worst clinic visit

[Guest guest]

Yesterday was Dallas' worst clinic visit ever. I know it wasn't

totally bad, but we've kept him really healthy for 2 years ( actually

we've jsut been darn lucky) and it was kind of depressing.

He's lost weight, hasn't grown in height, and his o2 levels were

down. He usually runs at about 98 or 99% and he was at 91. I

know..not bad by alot of cf patients standards..but it sort of seems

like it will be a downward battle.

Does anyone else feel this bad when their cf child goes from healthy

to typical CF case?

the weight I'm not too concerned about. If anyone knows how to put

weight on, it's me! lol

I've started giving him whipping cream in his milk, alot more whole

fat dairy products, fattier cuts of meat, etc. but how do you make a

kid grow?????

I was also told yesterday that once he reaches a 22 " chest and I have

$16,000 US to spend, we can buy him a vest.

I know our insurance company would never cover that. I guess it'll

be another bank loan..but I'm sure it'd be worth it, hearing from all

of you how much you like yours.

Anyways, that's all.

Hope everyone has a happy healthy day!

Carla