Re: (Pylonephritis)/Kidney infections

[Guest guest]

Hi Jan,

Dr. Haver is her CF doc. Who is your son's? How is he doing? I am in a

panick, my husband just called to tell me that they can not flush her picc line.

A pedi surgeon did it. They have actually paged a pedi surgeon to look at

it. He does the night shift, I do the day shift at the hospital and my other

daughter and son get shuffled from pillar to post during times like these.

Thanks,

Jenna

[Guest guest]

>

>

> Hey everyone,

>

> Hannah was admitted yesterday to MGH in Boston. She has a kidney

infection.

Who is her CF doctor? My son goes to MGH as well. Hope the meds kick

in quickly. Seeing them with those really high temp is frightening.

I'll say a prayer tonight for you both. Did a peds specialist put in

the PICC line? My DS had one put in last year at Children's and it

went very smoothly. I'm sorry hers did not.

jan

[Guest guest]

Thanks so much. The address is:

Massachusetts General Hospital

Hannah Maunsell

55 Fruit Street

Boston, MA 02114

Ellison 17

[Guest guest]

Thanks . I do too!!

[Guest guest]

So sorry to hear. Send us her addy there for a card mailing :) Maybe she

would like that ..

LOVE & HUGS, grandmomBEV

Re: (Pylonephritis)/Kidney infections

>

>

> Hey everyone,

>

> Hannah was admitted yesterday to MGH in Boston. She has a kidney

infection.

Who is her CF doctor? My son goes to MGH as well. Hope the meds kick

in quickly. Seeing them with those really high temp is frightening.

I'll say a prayer tonight for you both. Did a peds specialist put in

the PICC line? My DS had one put in last year at Children's and it

went very smoothly. I'm sorry hers did not.

jan

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi,

I had Pylo once. It was pretty painful and since I was a few months pregnant

with the kept me in the hospital. (Ok the nurse said the pain of her pylo

infection was worse than childbirth but I don't think I would go that far) Not

an experience that I would wish on anyone though, especially a little one. I

hope Hannah is feeling better soon.

(Pylonephritis)/Kidney infections

Hey everyone,

Hannah was admitted yesterday to MGH in Boston. She has a kidney infection.

The surgeon finally got a pic line placement in the jugular today. She is a

hard stick.

Her veins are very spindly and blow quite easily.

Anyway, they are putting her on TOBI treatments through nebulizer, they said

that Tobramyacin through IV could do worse damage to her kidneys. They don't

know how long she will be in the hospital for. They are going to be doing cpt

3xs a day and tobi and pulmicort. She is running a fever that ranges from

105-101.6. It will take a couple of days to creep down. Any suggestions?

Jenna

Mom to Hannah 21 months w/cf, Shamus 6 1/2 no cf, a 4 no cf.

[Guest guest]

I don't know but I will send good thoughts your way and hope she recovers

soon. It must be hard with her being so young!

love,

M

[Guest guest]

Thanks-got it. A wee bear & card are on their way . Best wishes also

LOVE & HUGS, Grdmbev

Re: Re: (Pylonephritis)/Kidney infections

Thanks so much. The address is:

Massachusetts General Hospital

Hannah Maunsell

55 Fruit Street

Boston, MA 02114

Ellison 17

[Guest guest]

Thank you for the well wishes. Hannah should be getting out of the hospital

on Monday. She will be on TOBI nebs for 21 more days and on an antibiotic

for her kidney infection for the next two weeks. Then she needs to follow up

with the nephrologist. She needs to have the IVP for the kidneys. They think

she has kidney reflux and it will need to be surgically repaired. They seem to

think that she has some sort of kidney damage there is an abnormality with

one of her kidney's ....oh well we'll know in a couple of weeks.

Jenna

[Guest guest]

Thanks GrandmomBev!!!

Love,

Jenna

[Guest guest]

Best wishes, great vibes, lots of my special thoughts for Hannah & of

course her sweet family who are so very worried about her too!!

