Re: 16 month with local helmet - Working link here..

[Guest guest]

Oh crap. Didn't realise i mispelled the " blogspot " . Also the first one

didn't have the " www " . Anyway, here's the working link for everyone

who tried to access our blog. Thanks

http://www.katejustine.blogspot.com/

> > >

> > > - Thanks for the update - I've been wondering about you

> guys!

> > > Bands will hold in the prominant spots and be void in the flat

> > spots.? My dd had right plagio and the band held her right forehead

> > and back left of her head while it had room to grow in the ?back

> > right.? Hope that makes sense.

> > > With out seing pics I can't understand what you are saying about

> the

> > back.

> > > If you can post pics - we'd love to see the them.

> > >

> > > Will you go for adjustments?

> > >

> > > What?did they tell you for cleaning?? Here the standard

> instruction

> > is to clean with 91% rubbing alcohol - because it evaporates and

> kills

> > bacteria.

> > >

> > > As far as sweatin - my dd wore hers in the summer time and so we

> > dressed her very lightly.? Usually just a onsie or shirt and

> diaper.

> > >

> > > Hope this helps!!!

> > >

> > >

> > > ?Jen and Luli - 29 months

> > > Left tort - Right Plagio - Hanger Band Grad - CA

> > > http://www.babiesonline.com/babies/j/jens5th/

> > >

> > >

> > > 16 month with local helmet

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi everyone,

> > >

> > > I'm back with some updates on my (now) 16-month old daughter with

> > > plagio. http://katejustine.blogspot.com. I mentioned before that

> we

> > > were referred to a local orthotist/prosthetist here in Singapore

> and

> > > they fabricated a helmet after they did a plaster cast of her

> head.

> > > Now i just have questions on how the DOC or Starband users with

> the

> > > fit of their helmet. The reason i'm asking is now that we've got

> the

> > > helmet, we noticed that it's not snug fit at the lower back of

> the

> > > helmet. Is this the case or should they be perfectly fitted even

> at

> > > that side. I guess i can't expect perfection from this local

> band, but

> > > at least i'd like to know how they should be like. As for the

> > > space/void for the flatenned side of my child's head, it looks

> > > alright.. When she wears it, i can see the pressure spot on her

> left

> > > forehead, which is the same side of her flat spot at the back of

> her

> > > head.

> > >

> > > She's getting used to it now on day 2, but her hair is all sweaty

> > > whenever we remove the helmet. Any advice on this?

> > >

> > > Told my wife that we should at least try the local band first

> before

> > > we think of flying to CA (and be there for months) if we're not

> > satisfied.

> > >

> > > I'll put up a pic of our non-branded band soon.

> > >

> > > Chris

> > >

> >

>

[Guest guest]

It looks like the slant on the back of the band is in the same spot as

Kate's flat spot. It doesn't look like there is much room for the flat spot

to grow out. I would definitely check with the orthotist about this.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5

, 8.5

16 month with local helmet

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi everyone,

> > >

> > > I'm back with some updates on my (now) 16-month old daughter with

> > > plagio. http://katejustine.blogspot.com. I mentioned before that

> we

> > > were referred to a local orthotist/prosthetist here in Singapore

> and

> > > they fabricated a helmet after they did a plaster cast of her

> head.

> > > Now i just have questions on how the DOC or Starband users with

> the

> > > fit of their helmet. The reason i'm asking is now that we've got

> the

> > > helmet, we noticed that it's not snug fit at the lower back of

> the

> > > helmet. Is this the case or should they be perfectly fitted even

> at

> > > that side. I guess i can't expect perfection from this local

> band, but

> > > at least i'd like to know how they should be like. As for the

> > > space/void for the flatenned side of my child's head, it looks

> > > alright.. When she wears it, i can see the pressure spot on her

> left

> > > forehead, which is the same side of her flat spot at the back of

> her

> > > head.

> > >

> > > She's getting used to it now on day 2, but her hair is all sweaty

> > > whenever we remove the helmet. Any advice on this?

> > >

> > > Told my wife that we should at least try the local band first

> before

> > > we think of flying to CA (and be there for months) if we're not

> > satisfied.

> > >

> > > I'll put up a pic of our non-branded band soon.

> > >

> > > Chris

> > >

> >

>

------------------------------------

For more plagio info

[Guest guest]

- I just looked at the pics. Thanks for posting!

