Re: Quick Hi

[Guest guest]

Sharyn, well Congratulations !!!! How romantic to be marrying him again. I

wish you both all the happiness in the world.

Yes I saw your birdies. What cuties they are. Isn't it exciting when they

start to talk. We had a yellow necked Macaw.

Sharyn, I wouldn't even worry about the old witch at work. You, your doctor

and all of us know you need the medication and that you are sick. Who would

make this up.?

You get better and I'll be thinking of you on Sat. AND YES it is a BIG

thing.!!! I don't care where it is, a wedding is a very special day.

Sending lots of wedding tears ( I ALWAYS cry at weddings, yes I'm a wimp )

LOl

[Guest guest]

In a message dated 3/7/02 8:36:33 PM Pacific Standard Time,

sharynn@... writes:

<<

If anyone is looking for a very good Rheumy in Northern Florida I

have a good one. >>

Sharyn, where in Northern Florida?

[Guest guest]

Sharyn thanks for the information on the dr. I will pass it along. I know

what you mean about having RP longer then we think. I always thought I had

slept on my ear wrong. LOL Please have your friend go to her doctor and arm

her with all kinds of information. We need to get the awareness out there

and fast.

I hope you have a wonderful weekend. Thanks again for all you do.

hugs

[Guest guest]

Dear Sharyn, I live near Green Bay, WI. have no real great doctors here

either. I'm thinking of checking with the University Hospital in Madison. If

you want to give her my email address please do so...Love, Sue M

[Guest guest]

Hi

His name is and he's with a group of aobut three other

Rheumys. Arthritis and Osteoporosis Center of North Florida. They

are located in the Gainesville area...If you are not sure where that

is..that would be south of ville. I live between

ville and Gainesville. He told me between the doctors he is

associated with I was only the 4th person any of them have ever seen

RP. So at least I know there is more than one in this group who

knows the symptoms and treatment/management.

I'm really upset about my best friend in Sumerset Wis. She is

having problems with her ears just like me. The soonest appt. to a

Rheumy she can get is April 4th, but told her to call her family

doctor and not wait since she's having problems down inside the ear

as well as the outer part.

Would bet a weeks salary she has RP...long story why I would say

this, but I may know others who are walking around and don't have a

clue that they have RP. This is what is so darn scary to me. I

know for a " fact " I've had it at least 6 years due to a big time

flair back then. Didn't go to a doctor because I didn't have health

insurance at the time and thought it was something normal. Guess

all the other symptoms weren't normal either since several doctors I

saw after that paid no attention to it.

Dr. is good...I mean really good. If you need his number

and/or address or if anyone is looking he would be a good one to go

to since he knows exactly what RP is.

Sharyn

> In a message dated 3/7/02 8:36:33 PM Pacific Standard Time,

> sharynn@b... writes:

>

> <<

> If anyone is looking for a very good Rheumy in Northern Florida I

> have a good one. >>

>

> Sharyn, where in Northern Florida?

>

>

[Guest guest]

Thanks Sue

Kathy is as close as a sister to me and there isn't anything I

wouldn't do to help her. Sure would be greate if you would email

her. Just tell her you are from my RP support board. She knows all

about it. Her email address is copycat@.... She goes

by KathyB. Kathy and I have a lot more in common then a lot of

people too. This is one of the main reasons I'm so worried about

her. I'm trying to work on a theroy about RP...not the reason, but

a possible connection. She knows all about it.

Thanks again and any help for her sure would be appreciated

Hugs

Sharyn

> Dear Sharyn, I live near Green Bay, WI. have no real great doctors

here

> either. I'm thinking of checking with the University Hospital in

Madison. If

> you want to give her my email address please do so...Love, Sue M