Re:pain & nausea To Sandy

[Guest guest]

Hi Sandy! I'm sorry it took me so long to respond. I can so relate

to what you're going through. About 3 years ago, I was in the

hospital for " fluffing up " about every 3 weeks for up to 2 weeks at a

time. But it's been 20 months since my last hospital stay & about 1

yr since my last ER visit. I've had nausea so bad that I've been on

Reglan, Compozine, phenergen, scopolomine (sp?) patch, * ohters I

can't remember the names of. The only one that work for me is

phenergen & it has to be an injection. If I start throwing up, it

sets off a cycle of more N/V & increasing pain. So I'll avoid

vomiting at all costs. Maybe you could talk with your internest

about all options open to you as far as meds. I also use peppermint,

& ginger tea. I make my own tea from the ginger root & just sip it

all day on my bad days. I've found that helpful. The trick is to

start everything early enough. So if I even have a slight wave of

nausea, I'll start drinking tea. I also carry phenergen inj. with me

EVERYWHERE.

I also have the continuos pain along with the " stabbing " pains.

Since I've reduced my pain med, I feel more pain on the left side

that goes up into my shoulder. Someone told me that's b/c the

diaphragm is involved somehow & causes referred shoulder pain. I was

told that's why some people feel pain in other areas on the left side

with CP. Maybe someone else knows more about that. My doc had me

try Neurontin for those sharp pains, but it didn't work. Maybe you

could ask your doc about that one also?

I also think we go through stages where we are worse than at aother

times. I conclude that from my own experiences over a long period of

time.

If prayer works for you, that's a great way to get relief. And any

relaxation or imagery you can do to get your mind off of it. I know

for me that's hard when I'm hanging over a toilet, but during the

quieter times I do that.

I'm gonna go play cards with my son. I'll check back with you

later. I hope some of this will help you.

Hugs,

Deanna

[Guest guest]

Hi Deanna,

Thanks to you, and everyone else, that wrote back to me.

I would try to cut this nausea off in the beginning if it was happening

while I was awake. But like ALL my previous attacks that have sent me

to the ER, this nausea only comes while I'm asleep and wakes me with a

vengious (sp). I finally took a phenegren last night when it awoke me

and this morning it was all I could do to stay awake for the day.

Also, I have been prescribed Nuerontin, but I chose not to take it as it

is proven to be a medicine that causes pancreatits and pancreatic

attack, albeit in only a small group of people. But I feel that I

already have something, then why would I take something that could make

that worse?! Just my thoughts.

I do pray and yes, that helps. I also have my pain meds to take too. I

just found it strange that this type of nausea is usually associated

with me having to bundel up and head on to the hospital, because of the

accompanying pain. But no pain with the nausea so far, so perhaps thats

a good thing. I also believe we go through a sort of " remission " with

this illness and I may be coming out of mine. At least I have enjoyed a

wonderful few years, comparing that to the pain, nausea and time spent

away from my family with hospital and surgical visits. I will count and

value my blessings with this one!

Thanks all very much. Sometimes I just need to know I'm not alone in

the aches, pains and weird behavior of this disease.

Sandy

Fairfield, California

persiankat555 wrote:

> Hi Sandy! I'm sorry it took me so long to respond. I can so relate

> to what you're going through. About 3 years ago, I was in the

> hospital for " fluffing up " about every 3 weeks for up to 2 weeks at a

> time. But it's been 20 months since my last hospital stay & about 1

> yr since my last ER visit. I've had nausea so bad that I've been on

> Reglan, Compozine, phenergen, scopolomine (sp?) patch, * ohters I

> can't remember the names of. The only one that work for me is

> phenergen & it has to be an injection. If I start throwing up, it

> sets off a cycle of more N/V & increasing pain. So I'll avoid

> vomiting at all costs. Maybe you could talk with your internest

> about all options open to you as far as meds. I also use peppermint,

> & ginger tea. I make my own tea from the ginger root & just sip it

> all day on my bad days. I've found that helpful. The trick is to

> start everything early enough. So if I even have a slight wave of

> nausea, I'll start drinking tea. I also carry phenergen inj. with me

> EVERYWHERE.

