Re: Introduction - Margaret

[Guest guest]

Welcome Margaret! I am glad that finally has a dx and is now

blossoming. He sounds preciuos.

I live in central USA (Ohio) and have a grand daughter named Abby

wcf. Abby is 19 months old. Abby was diagnosed at 3 months due to

asperation induced pnuemonia. At 6 months, Abby had surgery to

remove one lobe of her lung. She has been doing really well ever

since.

I hope that you enjoy this group. Everyone is supportive and many

are really informative.

Gale

> Hi! My name is Margaret and I'm Mum to who is 4 and has CF,

as well

> as a wicked sense of humour and an answer for everything!! We live

with

> 's dad, Simon, and a cat called in Glasgow, Scotland.

>

> was dx'd last year at the age of 3.5 despite having been

trotted to

> every consultant we could get access to since he was born - asthma,

ENT,

> allergy, etc -. We had an incredibly hard 3.5 years prior to dx so

we had

> mixed emotions when we discovered that he had CF. We were obviously

appalled

> and frightened but were amazed that within days the pale,

exhausted, cranky

> little boy we knew was blossoming into a bright, energetic and

funny little

> person - friends came to visit us in hopsital and were so surprised

to see

> him jumping up and down on the bed when they had hardly ever seen

him run or

> jump around.

>

> We now do physio twice a day, nebuliser and inhaler twice a day,

> antibiotics, vitamins, enzymes and 2-monthly IV which we do at

home.

> has been showing pseudomonas since dx and is now on zithromax -

after a long

> series of discussions with very hesitant Drs. He hates the long line

> insertion and always seems to encounter problems so he will be

getting a

> portacath over the next few months - I will be picking your brains

very soon

> about ports for small people!! 's late dx has obviously taken

a toll

> on his body but at the moment he is happier and healthier than he

has ever

> been - he has sprouted up, is piling on the pounds (favourite

dishes being

> beefburgers and chips and pancakes, bacon and maple syrup!) and

doesn't look

> as though there is anything wrong with him. I am also piling on the

pounds

> and have about a tenth of the energy he has!

>

> I have been a member of Cystic-l mailing list since 's dx and

have

> found it really helpful and made some good friends there - tho

recent flames

> there have prompted me to join this group. I really look forward to

getting

> to know you, learning more about CF and helping other CF parents if

I can.

>

> Best wishes

>

> Margaret - Mum of 4yo wcf

>

>

>