LOVE & HUGS<

GrandmomBEV

Re: (Pylonephritis)/Kidney infections

Thank you for the well wishes. Hannah should be getting out of the

hospital

on Monday. She will be on TOBI nebs for 21 more days and on an antibiotic

for her kidney infection for the next two weeks. Then she needs to follow

up

with the nephrologist. She needs to have the IVP for the kidneys. They

think

she has kidney reflux and it will need to be surgically repaired. They seem

to

think that she has some sort of kidney damage there is an abnormality with

one of her kidney's ....oh well we'll know in a couple of weeks.

Jenna

[Guest guest]

My daughter Marie non cf had to have a kidney removed when she was 3 1/2 years

old. She also had ruflux and her kidney for some reason never grew. So because

she was young we chose to have the surgery. She is now almost 22 years old has

had 1 child and another on the way. She does not remember the surgery and has

only had 1 bad kidney infection since then. She no longer has reflux in the

good kidney and her remaining kidney is a hugh momma of one (thats what the

dr.'s say). So I hope that all goes well for you. I know it was a long time ago

but I still remeber it, you have any questions.

judy

mom to wcf 19 1/2 years

Re: (Pylonephritis)/Kidney infections

Thank you for the well wishes. Hannah should be getting out of the hospital

on Monday. She will be on TOBI nebs for 21 more days and on an antibiotic

for her kidney infection for the next two weeks. Then she needs to follow up

with the nephrologist. She needs to have the IVP for the kidneys. They think

she has kidney reflux and it will need to be surgically repaired. They seem

to

think that she has some sort of kidney damage there is an abnormality with

one of her kidney's ....oh well we'll know in a couple of weeks.

Jenna

[Guest guest]

Thank you for the information. I feel much better knowing that. Glad all is

well.

Thanks again!!

Jenna

[Guest guest]

What are the symptoms of kidney reflux? How would you know if a

toddler had it?

Thanks,

Gale

> My daughter Marie non cf had to have a kidney removed when she was

3 1/2 years old. She also had ruflux and her kidney for some reason

never grew. So because she was young we chose to have the surgery.

She is now almost 22 years old has had 1 child and another on the

way. She does not remember the surgery and has only had 1 bad kidney

infection since then. She no longer has reflux in the good kidney

and her remaining kidney is a hugh momma of one (thats what the dr.'s

say). So I hope that all goes well for you. I know it was a long

time ago but I still remeber it, you have any questions.

> judy

> mom to wcf 19 1/2 years

> Re: (Pylonephritis)/Kidney infections

>

>

> Thank you for the well wishes. Hannah should be getting out of

the hospital

> on Monday. She will be on TOBI nebs for 21 more days and on an

antibiotic

> for her kidney infection for the next two weeks. Then she needs

to follow up

> with the nephrologist. She needs to have the IVP for the

kidneys. They think

> she has kidney reflux and it will need to be surgically

repaired. They seem to

> think that she has some sort of kidney damage there is an

abnormality with

> one of her kidney's ....oh well we'll know in a couple of weeks.

>

> Jenna

>

>

>

[Guest guest]

we didn't know about any of the biggest problem, except that the infection never

went away. She was 3 when it started happening and we didn't know anything

except that she had a urniary infection. So we did the dye in the kidneys and

they put a tube up into the bladder, when that filled up it went up the utheha's

into the kidneys its not suppossed to do that. The dye went straight to the

kidenys, and we could see that one was only the size of a walnut and the other

was a good size. They didn't know what caused that one to be small as she had

no injuries or infections. We decided to have the surgery because we didn't

want her on antibactics until a teenager, the med's would never reach the bad

kidney anyway and then they wanted to do surgery. I knew she would never

forgive us for waiting until she was a teenager to have surgery. And I am glad

we did as she remembers nothing and like I said she is very healthy today.

Let me know what you find out.

judy

Re: (Pylonephritis)/Kidney infections

>

>

> Thank you for the well wishes. Hannah should be getting out of

the hospital

> on Monday. She will be on TOBI nebs for 21 more days and on an

antibiotic

> for her kidney infection for the next two weeks. Then she needs

to follow up

> with the nephrologist. She needs to have the IVP for the

kidneys. They think

> she has kidney reflux and it will need to be surgically

repaired. They seem to

> think that she has some sort of kidney damage there is an

abnormality with

> one of her kidney's ....oh well we'll know in a couple of weeks.

>

> Jenna

>

>

>