Did they scan or cast? From what I can see it looks like they made the band from a "mold" of your babies head but didn't make is symmetrical for the head to grow into. The bottom back of the band look like it indents where the plagio is... is that correct?

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

16 month with local helmet

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi everyone,

> > >

> > > I'm back with some updates on my (now) 16-month old daughter with

> > > plagio. http://katejustine.blogspot.com. I mentioned before that

> we

> > > were referred to a local orthotist/prosthetist here in Singapore

> and

> > > they fabricated a helmet after they did a plaster cast of her

> head.

> > > Now i just have questions on how the DOC or Starband users with

> the

> > > fit of their helmet. The reason i'm asking is now that we've got

> the

> > > helmet, we noticed that it's not snug fit at the lower back of

> the

> > > helmet. Is this the case or should they be perfectly fitted even

> at

> > > that side. I guess i can't expect perfection from this local

> band, but

> > > at least i'd like to know how they should be like. As for the

> > > space/void for the flatenned side of my child's head, it looks

> > > alright.. When she wears it, i can see the pressure spot on her

> left

> > > forehead, which is the same side of her flat spot at the back of

> her

> > > head.

> > >

> > > She's getting used to it now on day 2, but her hair is all sweaty

> > > whenever we remove the helmet. Any advice on this?

> > >

> > > Told my wife that we should at least try the local band first

> before

> > > we think of flying to CA (and be there for months) if we're not

> > satisfied.

> > >

> > > I'll put up a pic of our non-branded band soon.

> > >

> > > Chris

> > >

> >

>

Stay informed, get connected and more with AOL on your phone.

[Guest guest]

Got an answer from the orthotist..

" The back of the helmet was slanted in on the right side more to

assist with rotation control in much the same may the " sideburns " on

the front do. It can be adjusted if too much or too little pressure is

being exerted. "

So i guess there was a purpose to it after all. my daughter's flat

spot is actually more on the top side of the back of her head.

> > > >

> > > > - Thanks for the update - I've been wondering about you

> > guys!

> > > > Bands will hold in the prominant spots and be void in the flat

> > > spots.? My dd had right plagio and the band held her right forehead

> > > and back left of her head while it had room to grow in the ?back

> > > right.? Hope that makes sense.

> > > > With out seing pics I can't understand what you are saying about

> > the

> > > back.

> > > > If you can post pics - we'd love to see the them.

> > > >

> > > > Will you go for adjustments?

> > > >

> > > > What?did they tell you for cleaning?? Here the standard

> > instruction

> > > is to clean with 91% rubbing alcohol - because it evaporates and

> > kills

> > > bacteria.

> > > >

> > > > As far as sweatin - my dd wore hers in the summer time and so we

> > > dressed her very lightly.? Usually just a onsie or shirt and

> > diaper.

> > > >

> > > > Hope this helps!!!

> > > >

> > > >

> > > > ?Jen and Luli - 29 months

> > > > Left tort - Right Plagio - Hanger Band Grad - CA

> > > > http://www.babiesonline.com/babies/j/jens5th/

> > > >

> > > >

> > > > 16 month with local helmet

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I'm back with some updates on my (now) 16-month old daughter with

> > > > plagio. http://katejustine.blogspot.com. I mentioned before that

> > we

> > > > were referred to a local orthotist/prosthetist here in Singapore

> > and

> > > > they fabricated a helmet after they did a plaster cast of her

> > head.

> > > > Now i just have questions on how the DOC or Starband users with

> > the

> > > > fit of their helmet. The reason i'm asking is now that we've got

> > the

> > > > helmet, we noticed that it's not snug fit at the lower back of

> > the

> > > > helmet. Is this the case or should they be perfectly fitted even

> > at

> > > > that side. I guess i can't expect perfection from this local

> > band, but

> > > > at least i'd like to know how they should be like. As for the

> > > > space/void for the flatenned side of my child's head, it looks

> > > > alright.. When she wears it, i can see the pressure spot on her

> > left

> > > > forehead, which is the same side of her flat spot at the back of

> > her

> > > > head.

> > > >

> > > > She's getting used to it now on day 2, but her hair is all sweaty

> > > > whenever we remove the helmet. Any advice on this?

> > > >

> > > > Told my wife that we should at least try the local band first

> > before

> > > > we think of flying to CA (and be there for months) if we're not

> > > satisfied.

> > > >

> > > > I'll put up a pic of our non-branded band soon.

> > > >

> > > > Chris

> > > >

> > >

> >

>