OT: Test comparing GFCF to SCD/Re: OT Staying true to SCD tm

[Guest guest]

Great info... and I do understand how tedious compiling studies

would (will?) be. And a few comments of my own experience to add

before I jump back into " taking care of business " around here (ha ha

ha)...

GFCF has merit to a certain extent... SCD and constipation, yes, a

big issue, but we ended up modifying Joe's diet to add more natural

fiber in yogurt, fruits, and pureed veggies... and yes, we added an

enzyme supplement after a bit, used when flare ups came about... but

as far as probiotics, honestly the yogurt is plenty. I'm a big

believer in modifying diet before adding supplements, thus I've

pureed more fruits and veggies into a " smoothie " of sorts much more

readily than buy supplements (ok, I'm a penny pincher).

Once we modified the diet to Joe's needs... and waited... and

continued epsom salt baths... and increased yogurt over time... NOW,

we have mostly regular stools... oh, and an enema or two along the

way. Yes, the dark circles under Joe's eyes, the rash (fairly

mild), odd stools (or constipation) correspond w/ die off phases and

it's very hard to continue steadfast to SCD when the regression

during these times occurs. However, once the phase is over, Joe is

more responsive and interactive... and more verbal (patient instead

of tantruming). He has ONLY had diarrhea during the flu or seasonal

viral bugs... so with our die-off we don't have diarrhea as a

symptom.

Anyway, we've found that, over time, and hopefully indefinitely, Joe

will heal to the point of returning to enjoying a " regular " diet,

but when I say regular diet... our original diet around here is

fairly natural, emphasizing fruits, veggies, meats,cheeses and nuts

anyway, with grains sparingly, they are not a keystone of our diet.

Ironically, I can pinpoint Joe's downward illness to our lack of

dietary awareness, and a back to back flu (cruise-virus from

Norfolk, antibiotics, and then a less " natural " diet with focusing

on my daughter having uncontrolled seizures at that time, oh, and

college, and a new baby, etc). I cannot blame the vaccination

because as his mother, I should have been more careful about having

a shot given during a timeframe in which he had a weakened immune

system already.... a factor, yes, the blame, no... It's a snowball

effect with Joe... this was a series of events leading up to

digestive illness and regressive autism...

I hope our snowball is melting away in the peaceful, more relaxed,

warm atmosphere and overall sunshine now... The regressions during

die off phases truly suck though... .

-Carol / Froggypeach... no more rambling and procrastination when I

need to catch up today ...

>

> Karyn Seroussi made a study comparing SCD to GFCF a few years ago.

> The control group had children doing GFCF and the experimental

group

> was doing SCD. Unfortunately,many of the parents were not fully

> compliant. I did get a chance to help the worst case outcome from

> that study and the diet of that child was not SCD:too many rules

> were broken. My belief is that we would have gotten a much higher

> success rate if there was better compliance.....

>

> <clipped for responding to Mimi here on pecanbread >

> Mimi's note:

>

> Again,I want to repeat that the child who regressed had

constipation

> and was not doing SCD correctly. Karyn sent the mother to me when

> the regression happened. That mother was feeding her child foods

> that were too advanced for a beginner and foods that contained SCD

> illegal ingredients. The mother just quickly switched to GFCF.

> Morale of the story:if you aren't getting good SCD results,please

> read the website and book again. Ask for help,don't give up on a

> great intervention!! I would have given everything I own to a

doctor

> who would have advised me to do SCD when my kids were young.

>

> Mimi

>