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Hello Bakersfield!! I'm from Manteca, we are almost neighbors..

Yes I have itchy ears too and a discharge. No one will do anything about it.

At Stanford they just looked at me and said it was normal. HA!!

I will be switching to Kaiser in November through no choice of our own and it

does scare me. Hopefully I can educate them before we join.

Welcome to the group and please ask all the questions you want. This is how

we all learn.

Looking forward to getting to know you better.

hugs

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>

Hello,

My name is Marilyn and I also have terrible itching inside my ears.

I don't get a discharge, but the itching drives me up the walls at

times. Every time I go to the doctor I keep telling him about this

and he looks in there and just sees a small amount of irritation.

The last time I was there I asked if there was something that would

help and he recommended using a little polysporin on a q tip. I

haven't tried it yet.

I also take pred and I am on metho.

Hello, I am writing from Bakersfield, Ca. My husband is 36 years

old.

> He was diagnosed with R.P. about 3 years ago. We have been to

several

> Kaiser Dr.s and they just don't seem to know how to offer any help

> other than steriods. The worst part is the itching inside his

ears.

> He takes the steriods which help after a few days but both ears

dry

> out and then have a yellow liquid that drains from them. Any

> suggestions on what might relieve some of this discomfort? He

> currently takes Prednisone. Thank You.

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Hello, " annasgranma "

My doc originally thought that my itching ears were caused by an allergy

and prescribed clariton-D. Another doc thought it was the ear wax, which

expands when moistened, thereby causing ear irritation. By the way, when

the ear wax was manually removed instead of suctioned out, it caused even

more irritation and a flare-up. Tobra-Dex drops were recommended. Also,

water/peroxite irrigation to remove the ear wax caused a flare-up.

I seem to have super sensitive ears. One of the docs prescribed ear

drops, Neomycin, which seemed to help at first, but, later caused MORE

redness and itching. It seems that 10% of the population is allergic to

this. I'm part of the 10%!

Finally, an ENT prescribed Triamcinolone Acetonide ointment, 0.1% that I

apply to both of my ears with a cotton swab. I've been using this

ointment for 3 weeks, and it seems to be working best so far.....I'm

keeping my fingers crossed!

I know this has been lengthy, however, the point I am trying to get

across, is to be persistent with your physician! RP is a mystery to

the medical community out there, and unfortunately, treatments are

sometimes a matter of trial and error. What works well for one RPer, may

not work for another.

Best wishes and remember to be persistent with your physician.... Aloha!

karen

> Message: 1

> Date: Sat, 30 Mar 2002 00:51:57 -0000

>

> Subject: Terrible Itching

>

> Hello, I am writing from Bakersfield, Ca. My husband is 36 years

> old.

> He was diagnosed with R.P. about 3 years ago. We have been to

> several

> Kaiser Dr.s and they just don't seem to know how to offer any help

> other than steriods. The worst part is the itching inside his ears.

> He takes the steriods which help after a few days but both ears dry

> out and then have a yellow liquid that drains from them. Any

> suggestions on what might relieve some of this discomfort? He

> currently takes Prednisone. Thank You.

>

>

>

>

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I also had TERRIBLE ear itching, to the point that I would scratch until

they almost bled, and then - of course - they would REALLY hurt... They

also had yellowish discharge. I was also told that it was allergy. So why

didn't the allergy medicine ever help??? I didn't know that RP did that

too. Well, another mystery solved! Actually since I have been on the pred.,

my ears haven't itched much at all. One good thing to say about it.

(Actually today it's the only good thing I can say about pred. as I type

this with my little swollen sausage fingers... --too much salty food at

Easter :-( -- )

Kathleen (Tx)

Terrible Itching

> >

> > Hello, I am writing from Bakersfield, Ca. My husband is 36 years

> > old.

> > He was diagnosed with R.P. about 3 years ago. We have been to

> > several

> > Kaiser Dr.s and they just don't seem to know how to offer any help

> > other than steriods. The worst part is the itching inside his ears.

> > He takes the steriods which help after a few days but both ears dry

> > out and then have a yellow liquid that drains from them. Any

> > suggestions on what might relieve some of this discomfort? He

> > currently takes Prednisone. Thank You.

> >

> >

> >

> >

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

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