Re: Everyone is so helpful/Rosemary

[Guest guest]

Thanks for the humorous and truthful advise. I have already had one

friend say " you can't tell me he is not healthy " . Like I am just

making this stuff up. Anyway, I am adjusting and I hope some of

our " friends " come around soon.

Sara - mommy to Zach 17 months

> Sara---

>

> Some tips for the parents of the newly diagnosed ...

>

> 1. Put everyone in your phonebook in pencil

> 2. When people tilt their head to the side as you speak -

RUN

> 3. If someone touches your arm as you talk....its bad!

> 4. Learn to ignore the comments " Oh, it she/he sick? " -

the coughing

> and other comments about your child being out and interacting with

others!

> 5. Get used to " Maybe they made a mistake, they look so

GOOD "

>

>

> OK, so some are a tad sarcastic. I still have friends who look at

my kids

> like they should have growths on their heads! They are shocked

that they look

> NORMAL.........

>

>

> Rosemary in NY with 3 children (13, 10 and 6)

> with CF. I have a dog named TOBI and

> coined the phrase " BREATHE DAMMIT "

>

>

>