Guest guest Posted April 16, 2002 Report Share Posted April 16, 2002 Some of you have e-mailed my father, Bob yesterday when he found this support group and he couldn't have found it at a better time. I have been suffering with this disease since November. I finally have been correctlt diagnosed after 3 surguries to my ear, where it initially started. I have been on Predisone fro 2 months, am up to 60 mg a day and have been on Methotrexate fro about a month, however now I am up to 6, 2.5 mg once a week. Still I see no signs of improvement. My pain is still very severe. The disease is now in my left ear, both of my feet, and they have found a spot in my ling and are doing a CT needle biopsy next Monday. I am 30 years old and have thought that I am doing ok with everything. I am hopeful and very thankful that I have a wonderful family that has been so supportive. But I am very thankful that God has seen fit that I have found someone, anyone, many that can understand what I am going through and maybe give me some answers that no one but a RP suffer can have. I am not flare free-and the pain, it is so overwhelming. I don't know when or if it will go away. I have just been through so much and i don't know what lies ahead. How long does it take the med to work? Is there anything I can do to prevent a flare up? Am I going to be able to lead a normal life? Will I be able to work again? I have so many qustions, but wnough for the first e-mail. I guess I opened up enough. Thanks for your time- Mchelle in Shreveport, Louisiana suffering from RP _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.