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sorry, i hit return instead of tab. Please email me if you would like to. I

totally understand what you are talking about. We recently switched cf

clinics after 10 years and my daughter is only 11 years old. I just had to find

some different opinions and answers to some of my questions. valerie was

getting worse and i couldnt get the doctors to take our calls due to vacations

and

stuff.

hope to hear from you soon. i will be on tomorrow and easier to catch then.

good luck with your quest.

Sue Pettit

mom to (16 wocf), (12 wocf), and (11 wcf) diagnosed at

8 days of age at LeBonheur Childrens Medical Center in Memphis, Tennessee

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