Re: Please, take a look / Now it's up to you!

[Guest guest]

That's a good point... As recommends, get a second opinion.

Our insurance only approve a passive, out of the box helmet that I

wouldn't even use on my dog! So, we went with CT and paid out of

pocket.

We have NOT had any " pushy " experiences with CT either so the

decision to use the DOCBand was easy once the difficult decision was

made to band or not. In fact, we really appreciate their patience

with our MANY questions.

Again, please let us know your final decision!

May the force be with you!

Melinda

PS... Regarding Keegan's progress; it's almost 5 weeks and YES we

already see rounding! I am just not as thrilled with the coning that

has yet to be addressed.

I am VERY critical so while others may say that Keegan is much

improved at 5 weeks, I am expecting more from the DOCBand. =/

Hopefully in just a few more weeks!

Then, I am going to pimp Keegan out be a ROUND head model to get back

my $$$$$$. =)

>

> Hi , I also am from San Diego and initially went to CT for our

sons eval.  I advise you to get a second opinion at Scope Orthotics

loacted in Kearny Mesa (not sure if you went to the CT in that

area).  They are right next store to one another.  CT is 8010

Frost Street and Scope is 8008 frost street...same parking lot. 

Anyways my point is that it is good to get a second opinion.  I know

that CT's measurements were higher than Scope's.  Scope uses the

Starscanner.  If you go to scope, I would suggets getting an appt

with Ellie Boomer.  She is very thorough and sets you mind at ease. 

i know that is where Dylans momma goes also.  if you have any

questions, please ask.  My son has been in his Starband coming up on

six weeks.  He was banded at 5 and a half months.  You have time to

make a decision you feel comfortable with. 

>      

>

>

> Re: Please, take a look / Now it's up to you!

>

>

>  

> Hi Leila/Melinda (and group),

>  

> My name is . My daughter, Aryana, was recently evaluated by CT

in San Diego and was also diagnosed with brachycephaly and left

plagiocephaly. Her profile/pictures are nearly identical to Maysa's.

My husband and I have also been struggling as to if she needs to have

the band, or not. On one hand, CT indicated that Aryana's case is

mild to moderate, and yet their 'measurements' indicated that she is

outside the 4th deviation (and according to them and our insurance,

only being outside of the 2nd deviation is required for

treatment/banding) . I question their measurements in that if our

daughter's case is so mild/moderate, then how can she be so far off

the charts? It felt like a sales job and yet we are still left

wondering as to if we should band or not.

>  

> We were told by CT that her condition poses no medical risks, and

were also told that in many cases, many parents of daughters choose

not to band since girls typically have hair, which covers it up.

>  

> I am feeling very much the same reaction as Melinda. I've been

feeling very guilty as a new mom as this is our first child and at

the same time just wanting to give our daughter the best care she

needs. We are scheduled to have our daughter remeasured and will make

a decision based on that (now that we've done our research and feel

better about making an informed decision). I suspect, like Melinda,

that we will decide to band as we too feel that repositioning will

not help with the brachy.

>  

> We were just notified on Friday that our insurance (Health Net)

will cover $2200 of it, which is great.

>  

> I too have been one of the group members who have been reading all

of the postings and learning from you all. This group has been a

great wealth of information. Many thanks!

>  

> As it is likely that we will be banding our daughter very soon, I

look forward to learning even more and gaining support from this

group. Good luck with your decision, Leila. I feel your pain...we're

in the same boat.

>  

> Sincerely,

>

> (mom to Aryana, 5 months 1 week, L Plagio/Brachy - soon to

determine using DOC band)

>  

>  

>