new to the group

[Guest guest]

Hello all,

I just wanted to take a moment to introduce myself. My name is

lynda Longoria-Sharp. I am a 25 yr. old married female with a 17

month old son. I am a pancreatits survivor.

I recently went online trying to look up any information that I

could on Pancreatitis.

I had surgery last January at St. Marks Hospital in Salt Lake City. I

spent a total of 13 weeks in the hospital, had 1/3 of my pancreas

removed, a pseudocyst, and of course my gallbladder that had started

this whole ordeal. Oh and 15 gallstone removed from my common bile

duct. I was told initially that my stones were only pebbles and of

course let it get that bad without realizing it. Also, I had an ERCP

and a total of 13 CT scans while hospitalized.

When I was admitted to St. Marks from what I was told by my two

specialist my levels were at 70,000.( I have seen my medical records

and saw the recorded 30,000 ) My first 3 & 1/2 weeks of

hospitalization I was in a drug induced state and incoherent. I had

the whole high fever of 104/105, heart rate was usually around 170,

high blood pressure, ect. I went from ICU eventually stepping down to

a regular floor. I had endured the NG tube draining my stomach from

bile, being fed by TPN, eventually graduating to a tube feeding in my

duodenum, and various pick lines. I came home with a T-tube draining

my liver and was blessed with an abundance of medications for a few

weeks. It is a horrible story that I would not wish upon my worst

enemy.

Anyhow, not too long after I was released and sent home in Feb my

body started to feel all sorts of aches and pains. Some very similar

to what I felt during my stay at St Marks. I was constantly reassured

that my body was now different from the torture I had underwent.

I had another CT scan done in the middle of December and since have

had an ultrasound of my liver. So far everything seems to be ok. I

since have started going to the Dr. on a regular basis so my

lipase/amylase levels can be monitored. On a recent emergency room

trip doubled over in pain my levels were not a frightening high but

still made the ER physician worrisome. In the wee hours of December

22nd my lipase was 322, then on that Tues. the 23d it was 387. As of

last Monday the 5th, a little over a week ago it was 498.

I have been complaining about pain that has been doubling over,

causing me to not eat or drink because the pain worsens, nausea, and

a few times having vomited. I understand my levels aren't at an all

time high. However, I am worried that this will progressively worsen.

Is there anyone out there that can give me some comfort or possibly

have a similar situation?

Well thank you all for taking the time to listen to my whining I

appreciate it.

Sincerely,

lyn