Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 , I watched part of the Montel show today, mainly because I have MS and RP. I agree, we should all drop Montel a line (I'm going to do so right after I'm finished with this e-mail) I think it would be great to get Montel on our side, because when he finds a cause he believes in he gets up on his "soapbox" and SHOUTS about it until the people listen. P.S. Hope everyone is doing well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Thats Great ...... I will email him too!!!! Hopefully he will do something for us. Hope all is well Carol A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Thanks everyone for the support on the Montel e mailing. I think this is a great thing. We just have to keep trying every chance we get. Hey we never know who will be the one to help us. Let's go get 'em!! hugs PS Oh by the way, I emailed him personally and then emailed to the show for ideas. LOL We'll get them one way or the other. I might just keep writing him daily til he finally does see a post. LOL He will put us on the show or help us just to shut us up. LOL We might be sick, but we can make ourselves heard. ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 BRAVO, ! Love, squeek --- RCColloran@... wrote: > > > THE MONTEL WILLIAMS SHOW WEB SITE IS > WWW.MONTELSHOW.COM > > I just happen to watch the Montel show today. It > was about MS. He was SO > mad because doctors weren't informing MS patients > about different treatments > and the drugs weren't being used that showed > promise. He was MAD about the > way doctors treat MS patients. Well, he was mad > about alot of things. LOL > > I could relate to most of what he was saying. He > told about his MS > foundation and how many millions of $ he gives to > research. > > Well...... I had to write and tell him all about RP. > How it is a rare > autoimmune disease and we want awareness out there > too. He can go to a dr > and that dr will have heard of MS. We don't have > that luxury most of the > time. We are MAD too and want something done. He > was begging for > donations. SO I begged for him to help us with the > awareness to the public > and the medical professions. > > If you have time, please send a quick email to him > and BEG him to listen to > us. We need help people and maye one day someont > will listen to us. > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 That is the way to go girl . I will also send a e-mail , I just love Montel ,I beleive he could help the foundation . Come on everybody get busy with those e-mails . Just maybe he will help us out . RCColloran@... wrote: THE MONTEL WILLIAMS SHOW WEB SITE IS WWW.MONTELSHOW.COMI just happen to watch the Montel show today. It was about MS. He was SO mad because doctors weren't informing MS patients about different treatments and the drugs weren't being used that showed promise. He was MAD about the way doctors treat MS patients. Well, he was mad about alot of things. LOL I could relate to most of what he was saying. He told about his MS foundation and how many millions of $ he gives to research. Well...... I had to write and tell him all about RP. How it is a rare autoimmune disease and we want awareness out there too. He can go to a dr and that dr will have heard of MS. We don't have that luxury most of the time. We are MAD too and want something done. He was begging for donations. SO I begged for him to help us with the awareness to the public and the medical professions. If you have time, please send a quick email to him and BEG him to listen to us. We need help people and maye one day someont will listen to us. DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Good for you ! I've been meaning to try to contact him because there are a few docs who are using the antibiotic protocol for MS, too. It sounds like he might be interested. Wasn't it Sharon Stone who recently acknowledged that she has RA? She, too needs to hear the other side :-) .....better get going...dinner's almost ready. I'll give you the run down on my Franco appointment later. Love to you all!!! Connie H > > > THE MONTEL WILLIAMS SHOW WEB SITE IS WWW.MONTELSHOW.COM > > I just happen to watch the Montel show today. It was about MS. He was SO > mad because doctors weren't informing MS patients about different treatments > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Dear , I also watched Montel and got angry. I always liked him, best talk show around because he usually tells it like it is. But, here's a guy with a lot of money and influence and he's in away still getting jerked around. Just because one medication is working for him now doesn't mean it will stay that way. The millions of dollars, instead of research, which I " m not against, should go to people. I always feel like I'm between a " rock and a hard place. " So glad I wasn't angry alone...Love Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi Heidi, glad to hear Don is RP is back in the sleeping mode. I hope you are holding up ok yourself. I agree with you that we should all mark a date and time and starting sending out those e mails directly to all the talk shows and see if we could possibly get some of our members on the talk show and some of the doctors that are in the group on the show to make the public aware and to also help draw attention to the doctors out here what RP is and that would also help a lot of the new members doctors to see that some one really care about us all. Love you and Don I'm always thinking and praying for you all Love Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Can I suggest that everyone in the group pick a date and time to flood Montel's e mail with a letter from the group then do the same thing with Oprah and Sally and Rickie lake then 48 hours then 60 minutes then Primetime, We need to start some where and we need to start ASAP., '' Love Gail Aways Say A Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 In a message dated 4/13/02 10:39:39 AM Pacific Daylight Time, grfm@... writes: << Can I suggest that everyone in the group pick a date and time to flood Montel's e mail with a letter from the group then do the same thing with Oprah and Sally and Rickie lake then 48 hours then 60 minutes then Primetime, We need to start some where and we need to start ASAP., '' Love Gail >> Gail, this is a great idea. We discussed this last week and I really think it will work. We were going to give people time to write their letters and have all the email addresses ready. Just pick a date and I'm sure we will all bombard them. My thought was May, but if anyone wants to do it sooner that's fine with me. Sometimes it's better not to have a letter ready and just speak from the heart. hugs & prayers Clauidia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 In a message dated 4/12/02 7:57:07 PM Pacific Daylight Time, jhache@... writes: << Wasn't it Sharon Stone who recently acknowledged that she has RA? She, too needs to hear the other side :-) >> Connie, I'm not sure about Sharon Stone, but I agree, we need to contact as many celebraties a possible. Someone might care enough to head us in the right direction. Hope you are doing okay. When is your Dr. Franco trip? Catch me up... hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 In a message dated 4/12/02 6:27:08 PM Pacific Daylight Time, gabbyoreo@... writes: << because when he finds a cause he believes in he gets up on his " soapbox " and SHOUTS about it until the people listen. >> , I couldn't agree with you more. Gosh girl, haven't heard from you in ages. How are you doing? I miss your posts. Please update us. Hope the MS and RP are behaving themselves. I hope you told Montel about both of your diseases. Post again soon. sending lots of hugs your way, claudia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 In a message dated 4/12/02 5:51:32 PM Pacific Daylight Time, sherry_24230_2000@... writes: << That is the way to go girl . I will also send a e-mail , I just love Montel ,I beleive he could help the foundation . Come on everybody get busy with those e-mails . Just maybe he will help us out . RCColloran@... wrote: >> Sherry, thanks. I still have one question for you. How is Shirley?? I worry about her daily. PLEASE tell my she has been to the dr! Make her go to a different one from your moms if it is too hard. But I really think he would be the one to go to. Like I said, if you want, send me her address, I will make her life miserable until she goes. LOL You can't mess with RP. You both know that from experience. Let me know how you are doing too. hugs Quote Link to comment Share on other sites More sharing options...
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