Marissa

[Guest guest]

Hi Marissa:

First congrats. on your pregnancy. What a happy miracle! But I also feel your

frustration about what your doctor said.

I have been told almost the exact same thing several times. Yet, when I go back

to the doctor at s Hopkins who originally dx me with cp, he told me to

ignore these people, that he's the only one who has been inside my duct (ERCP)

and has seen what's going on in there. So, despite several doctors telling me

that I don't have cp, I have to go with him, as well as knowing how I feel.

I might not be (well, definitely am not) an expert in cp, but I have monitored

and journaled enough to know my body, and how I feel. I do believe that I have

something additional (as yet to be dx) going on, since I have extreme pain and

tenderness in my right rib cage, that a couple of doctors are attributing to

something skeletal or muscular. In fact I had a bone scan last week, there was

unusual activity in my right scapula then when they did a follow up CT Scan and

X-Ray, that radiologist found nothing. I don't know if there is anyone out

there (Mark???) who knows much about bone scans, and what causes unusual uptake.

But the last bone scan I had done in '01 showed nothing, and so it just seems

strange that this one would show activity that the radiologist was concerned

enough to suggest a follow up CT and X-Ray.

If there is anything I really understand now, it's that noone is going to take

care of your health except you. And my husband and I will keep going to doctor

after doctor, until we are comfortable that we have followed up every avenue.

Though my pain is also being well controlled, I don't relish the thought of

being on medications for the rest of my life. I feel a little guilty because I

know I could do much better with my diet, and I read a message from the board

yesterday, where someone had said that his pain is basically a result of his

diet. So, I have to really make up my mind to cut out much more fat, to see if

it helps with my pain.

Anyway, I digress, I just want you to know that you are not alone. That in my

case I had to take what I could from my doctors and leave the rest. I cannot

allow someone's careless words to disturb my wellness. Because my physical

wellness if very dependent on my emotional wellness.

Let me know if there is anything I can do to help!

Hugs for a serene day!

Robin

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