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,

Glad to hear you had a good trip. Wheelchairs can be a

lifesaver when you are traveling.

Let us know how your sister's Doc appoinment goes.

Sandy

Hello everyone!I just got caught up on the posts, since I went to Tennessee on Thursday, for our niece's wedding. This was my first traveling that I've done and I was fairly apprehensive about it, due to my energy and pain levels.We did a smart thing and used wheelchairs to get through security and did the pre-boarding, so I didn't have to stand in lines. It really saved my energy and I think, made the trip a success!It was a great practice run for Kauai on the 13th of this month.I do feel as though the medications (expecially the Methotrexate) are really having a chance to kick in. My symptoms are still here, and act up, but it's much better than it was for the last three months!My sister has an appt. with Dr. Buckner on Tuesday, right before my appt., to be screened for RP. She has something similar, if it's not RP, so it will be nice to have her assessed.My thoughts are with all of you who are struggling and hurting right now. We face so much, but we are so strong! We are really amazing people! Take care of yourselves and have a wonderful day!DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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  • 2 years later...
Guest guest

I am new at this, just found this website but have has this disease,

chronic pancreatitis for 4 years. Just was looking for people I

could talk with or e mail that would understand what it is like,

unfortunately that would mean you would be almost just like me. I am

truly sorry that anyone suffers with these diseases but like I said I

am just trying to connect with others that I could talk to and with

their help maybe, you never know I could help them to with my

experience.

God Bless everyone out there and I really hope to hear from someone

soon. Thank you for listening and take care and be safe.

Patti

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