sons plagio is looking worse!

January 25, 2009

my son, joey will be 5 months on friday, he was diagnosed 1/12/09 with

plagio, i have notice that is head is not getting better at all, he is

on him non- flat spot like 95% of the day, he sleeps on his belly (i

know its bad, but thats the ONLY way he will sleep)and dose a lot of

tummy time, when my son was diagnosed the doctor said to try repoing

and we will have him come back in a month, he has a appt agine on the

16th of feb, but last night i noticed his head is getting flater on his

right side and his ears are more misaligned, one eye looks bigger then

the other and his metopic suture( more of it stucks out more now). i

dont know what to do, my husband got fired so we no longer have

insurance and i am really stressing out cause i dont want my sons head

to get worse, i am really starting to think that joeyis going to be

banded but have no way of paying for it. my mother in law that is a

nurse asked me today if i wanted to sign over custody to them so he

will have insurance, what do u all think? oh and me and my hubby get

custody back when we get insurance. oh i will put pics up later today

thanks, kara

mommy to joey 5 months, mybe needing a band!

January 25, 2009

Hi, sorry to hear it is getting worse, and also that your husband has

lost his job. If your husband is laid off can you get

medicare/medicaid from the state (I forget which is for seniors vs

families)? By " sign over " to your in-laws do you mean adoption? This

sounds really dangerous since there is no way to guarantee that they

would give you back custody - just too big a risk even if they seem

like normal people.

Also has your son been checked for craniosystosis? Since you mention

the sutures, I wondered. Usually the head is misshapen, but the suture

doesn't usually show with plagio - although there are many different

shapes, so it could just be plagio. I know the economy isn't good but

hope your husband gets a again job soon.

>

> my son, joey will be 5 months on friday, he was diagnosed 1/12/09 with

> plagio, i have notice that is head is not getting better at all, he is

> on him non- flat spot like 95% of the day, he sleeps on his belly (i

> know its bad, but thats the ONLY way he will sleep)and dose a lot of

> tummy time, when my son was diagnosed the doctor said to try repoing

> and we will have him come back in a month, he has a appt agine on the

> 16th of feb, but last night i noticed his head is getting flater on his

> right side and his ears are more misaligned, one eye looks bigger then

> the other and his metopic suture( more of it stucks out more now). i

> dont know what to do, my husband got fired so we no longer have

> insurance and i am really stressing out cause i dont want my sons head

> to get worse, i am really starting to think that joeyis going to be

> banded but have no way of paying for it. my mother in law that is a

> nurse asked me today if i wanted to sign over custody to them so he

> will have insurance, what do u all think? oh and me and my hubby get

> custody back when we get insurance. oh i will put pics up later today

>

> thanks, kara

> mommy to joey 5 months, mybe needing a band!

>

January 25, 2009

I agree with a. I would definitely not want to sign over rights. Are your inlaws in the position to help pay for the band? I would check into your states medicade. Also maybe someone in the group can share some of their fundraising tips and if anyone found any organizations that will help pay for the band.

Many places will do free evaluations. What area are you in? Maybe someone in the group can give you some recommendations.

Angie

Re: sons plagio is looking worse!

Hi, sorry to hear it is getting worse, and also that your husband haslost his job. If your husband is laid off can you getmedicare/medicaid from the state (I forget which is for seniors vsfamilies)? By "sign over" to your in-laws do you mean adoption? Thissounds really dangerous since there is no way to guarantee that theywould give you back custody - just too big a risk even if they seemlike normal people. Also has your son been checked for craniosystosis? Since you mentionthe sutures, I wondered. Usually the head is misshapen, but the suturedoesn't usually show with plagio - although there are many differentshapes, so it could just be plagio. I know the economy isn't good buthope your husband gets a again job soon. >> my son, joey will be 5 months on friday, he was diagnosed 1/12/09 with > plagio, i have notice that is head is not getting better at all, he is > on him non- flat spot like 95% of the day, he sleeps on his belly (i > know its bad, but thats the ONLY way he will sleep)and dose a lot of > tummy time, when my son was diagnosed the doctor said to try repoing > and we will have him come back in a month, he has a appt agine on the > 16th of feb, but last night i noticed his head is getting flater on his > right side and his ears are more misaligned, one eye looks bigger then > the other and his metopic suture( more of it stucks out more now). i > dont know what to do, my husband got fired so we no longer have > insurance and i am really stressing out cause i dont want my sons head > to get worse, i am really starting to think that joeyis going to be > banded but have no way of paying for it. my mother in law that is a > nurse asked me today if i wanted to sign over custody to them so he > will have insurance, what do u all think? oh and me and my hubby get > custody back when we get insurance. oh i will put pics up later today> > thanks, kara> mommy to joey 5 months, mybe needing a band!>

January 25, 2009

Where are you located? Do you have a Cranial Tech near you? They will do a free evaluation to see if a band is needed and will also tell you the severity and do a photo study of his head.

Also, before signing over custody make sure that your MIL ins. even covers a band. It is an exclusion for alot of policies so make sure that is even a possibly before going thru all of that!

Jen and Luli - 3 years old

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/