're questiong why was it so uneven

if

> it's really " custom " machine made? I'm sort of asking msyelf that

> question too. I definitely want to do it, and not regret it later

on

> but I'm just stressed out.

>

>

> Is there anyone from the Boston area who has sucessfully used

NOPCO

> at Childrens or Burlington? I just need some advice... Which

> orthoist did you have?

>

> Thanks

>

[Guest guest]

My daughter wore a starband a few years ago, so I don't have any

expereince with nopco. However there were some posts last year from

one or two mom's who were happy with nopco. You can search old

messages.

I think another thing to do it take your own pics of your son's head

every week or two and check for progress. You should see changes. The

top view often shows plagio the best. It will give you an independent

confirmation that you're going in the right direction. Also I would

think the children's hospital would be more experienced so might be

worth the drive. Maybe ask them both how many babies they see etc.

-christine

sydney, 3yrs, starband grad

>

> We got my son's helmet on Wednesday but waited until today to

> start. We got it from NOPCO at Chidren's Hospital in Boston. There

> they use a laser scan to get a 3D image of his head and then build

> the band from that.

>

> So during the practice wear I noticed there was an uneven side and

> went to have it shaved down at the NOPCO in the Burlington office

> because it was much closer to me. They had no wait and so

> consequently I switched all my followup apppointments there. But I

> got some info and the Burlington office typicaly casts the fittingt

> and doesn't use a laser... They are just upgrading their technoloyg

> right now and have started to use the lazer. I asked what the scans

> are used for and I was told that the scans are not used for

anything

> but showing progress to the parent and not for any data collection

> or custom making of the helmet.

>

> I then talked with the orthoist from Boston and she said that I got

> misinformation because they use the scan in conjunction with a

> machine that carves out a 3D model from the scan out of foam.

> Supposedly the techs modifiy it to make it more round and pull the

> foam and plastic over it. It's also used for data collection.

>

> So now I don't know what to do or what to believe and I just want

> someone to tell me what to do but no one will because my family

> isn't really pro band and they're questiong why was it so uneven if

> it's really " custom " machine made? I'm sort of asking msyelf that

> question too. I definitely want to do it, and not regret it later

on

> but I'm just stressed out.

>

>

> Is there anyone from the Boston area who has sucessfully used NOPCO

> at Childrens or Burlington? I just need some advice... Which

> orthoist did you have?

>

> Thanks

>

[Guest guest]

I didn;t use that band so I can;t really speak from experience with them... But you can p a search thru all the ol messages with the keyword NOPCO. I know alot of discussion has gone on in the past.

Jen and Luli - 3 years old

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

nervous and confused in Boston

We got my son's helmet on Wednesday but waited until today to

start. We got it from NOPCO at Chidren's Hospital in Boston. There

they use a laser scan to get a 3D image of his head and then build

the band from that.

So during the practice wear I noticed there was an uneven side and

went to have it shaved down at the NOPCO in the Burlington office

because it was much closer to me. They had no wait and so

consequently I switched all my followup apppointments there. But I

got some info and the Burlington office typicaly casts the fittingt

and doesn't use a laser... They are just upgrading their technoloyg

right now and have started to use the lazer. I asked what the scans

are used for and I was told that the scans are not used for anything

but showing progress to the parent and not for any data collection

or custom making of the helmet.

I then talked with the orthoist from Boston and she said that I got

misinformation because they use the scan in conjunction with a

machine that carves out a 3D model from the scan out of foam.

Supposedly the techs modifiy it to make it more round and pull the

foam and plastic over it. It's also used for data collection.

So now I don't know what to do or what to believe and I just want

someone to tell me what to do but no one will because my family

isn't really pro band and they're questiong why was it so uneven if

it's really "custom" machine made? I'm sort of asking msyelf that

question too. I definitely want to do it, and not regret it later on

but I'm just stressed out.

Is there anyone from the Boston area who has sucessfully used NOPCO

at Childrens or Burlington? I just need some advice... Which

orthoist did you have?

Thanks

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[Guest guest]

Jen from Boston,

Email me at cleared34@... and I will tell you about NOPCO. My twin son is wearing a helmet; He has been since Dec 29 of 2008 and he is progressign nicely. I live in Bedford so I can be of help to you if you wish.

Bye

The angel of the lord encampeth around them who fear him, and delivers him! Psalms 34:7

From: Jen <JenandLuli@...>Subject: Re: nervous and confused in BostonPlagiocephaly Date: Monday, February 23, 2009, 10:51 PM

I didn;t use that band so I can;t really speak from experience with them... But you can p a search thru all the ol messages with the keyword NOPCO. I know alot of discussion has gone on in the past.

Jen and Luli - 3 years oldLeft tort - Right Plagio - Hanger Band Grad - CAhttp://www.babieson line.com/ babies/j/ jens5th/ nervous and confused in Boston

We got my son's helmet on Wednesday but waited until today to start. We got it from NOPCO at Chidren's Hospital in Boston. There they use a laser scan to get a 3D image of his head and then build the band from that. So during the practice wear I noticed there was an uneven side and went to have it shaved down at the NOPCO in the Burlington office because it was much closer to me. They had no wait and so consequently I switched all my followup apppointments there. But I got some info and the Burlington office typicaly casts the fittingt and doesn't use a laser... They are just upgrading their technoloyg right now and have started to use the lazer. I asked what the scans are used for and I was told that the scans are not used for anything but showing progress to the parent and not for any data collection or custom making of the helmet. I then talked with the orthoist from Boston and she

said that I got misinformation because they use the scan in conjunction with a machine that carves out a 3D model from the scan out of foam. Supposedly the techs modifiy it to make it more round and pull the foam and plastic over it. It's also used for data collection. So now I don't know what to do or what to believe and I just want someone to tell me what to do but no one will because my family isn't really pro band and they're questiong why was it so uneven if it's really "custom" machine made? I'm sort of asking msyelf that question too. I definitely want to do it, and not regret it later on but I'm just stressed out. Is there anyone from the Boston area who has sucessfully used NOPCO at Childrens or Burlington? I just need some advice... Which orthoist did you have? Thanks

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