Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 The fact that both my husband and I were equally " at fault " (I can't think of a way to put it, but you know what I mean) for " giving " our child CF probably saved our relationship. It would have been soooo much harder bearing the brunt of responsibility alone. I'm sorry has CF, but I am glad we are both the carriers who passed it on...along, I hope, with some GOOD traits, too! Lenora >If only one parent could, by being a carrier, give this to the kids, I would >have had to tell MY kids that they were adopted (which they were not!) >As one who posted said, it is hard to be even half of the culprit here, >and it is sad that some family members cannot understand that we ALL >carry the most amazing good and bad genes. I know this same type of >denial and avoidance goes on in families with schizophrenia, bi-polar >disorder, etc., and all other serious genetically conveyed illnesses. >Love to all at cfparents, >n Rojas, who is lucky--no denial anywhere in our clan, thank heavens! I >would have a hard time with this anyway, having cf and having a child >wcf--just string me up! But no one has! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 Very well put, Lenora! I too am glad that I don't have to share the burden alone, although Mark is the kind of guy that never would have blamed me anyway, and vice versa. But, I have a guilty conscience easily (never would have made a good criminal!), and probably would have had a harder time with it. You know, I still have that letter you wrote me a few years ago, by the way! LOL And I wrote back, too, but found that letter--thought I sent it, but I guess not. Perfect example of my guilty conscience--I feel terrible I forgot to send it! LOL S., mom to Cody (7, pwcf), DJ (9, nocf), and a (14, nocf) Re: Following the logic here. . . > The fact that both my husband and I were equally " at fault " (I can't > think of a way to put it, but you know what I mean) for " giving " our > child CF probably saved our relationship. > It would have been soooo much harder bearing the brunt of responsibility alone. > I'm sorry has CF, but I am glad we are both the carriers who > passed it on...along, I hope, with some GOOD traits, too! > Lenora > > >If only one parent could, by being a carrier, give this to the kids, I would > >have had to tell MY kids that they were adopted (which they were not!) > >As one who posted said, it is hard to be even half of the culprit here, > >and it is sad that some family members cannot understand that we ALL > >carry the most amazing good and bad genes. I know this same type of > >denial and avoidance goes on in families with schizophrenia, bi-polar > >disorder, etc., and all other serious genetically conveyed illnesses. > >Love to all at cfparents, > >n Rojas, who is lucky--no denial anywhere in our clan, thank heavens! I > >would have a hard time with this anyway, having cf and having a child > >wcf--just string me up! But no one has! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 SSSSOOOOOO sorry about that, Lenora!! I feel even more guilty now! :-D S., mom to Cody (7, pwcf), DJ (9, nocf), and a (14, nocf) Re: Following the logic here. . . > > > > > >> The fact that both my husband and I were equally " at fault " (I can't > >> think of a way to put it, but you know what I mean) for " giving " our > >> child CF probably saved our relationship. > >> It would have been soooo much harder bearing the brunt of responsibility > >alone. > >> I'm sorry has CF, but I am glad we are both the carriers who > >> passed it on...along, I hope, with some GOOD traits, too! > >> Lenora > >> > >> >If only one parent could, by being a carrier, give this to the kids, I > >would > >> >have had to tell MY kids that they were adopted (which they were not!) > >> >As one who posted said, it is hard to be even half of the culprit here, > >> >and it is sad that some family members cannot understand that we ALL > >> >carry the most amazing good and bad genes. I know this same type of > >> >denial and avoidance goes on in families with schizophrenia, bi-polar > >> >disorder, etc., and all other serious genetically conveyed illnesses. > >> >Love to all at cfparents, > >> >n Rojas, who is lucky--no denial anywhere in our clan, thank > >heavens! I > >> >would have a hard time with this anyway, having cf and having a child > >> >wcf--just string me up! But no one has! > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 You'd better send me that letter, young lady! I have been unable to sleep all these years waiting on your reply!!! Lenora > well put, Lenora! I too am glad that I don't have to share the >burden alone, although Mark is the kind of guy that never would have blamed >me anyway, and vice versa. But, I have a guilty conscience easily (never >would have made a good criminal!), and probably would have had a harder time >with it. > >You know, I still have that letter you wrote me a few years ago, by the way! >LOL And I wrote back, too, but found that letter--thought I sent it, but I >guess not. Perfect example of my guilty conscience--I feel terrible I >forgot to send it! LOL > > S., mom to Cody (7, pwcf), DJ (9, nocf), and a (14, nocf) > > Re: Following the logic here. . . > > >> The fact that both my husband and I were equally " at fault " (I can't >> think of a way to put it, but you know what I mean) for " giving " our >> child CF probably saved our relationship. >> It would have been soooo much harder bearing the brunt of responsibility >alone. >> I'm sorry has CF, but I am glad we are both the carriers who >> passed it on...along, I hope, with some GOOD traits, too! >> Lenora >> >> >If only one parent could, by being a carrier, give this to the kids, I >would >> >have had to tell MY kids that they were adopted (which they were not!) >> >As one who posted said, it is hard to be even half of the culprit here, >> >and it is sad that some family members cannot understand that we ALL >> >carry the most amazing good and bad genes. I know this same type of >> >denial and avoidance goes on in families with schizophrenia, bi-polar >> >disorder, etc., and all other serious genetically conveyed illnesses. >> >Love to all at cfparents, >> >n Rojas, who is lucky--no denial anywhere in our clan, thank >heavens! I >> >would have a hard time with this anyway, having cf and having a child >> >wcf--just string me up! But no one has! >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
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