Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Welcome Oya, How old is your relative with CF, and what amounts of A and E did the new doctor prescribe for her? I'm curious what they do in other countries, especially Lebanon because it's not a country we hear from much. Does your relatives doctor regularly check vitamin levels? Not all CF doctors in the US check vitamin levels. CF care varies from center to center, and often doctors at the same center do things differently. Most people with CF are low in A and E, but not all are. I know two of teens with CF that have always had high A levels. When my son was diagnosed at age 4, right away his doctor prescribed 400 IU of water-soluble E and 10,000 IU water-soluble A. Around age 9 or 10, the doctor increased the A to 25,000 IU, but the E has stayed the same. My son is now 24; he still takes 400 IU of E and about 30,000 IU of A. He doesn't take ADEKs because he'd have to chew about 8 tablets to get the amount of A he needs. Also, we are fortunate that we have access to more complete multivitamin/mineral tablets. It's important that your relative take A and E that is labeled " water soluble " or " dry. " The doctor is correct that A and E are very important antioxidants, but your relative should also look at other very important antioxidants that are commonly low in people with CF, such as vitamin C, coenzyme Q10, selenium, and glutathione. A good magnesium supplement (such as magnesium glycinate) helps retain the antioxidant levels in the body. And magnesium is absolutely necessary for keeping calcium in the bones to prevent osteoporosis. When you don't have enough magnesium, then calcium leaves the bones and goes to the cells, which creates inflammation. People with Cf have too much calcium in their cells. People who are low in magnesium have lower lung function scores, and people with asthma are low in magnesium. There is a lot of research showing the importance of antioxidants for controlling lung damage. In the US, this is an area that the CF Foundation is only now slowly beginning to look at. Kim Mom of (24 with CF and asthma) and (20 1/2 asthma no CF) > Hello to you all, > I was just wondering if anyone know of a terrible > importance of the vitamin A & /or E to CF. > I have a relative wcf, and recently her new dr. > increased tremendously the dose of her vitamin A /E > saying that this iwll help tremendoulsy. If anyone > know anything aboyut this subject please tell me. > thanks > Oya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Before Dylan's sinus surgery they always give them a shot ok K....because they have CF. Rosemary in NY with 3 children (12, 10 and 6) with CF. I have a dog named TOBI and coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
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