Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 My name is and I am the mother of Lexie, almost 9, with CF. She takes TOBI, vest therapy twice a day, albuterol and cromolyn twice a day, Sporanox, Zantac, Zyrtec, and of course enzymes (Lipram). I think I am still in denial about her CF sometimes, but after reading this board I am getting a huge wake-up call. I just wish we could be normal -- not having to take machines everywhere, " have you taken your enzymes " , etc., etc. Lexie actually does very well, although it seems like when she is off TOBI for 28 days she gets a cold or something. I am a medical transcriptionist who works at home so at least I am here with her. I guess I am just feeling overwhelmed like everyone else and need to vent to people who might understand. Non-CF parents try, but they don't really know. I guess because for the most part I try to be cheery about everything. I am rambling. I just want to introduce myself and become a part of the board. -- Findlay, Illinois Quote Link to comment Share on other sites More sharing options...
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