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Dear Sue,

So cool!!! Another pancreatitis link! I haven't seen this one

before, and it's always interesting to see new information to refer

to. More information to add to my already huge folder about

chronic pancreatitis.

Thanks for sending it to us.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for consultation with a medical

professional.

Sue wrote:

> You can find information of the web site of The Royal Liverpool

University Hospital.

http://www.liv.ac.uk/surgery/about.html

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  • 4 weeks later...

HI; I have been wondering what has been going on with you. How's

work?! I certainly to hope all is well. You see, you give me a

goal. I was in the hospital last week, awful time of it. Well as

things do turn, I will need a total pancreatecetomy with islet

tansplant. The doc mentioned my going to Cincinati Ohio.

I am wondering around my house with a peg tube and a kangaroo pump.

This thing hurts more then anything else I have ever had. The did

an ercp and put in a stent from head to tail, and I dont think my

panc is to pleased about the intrusion. I see the doc tomorrow so

hopefull I will have all the answers I need.

Maybe your BS will stabilise once you have fully gotten back to the

things at work. Your going to have to give yourself more then a

couple of weeks to get back at the top of your game.

Thanks for the thoughts, Sue. I am still overwhelemed and so very

tired that my mind isn't exactly fully functional. I am just

focusing on getting up and around.

Chrissy

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  • 2 weeks later...

Thank you so much for your concern and support. I am not doing so

hot. I beleive the stent is beginning to clog up because the pain

has come back. The last couple of days it has been increasing with

the nausea as well. I'm just giong to hang on as long as I can

until I can get this surgery rolling. I have an appt in Cincy on

the 3rd and I do beleive that I will be flying with angel flight. I

am very happy for that and excited as well.

Fliss has told me what a power house you are. Bravo! YOu inspire

me. How is work going? I lasted 3 weeks and collasped in pain. It

was a friday anfternoon and I kept telling myself, just a few more

hours until the weekend and rest. But I couldn't take it. Good

thing though because I ended up being one sick girl.

I am so glad that you are doing so well; that gives me a great deal

of hope.

With all my love,

Chrissy

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  • 4 weeks later...
Guest guest

Hi Sue !

I feel like I have been a nurse forever, (or at least since 1975 seems like

forever ! ). I actually don't mind it at all, I just miss those days that I

use to work in the hospital. I felt like I was able to contribute soo much more

then. I miss my neurosurgery days and my ortho patients, but then I fell in love

and moved back to my home town . I actually have a wonderful husband so I can't

complain. It is just that our town has limited interesting medicine to practice.

Presently I have been working as a RN, Certified Case Manager, Disability

Specialist. I am credentialed in that as well. How ironic is that ? I think

God must of had a plan for me when I got sick. ( Still trying to figure that

one out !). It was pretty pathetic when I got sick with all of this GI stuff, my

doc had no clue what to do, nor did my employer. I co-ordinated my own treatment

plan, set up my own referrals and investigated every avenue to death before I

found Dr. Lehman in Indy. Once I found him and saw him, the other docs followed

his recommnedations and I slowly started getting better. It was a 5 month

stuggle of losing almost 55 pounds not by choice. Boy was I sick. If I wasn't as

persistant as I am, I truely think I would of died. They just don't make doctors

like they use to. But enough re-hashing of that. My point is that as a patient I

find that you have to pursue everything possible on your own., cause no one else

will take care of you like yourself. And I encourage my patients to do the same.

I am a strong patient advocate and educate my patients as much as I can so they

can go to the doctor and get answers to their questions. I work for the state

helping the disabled. I am thankful that I have a good job. But if I had my

health back, I would love to do hospital nursing again !!

I am so happy that you are able to work as well. I have good days and bad days

and some days I just can't go to work. but I have to pace myself, watch my diet

and activity if I want to stay employed. But then with SOD and possible

pancreatitis, anything can happen. My grandmother also died of pancreatic

cancer, so i am always listening to my body. I have my annual CT in May. I dread

that test as that chalk thaey make you drink makes me sick. YUK !

Here is hoping that you are having a great day. How is the weather in the UK ?

We had almost 4-6 inches of snow today, kids had a snow day from school. Is it

cold there ?

Lily from Ohio

Re: to Tammy from Lily

>

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> Lily wrote:

> >

> Heidi says:

>

> Geez, they must have been taking students in diapers at the

> school you went to!

>

> :-)

>

>

>

>

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>

>

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>

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