Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 , We're glad you found us, too. Your husband's been through a mystifying and frightening experience so far, and I'm glad that you're reaching out and trying to find some answers about his situation. While I'm not prepared or experienced enough to answer all of your questions, I may be able to speculate on a few, and I'm sure that some of our other members will have some valuable imput as well. The doctors are probably going to suggest an ERCP to look more closely at his ducts to find out what the problem is. This procedure is the gold standard for this type of problem. I'll type in a web address at the end of my post to tell you where you can read about this procedure. While the ERCP is an excellent diagnostic tool for looking at the ducts, one needs to be aware and advised of it's potential to cause another pancreatitis attack. The ERCP is the 7th cause of pancreatitis. Even with this drawback, it's often the only solution available to look inside the abdomen. I would imagine that they won't be ready to release him until all his levels are normal and stabilized, all signs of inflamation have ceased, and they know what brought on this attack to start with. It sounds as though his high triglycerides may have been an instigator, but they'll probably want more confirmation that this was the cause. As far as how long it will take for him to recover, and what his status will be once he has recovered, that's such an individual process that I can't begin to give you an answer. Hospitalization takes a heavy toll on one's system, and specifically hospitalization where a person's been in Intensive Care and undergone several diagnostic procedures while there. The general rule of thumb says that for every day a person is hospitalized, add a week of recovery, and I can say, in my personal experiences, that's been quite accurate. For my hospitalization when I was in intensive care and on the floor a total of 5 days, it took 5 weeks before I was really feeling normal again. The last time was an attack with a hospitalization of 4 days, which took me 6 weeks to fully recover. But, I'm 52 and haven't been in the best of health because of the toll of my CP. Your husband is very young and I imagine was very active, so I'd presume that his recovery time would be much quicker. This is a situation that you really just have to take day by day. Make sure that you have good specialists that you have total confidence in and that are aggressively pursuing the cause of his attack. I must admit that I'm astounded at the amount of damage that was found. Didn't your husband have any warning signs or symptoms of digestive problems? Has he had problems with eating or pain or fatigue before this happened? It's bizarre that this much necrosis and damage could have taken place without some warning signs beforehand. I hope my reply helps you in some form. I know I wasn't able to completely answer your questions, but you need to understand that each case is very individual and it's hard for anyone to be precise with their answers in this regard. I know this must be a very frightening experience for both of you, and that you must have a million questions. Please don't hesitate to ask any of them, and ask the doctors, as well. We'll do our best to help you put your fears at rest and try to find answers that will help you through this with some degree of understanding and knowledge. I have over 50 folders of medical articles and information about pancreatitis and all it's related topics, surgery, pseudocysts, necrosis, diets, medicines, antioxidants, treatments, etc. Feel free to write to me offline if there is anything that you might specifically like to look at. If you give me the go-ahead, I can send a few more specific ones that relate directly to your husband's problems. Go to this website and click on the subject titled " Procedures " , it should tell you everything about ERCP's. It's also excellent for answers to many other questions about pancreatitis and its related subjects. www.top5plus5.com/ With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI, Intl. Note: All comments or advice are personal opinion only, and should never be substituted for consultation with a medical professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Thank you so much to everyone for your insights on this disease. My husband is actually going to be released from the hospital soon, one of the surgoens said he might even go home today! They have to take his staples out, and 2 of his reamaining drainage tubes, he originally had 4. He will still have to meet with a diabetes nurse to control his insulin once at home, since his pancreas hasn't completely woken up yet. The only other thing, aside from his triglcyerides, that the dr's could come up with is that he might have had a congential defect of one of the ducts in the pancreas, but those tests came back negative. I would be ecstatic if he came home today, but I am not holding my breath on it either. He definitely had age on his side throughout this entire ordeal, and I am sure he wouldn't be coming home so soon if he were a little bit older. He has been eating and up and walking around the hospital for a few days now and he just wants to come home, and he wants to see his kids. Again thank you to everyone for your insights, knowledges and help throughout this ordeal. I will continue to check out this board, as I am sure I will need help once he does come home, because we have no clue what we are in for. I forget who asked, but my husband is at Northwestern Hospital in Chicago. They were actually trying to get him into University of Chicago but they didn't have any beds available in ICU at the time, and there were 6 people ahead of him. The dr at the hospital in town decided to try other hospitals because they wanted to get him somewhere as soon as possible, while he was stable, that could handle this problem. Quote Link to comment Share on other sites More sharing options...
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