Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Marie-Pia Sorry to hear that Coralie is having a time of it. I have never had the tremors but I think where others have. Was she on the pred. when the tremors occurred? Maybe the tremors are from going off the pred. Is she flaring now? Gosh I am asking too many questions and suppose to be answering yours. I will be sending good thoughts and prayers yours and Coralie's way. Lots of love Glenda heidi, That's so true. It's really hard here, in France to find good drs. The most of them doesn't accept you know more about RP than the drs. . Ihave a question for you and all the group . Since 2 or 3 flares Coralie have tremor specially in her arms and legs now. Even without any medications. Iwas a bite scary yesterday and i could have her dr. on phone .So i gave her pred. 50m/day She has been suffering since 3 days and wasn't able to go to school. Have you some information about tremor and RP. TH. Marie-pia ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Hello Marie-Pia, I had the tremors fairly badly, for about the last two weeks, although my prednisone was still pretty high, it hasn't been dropped below 40 yet. The tremors seem to have gone away, but my prednisone level has not changed, so I think it may have been due to the flare, but I am only guessing. I had it in my arms and hands the most, to the point that I would spill from a glass as I was drinking. I'm sorry to hear Coralie is struggling. Take care of yourselves! .. > Ihave a question for you and all the group . > Since 2 or 3 flares Coralie have tremor specially in her arms and legs now. > Even without any medications. > Iwas a bite scary yesterday and i could have her dr. on phone > .So i gave her pred. 50m/day > She has been suffering since 3 days and wasn't able to go to school. > Have you some information about tremor and RP. > TH. > Marie-pia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Marie-Pia, you and your children give us all hope. Coralie is so brave as are your sons. Thank you for keeping us inspired. Don't ever stop posting because of your english. You are teaching me a little French and I love to hear from you. Give all your children a hug for me and I hope Coralie is having better days. Take care of YOU too. love & hugs Quote Link to comment Share on other sites More sharing options...
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