Guest guest Posted September 11, 2003 Report Share Posted September 11, 2003 Hey Everyone Well I am still not feeling well at all. I can't shake these horrible headaches and this darn cough...GRRRRRRRRRRRRRrrrrrrrrrrrrrrrrrrrrrrrrr Anyways, I was calling all the Lung TX centers I could and finding out what my doc needs for any eval to be sent up. He has been horrible about getting on the ball with this stuff. So far Ive had two centers call me back..Mayo CLinic in ville,Florida and Tampa Generals Lung TX Coordinator. She is very very helpful even when my doc was being a royal butthead. They are being horrible about faxing stuff. Long story but Im gonna have to basically do this mayself b/c they don't have TIME to fax all the info and were sooooo irritated. I mean they are all for me getting a TX but want me to do all the work. My docs wife is the nurse at the office and she was so rude I want to just go off. Anyways, the coordinator just said don't worry about it let them be irritated and we're gonna call them for more stuff so they better just " GET Over It " LOL I just hope that I can get an eval with several of these centers...Im calling several. Anyways....that wa sit....I drove over 200 miles today signing freaking releases so I could get the info to them. Ya know...HIPPA is a royal pain in the tushy. Anyways...does anyone have any experience with the center in JAcksonville fLorida or Tampa? Lets keep our fingers crossed that this will get rolling soon..... Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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