Re: OT: veiled threats (long)

[Guest guest]

Appearances can be deceiving! " Dropped petals " was said with humor:-)

We were all so serious yesterday.

Sorry to be feeding the OT file here but I wanted to make my motives

clear and say I understand and accept the fact I was not invited to

join Open Blooms and have no hard feelings at all.

My main reason for requesting an OB membership was to advise on MCS

(Chemical Sensitivities) and Latex Allergy. The LA requires me to

eliminate a few SCD foods but fortunately, I still have a varied

selection of food. I rarely discuss it here unless someone identifies

as having the problem and seeks help. Obviously in supporting others,

I favor the application of SCD compliance as striving toward using the

most varied menu possible eventually. I do not add illegals to SCD

very often (even after having followed it for six years) 'cause I do

not tolerate the addition of non celiac friendly foods as well as

others who have been on SCD for a long time. Celiac seems like the most

difficult of the gastric diseases to heal. Fortunately the foods I am

unable to have are few and have reasonable equivalents within the SCD

approved lists. Example, using squash where carrots are called for.

Sharing the MCS experience would be a book length quantity of

information. A list owner for SCD shares the illness and has just

alerted me to a new book on the subject. I manipulated my environment

very carefully to lighten the load on my immune system and have had a

fair amount of success. A compromised immune system in my case was

helped by SCD because otherwise I was in constant pain from both

exposures and adverse food reactions.

I can understand how a multi topic list would view how I express myself

on this one as incompatible. But I am cool with that and respect the

right of each list to preserve it's unique character.

I will support anyone with the aforementioned conditions via email if

they require help. My desire to join OB was to give advice on list in

the above matters.

Regarding the " veiled threat " I have seen consequences in cases of

those who made certain alterations to SCD but cannot " order " but only

advise. Some of this advice is based on my own experimental

transgressions which were consistently ultimate failures. If I didn't

suffer discomfort immediately, it always came within two weeks as Jody

cautioned me it might.

>

> >

> > As for recruiting to Open Blooms, be aware that discussions there

> are

> > less circumscribed but any alteration of SCD advocated could lead to

> > dropped petals. :-)

> >

> > Carol F.

>

> My guess is that you were denied membership because of this veiled

> threat.

>

> Your motivation for joining does not appear friendly.

Carol F.

Toronto, celiac, SCD 6 years

[Guest guest]

I too want to let others know that I in no way meant to cause anger in anybody.

It is very very difficult to tell the " tone " of these posts, and it seems like

everyone is SO on edge. It is sad that it is always assumed to be negative by

others. I honestly assumed it to be a joke.

I too in no way want to cause heart ache in any mothers or fathers, trying to

heal their kids here. We all are on a journey, an NONE OF US, know where that

will lead. Unless your Crystal ball works better than mine. LOL! And if that

is the case I want yours! LOL!

It would be stupid for me to assume what path I will be on in a few months let

alone a year. Every since my ENTIRE family has been diagnosed with Celiac

Disease (with exception of LUCKY adopted one), it has just seemed like one thing

or another.

Since tone is hard to " read " ...I will no longer be participating in topics that

may end up controversy and possible " burn bridges " and not build them. I can

not afford having people mad at me, thanks to frustrating misunderstandings no

longer.

Peace, Antoinette (celiac) and entire family with problems (celiac, add, adhd,

autism and hyperekplexia) SCD 2/06

[Guest guest]

Due to the fact that you found it important to post your membership

denial even though you cannot supply an explanation, points to the

idea that you really desire to portray OB in a bad light. Why else

does such an announcement need to be made?

So you can try to sell the line about your desire to help those on

OB, but since this seems so inconsistent with many of your other

posts concerning OB and its listmembers, I am not buying (Please

note the smiley face posted with humor in true Carol fashion.)

>

> >

> > >

> > > As for recruiting to Open Blooms, be aware that discussions

there

> > are

> > > less circumscribed but any alteration of SCD advocated could

lead to

> > > dropped petals. :-)

> > >

> > > Carol F.

> >

> > My guess is that you were denied membership because of this

veiled

> > threat.

> >

> > Your motivation for joining does not appear friendly.

>

> Carol F.

> Toronto, celiac, SCD 6 years

>