Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Hello all, welcome to the new people on list. Today was Levi's first day of Kindergarten. He was happy to go, and thrilled that he gets to ride a school bus this year. We just had a good visit at clinic recently, so he was all set for the new year. He waved and smiled as he rode away on the bus... Early afternoon I got a call from the cf clinic. It seems that his sputum culture results are in and he cultured pseudo a. for the first time ever. He'll be starting cipro and tobi (first time for both of these antibiotics for him) and the tobi will take about 30 mins to aerosolize twice daily. Since he gets on the bus at 7:07 a.m., and does 30 minutes of the Vest before that, we now will begin morning treatments no later than 6:00 a.m., and that's if he isn't eating breakfast afterwards. So, I try to take all this in stride, after all, he was bound to culture it eventually, the doctor is going to treat it agressively, and at least he won't have to have his first hospital stay yet. When he gets home from his first day (at 4:00 p.m. - mine are the third group of kids on the bus in the morning, third from the last off in the afternoon), I ask how his day went. Well, school was dandy, but (my other two children reported) that there were some " problems " on the bus that the bus driver will be calling me about. Evidently, one hour of confinement each way to and from school is a little much for a VERY active five year old to sit for without interacting (aggressively) with other children. To top it off, Levi develops a 100 degree F fever and terrible headache this evening that Children's Motrin didn't seem to put a dent in. He SCREAMED and cried for about two hours before going to sleep by 8:00. His fever is gone now and he's sleeping, so maybe tomorrow will be a good day. :\ And here I sit on the computer at midnight wondering if sending him to school was just plain stupid. I have homeschooled my children in the past, but was hoping to go back to work this year with all three in school. I've been sending resumes out this week. Levi is soooooooo energetic that I thought it might be a challenge for the Kindergarten teacher, but I didn't think he'd be facing expulsion from the bus by the second day of school. That, combined with the cf issues and his severe peanut allergy make juggling his needs a little sticky, but I thought it could work out. Maybe it was just wishful thinking since I want to get back into the workforce again. Maybe I am just consumed with self-doubt because it's late and it's been a rough day. Hopefully, tomorrow I will see that this is just a little bump in the road on our journey. Today I just kept having the same thought pop into my head - " I just don't want to do this anymore. " Denial in it's grandest form. (Like I have a choice, right??? It's not as if I can just say, " alright then, tomorrow we will all wake up healthy and happy with no worries... " ) I always knew that when the day came that he cultured pseudo, I would tough it out and just take it as part of the cards we're dealt. Now I'm mad at myself for being such a whiner over it. It could be so much worse and I'm thankful it isn't. I hope everyone out there on the list is doing well. Thanks for listening. ~ mommy to 3, 1 with cf Quote Link to comment Share on other sites More sharing options...
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