Re: intestinal twisting to

[Guest guest]

,

While reading through the messages from yesterday I saw your

comment about the " twisting " feeling in the intestines that you

asked about. I have this problem often enough to know what you

are trying to describe.

This, on top of the pancreas discomfort, definetely makes things

confusing. I had a colonoscopy last year and the report noted

that I had an extremely contorted, twisted and redundant

intestine. This apparently is not a medical problem, but it does

cause intestinal discomfort sometimes. Being as skinny as I

am now, there are times when I can lie flat on my back and

actually see the movement of matter working it's way through the

upper intestines - they actually buldge and roll around

underneath my skin, and make a tremendous noise when they

are doing this. The noise itself is embarrasing enough, an

amplified version of the sound you hear when someone says

they can " hear your stomach growling " ......except it's not my

stomach they're hearing!!!

Yet this, as with anything else that continues and concerns you,

is something you need to discuss with your doctor. Your

physician may want to order a colonoscopy just as a matter of

routine. Many of us with CP have had them as part of our

physicians' routine gastrointestinal checkups.

BTW, I also have internal hemorroids as a result of the earlier

times of continual diarrhea/constipation with malabsorption.

When they were inflamed they would cause the horrible feeling

of pressure and burning that you were also inquiring about. I

had difficulty with this for a coule of years until my Gi finally

started me on intermittant treatment with Miralax. That

fortunately, has allieviated all of these problems.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

wrote:

>>But had to ask in case it has anything to do with intestinal

problems on top of everything....speaking of that.....does anyone

ever get a sort of " twisting " in their intestines?? I've had that

and it is very uncomfortable as well.

[Guest guest]

I wrote:

I had difficulty with this for a couple of years until my Gi finally

started me on intermittant treatment with Miralax. That

fortunately, has allieviated all of these problems.

What I meant to say that the Miralax has allieviated the

constipation/diarrhea, hemorroid/burning problems....it has NOT

had any effect on the intestinal twisting and noises, that is pretty

much a constant problem. You should hear me now...haha, it's

so loud that it would wake my husband (and has) out of a sound

sleep! I notice it most about eight or more hours after eating.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

>

>

> wrote:

> >>But had to ask in case it has anything to do with intestinal

> problems on top of everything....speaking of that.....does

anyone

> ever get a sort of " twisting " in their intestines?? I've had that

> and it is very uncomfortable as well.

[Guest guest]

Thanks Heidi, I appreciated all of this info. And nice to know I'm

not alone with this......very odd isn't it?? Right now, I'm

extremely constipated (a BAD day yesterday that landed me in the

ER). That's a whole other story because Docs there were clueless.

thanks Heidi

> >>But had to ask in case it has anything to do with intestinal

> problems on top of everything....speaking of that.....does anyone

> ever get a sort of " twisting " in their intestines?? I've had that

> and it is very uncomfortable as well.