Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Heidi, I was very pleased to hear all has been worked out with your pain med. It sounds like you really have a winner with your GI doc! Hooray for him! I have often found that when things like your situation happen, the doctor has no idea that there is even a problem. We owe it to ourselves, the doctor, and other patients to make our doctor aware of a problem. You did exactly the right thing and hopefully you will save some other patient from the misery, stress, and frustration you went through. ly, I'm suprised that the stress didn't throw you into a severe attack that might have even warranted being admitted to the hospital! It is often hard to stand up to the doctor and tell him when there is a problem because you never know how he/she will react. I admire you for doing what was right! I am so glad it worked out well for you. I know that has to be a relief for you. I know nothing about methadone. However, the pain meds I take on a regular basis are ms contin 30 mg 3 times a day and oxy ir (oxycodone immediate release) 5 mg 4 times a day as needed for breakthrough pain. The reason I'm on these meds is that I have autoimmune liver disease in addition to cp, so tylenol on a regular basis is not a good idea. Also, I'm on coumadin for a clotting disorder so aspirin and ibuprofen are out, also. Doesn't leave a lot of choices for oral meds. The ms contin and oxy ir work well for me. When I'm in the hospital or at the ER, I'm usually given demerol, dilaudid, or IV morphine. They all seem to work well provided a large enough dose is given often enough. I'm not sure I can tell if one works better than the other. When I'm bad off enough to be at the ER or in the hospital, it's hard to really even be cognizant enough to determine if one med works better than the other. The only thing on my mind at that point is getting relief from the pain and nausea! Kudos to you on doing the right thing and letting your doctor know what was going on! I'm with you, that I'd rather have a two hour round trip to pick up my prescription than rely on the mail. Luckily, my pain doc is only about 1 1/2 hours round trip. Also, my mom often picks it up for me because she's usually in Huntsville to eat lunch with my stepdad on most days. I much prefer to have the script in hand than to worry about a delay in the mail! Glad everything worked out for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Heidi: I hope this morning you are feeling better. I was so afraid last night when I went to bed that I would wake up in the morning ready for my oxycontin, but I was OK. Thanks for letting me know that you had the same changes in your medication and how it worked for you. I still am having quite a bit of pain in my back, but I think it might have something to do with the doctor pressing very hard down on my liver, so hard to make tears come to my eyes. He said my liver felt sort of large, and since it was tender there was a good chance this was as a result of other nearby organs being inflamed also. So, I've been using my breakthrough meds (Actiq-Fentanyl 800 mg) I really liked him. He's the first doctor to associate my gall bladder removal with the cp. He said he has one other patient with cp as a result of her gall bladder. He said before he mostly always saw cp as related to alcohol. It is more related to gall bladder problems now. I know this has come up in discussions on the board before. I'm positive that is how I got mine. Since it was a year and a half between my gall bladder removal, and my first ERCP, I believe I sustained damage during this time. Hopefully, I won't damage it anymore by incorporating all the do's and don't of having cp! By the way Mark, thanks for all the info that I have used on the Top5Plus5. That's alot of work, that I'm sure people refer to often. I know I've used it...and referred others to it. So, here's an attaboy for you! . It's a beautiful day here on the Eastern Shore of land. 50 degrees and sunny! Robin Robin R. Sr. Production Planning Specialist * (ext. 102) * (fax) robin.cox@... -------------------------------------------------------- This e-mail and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this e-mail in error please notify the system manager: postmaster@... This e-mail and its attachments have been scanned for the presence of computer viruses, however it is always advisable to run a virus check on e-mails and attachments before opening them. -------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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