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Re: Larri

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--- pigger547 wrote:

Good luck at your first rheumy appt! Hope you have a

great one. Welcome aboard and glad you found this

group. I've only been diagnosed for about 7 months,

but know I have had RP for at least two years. Please

let us all know what you find out. Take care, Sharon

> Hi to all

> I am new to the group, just going to my first

> " rheumy " appt tomorrow.

> This is a very scary thing to go through and I am so

> happy to have

> found .

> Anyone wanting to talk is so welcome to email

> me...Larri@...

> I really haven't figured this computer stuff out

> well yet but I am

> trying.

> I am 54 and a nurse if you can believe that ( Since

> I have never

> heard of RP before, but neither have any of the

> other nurses or

> facility doctors I work with either )I work in a

> nursing home doing

> orientations, CPR intstrutor and alot of gloomy

> paperwork.

> I went to the ENT doctor because my primary doctor

> thought she saw a

> growth inside my r ear.While I was in the ENT's

> office my r ear got

> really red and he asked if that happened often and I

> said, " oh, not

> to worry that has been going on for a couple years,

> everyone says

> that is how they can tell my blood pressure is up or

> I am mad " The Dr

> said, " oh I don't think so " do you have blah blah

> blah symptoms and

> of course I did.Joint pain, dizziness, double

> vision, cough, red

> around my throat,off balance,well you know.

> Then tender hearted as Drs can be he wrote on his

> business card, "

> relapsing polychondritis " and said we will look into

> this after you

> take your first course of pred. ( Oh joy )well it

> has been 2 months

> and they just got me my first appt with the rheumy

> for tomorrow.

> sorry to take up all the space but I can be quite a

> talker, lol

> write anytime and I will check back often

> Thanks to for getting me started here

>

>

>

=====

__________________________________________________

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> joyeux noel et bienvenue à vous

> (merry christmas and welcome)

> Marie pia

Thank you Marie pia for the kind words, at least we are all in this

together and I don't feel as lonely

Larri

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