> I also have the continuos pain along with the " stabbing " pains.

> Since I've reduced my pain med, I feel more pain on the left side

> that goes up into my shoulder. Someone told me that's b/c the

> diaphragm is involved somehow & causes referred shoulder pain. I was

> told that's why some people feel pain in other areas on the left side

> with CP. Maybe someone else knows more about that. My doc had me

> try Neurontin for those sharp pains, but it didn't work. Maybe you

> could ask your doc about that one also?

> I also think we go through stages where we are worse than at aother

> times. I conclude that from my own experiences over a long period of

> time.

> If prayer works for you, that's a great way to get relief. And any

> relaxation or imagery you can do to get your mind off of it. I know

> for me that's hard when I'm hanging over a toilet, but during the

> quieter times I do that.

> I'm gonna go play cards with my son. I'll check back with you

> later. I hope some of this will help you.

>

> Hugs,

> Deanna

[Guest guest]

Dear Sandy,

I wonder if you could talk to your doc about taking something

prophylactically prior to bedtime. Since it's happening when you're

asleep, maybe a small dose of something could prevent it? Just be

sure to ask your doc.

I didn't know that about Neurontin. Maybe that's why it didn't work

for me. If I had known that, I wouldn't have tried it either.

I agree with you, I think we have litte " remissions. " I'm just sorry

you're having trouble now. And you're right, you're definately not

alone. I've had the nausea with a " vengeance " too. That's why I

take phenergen injections. It's the only way to stop it in time.

That used to help me sleep, but no more.

I really hope you can get this under control...I know how miserable

it is. You're in my prayers!

Big hugs!

Deanna

> > Hi Sandy! I'm sorry it took me so long to respond. I can so

relate

> > to what you're going through. About 3 years ago, I was in the

> > hospital for " fluffing up " about every 3 weeks for up to 2 weeks

at a

> > time. But it's been 20 months since my last hospital stay &

about 1

> > yr since my last ER visit. I've had nausea so bad that I've been

on

> > Reglan, Compozine, phenergen, scopolomine (sp?) patch, * ohters I

> > can't remember the names of. The only one that work for me is

> > phenergen & it has to be an injection. If I start throwing up,

it

> > sets off a cycle of more N/V & increasing pain. So I'll avoid

> > vomiting at all costs. Maybe you could talk with your internest

> > about all options open to you as far as meds. I also use

peppermint,

> > & ginger tea. I make my own tea from the ginger root & just sip

it

> > all day on my bad days. I've found that helpful. The trick is

to

> > start everything early enough. So if I even have a slight wave

of

> > nausea, I'll start drinking tea. I also carry phenergen inj.

with me

> > EVERYWHERE.

> > I also have the continuos pain along with the " stabbing " pains.

> > Since I've reduced my pain med, I feel more pain on the left side

> > that goes up into my shoulder. Someone told me that's b/c the

> > diaphragm is involved somehow & causes referred shoulder pain. I

was

> > told that's why some people feel pain in other areas on the left

side

> > with CP. Maybe someone else knows more about that. My doc had

me

> > try Neurontin for those sharp pains, but it didn't work. Maybe

you

> > could ask your doc about that one also?

> > I also think we go through stages where we are worse than at

aother

> > times. I conclude that from my own experiences over a long

period of

> > time.

> > If prayer works for you, that's a great way to get relief. And

any

> > relaxation or imagery you can do to get your mind off of it. I

know

> > for me that's hard when I'm hanging over a toilet, but during the

> > quieter times I do that.

> > I'm gonna go play cards with my son. I'll check back with you

> > later. I hope some of this will help you.

> >

> > Hugs,

> > Deanna